scarytoast commented
12/30/2009 at 7:10 pm
Cece -- thanks for you comment. Do you know what medications have been effective for dystonia? I think you are right that my mom has it, and actually I have heard some of her doctors use this term bef
...Read MoreCece -- thanks for you comment. Do you know what medications have been effective for dystonia? I think you are right that my mom has it, and actually I have heard some of her doctors use this term before, but recently it has fallen out of favor and they have been blaming everything either on the back surgery and psych diagnoses. The doctors that we have been seeing are not really willing to take this problem seriously (the doctors in the hospital where my mom is currently definitely are not). Or if they do, they just say there is nothing else they can do to treat her since narcotic pain killers make her psychotic. She just saw her neurologist the day before she was admitted to the hospital, and he basically said there was nothing more he could do. We have taken her to several neurologist before, and they haven't been able to get this under control. So I'm looking for any ideas I can get!
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