krnhersh commented
11/30/2010 at 2:03 pm
it is some type of dementia-definately fear- she is 87 yrs old- has had diabeties for about 20 yrs- many health issues-dropped pelvic floor-gets impacted often -was just in hosp for that and wasnt abl
...Read Moreit is some type of dementia-definately fear- she is 87 yrs old- has had diabeties for about 20 yrs- many health issues-dropped pelvic floor-gets impacted often -was just in hosp for that and wasnt able to pee-needed cathether- because she wasnt
able to sucessfully eliminate- she became very inactive- staying in bed most of the time- even before she seemed to always have a great deal of pain-
about 6 months ago when she was going to PT they said she had good flexibilty- but she didnt believe it- having fallen before- she was and is afraid of falling- she always had a problem with vertigo and dizzyness- feeling unsteady- but nothing was really found or given to help- she had many different test to see what the cause was- nothing really found-
she had temporial artiritus(sp?) about 6 yrs ago-
was on prednesone- along with her insulin- if was a hormanal ess-
we finally got thru that- but depression really tookover
although that was a dirty word to her- she was a professional-a therapist,a teacher,very intellegent,an artist-musician- cultured and accomplished-
she had a few small strokes-started not being able to express what she was trying to say- it really frightened her-
and it progressivily got worse-
she realizes on some levels what is happening-
she also is fighting the "take over" of her life by
not only the disease and aging, but by the agency,and their rules and employees,which is connected to the insurance she has that my brother is overseeing.
i was included in her healthproxy and poa- but was taken off
due to family issues- my brother who lives 4-5 hours away is
more inclined to believe and trust the so called professionals-
ihappen to question things that dont make sense or that i dont understand. and that has become one of the big issues-
be that as it may-she hasclearly said she doesnt like and is fearful of all these people around her- she gets afraid- and
frustrated and then fights everything-
she needs someone 24/7 but not someone who to sit next to her and watch her everymin. u mustknow that many of the people who are hired as caretakers arenot educated enough in the area
of common sense and what the emotional needs might be-
it very frustrating-but it is necessary- i cant be with her all the time- it is contributing to my own health problems- but i am in touch all the time=i live avery close- and i can calm her down, most of the time- but since my brother has the legal authority and i dont- btw, this was changed,with moms permission, but i wasnt included when there or made aware at the time of the change.i dont know what was said to influence her-
i have been the one caring for her the past 7 yrs, i took her to doctors, spoke with them, i know her history and basically was he caretaker-alone-
i dont know if i am giving u too much info-
i guess i needed to get it out- i find my self in tears right now-
i losing my mom- i amconstanlty being told i dont know what is best- i am not a doctor= leave it to the professionals-
well, sorry- i have seen too much that goes wrong in the medical
field-
my dad was a doctor- i grew up learing about hospital sand the politics
i worked for him the last 10 yeawrs of his life
i worked in hospitals before- i am not blind to what goes on
i dealt with mu fathers horrific treatment when he was dying- form his own hosep=when insurance was low- to the so called best places for patients to go after the hospital relaeases them-
being told it was a hispice and it wasnt= horror stories which i wont go into =
i apologie for the lenght of this
i feel like im going crazy
i can just imagine how my mom feels
i hope i havent misused this chance to post-
thank u so muc for just listening
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