Keep Caregiving From Ruining Your Other Relationships

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In the 1970s, there were ongoing debates about whether a woman could balance a family with a career. The discussions centered on being a good wife, mother and employee.  The question seldom posed, in those days, was how, besides being a wife, mother and career woman, could a woman also be a good daughter?

Today, we hear about the toll elder care takes on families as routinely as we heard the former arguments in the '70s. Adult children are being faced with choices (or seemingly, assignments) they never thought about before. They are raising children or teenagers and holding down a job, when suddenly they find that their aging parents need an ever-increasing amount of attention.

Why is elder care more of an issue now than in the past?  For one thing, people are living longer than they used to and, often, they are not living with good health. Yes, we all love to point to the 93-year-old guy out there playing golf everyday, and these people exist. I know a couple of elders like that and they are a joy to behold.

However, many elders today are stroke survivors, or are suffering from diabetes, lung problems or dementia. Sometimes they have a combination of these ailments, and others, which likely would have caused death even a decade ago. Now, medical advances provide lifesaving options. Many of these people live – some even living fairly good quality lives – but they need assistance from family or paid attendants.

Another piece of the puzzle is that many people have chosen to have children at a later age, thus putting them in a position where they have young children and older parents at the same time. This can be a delightful combination, as long as the elders are reasonably healthy, but when they are not, the adult children of the elders, also parents of young children, can be faced with very difficult choices. These are the people now famously known as the Sandwich Generation.

Whatever the circumstances are that propel people into elder care, the problems that can come from it are myriad. All you have to do is visit the AgingCare.com online caregiver support forums and you'll quickly see that many caregivers, both men and women, find themselves feeling pulled in so many directions that they can no longer find their soul.

They fear for their own health – mental and physical – as they try to take care of the needs of three generations, the most demanding often being the elders. Caregiving for a sick elder, especially one with dementia, can become so all-consuming that the caregiver's other relationships suffer.

 
 
 

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  •  Comments 1 to 10 of 79 
 
 

alicemb

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Jan 28, 2009

My husband and I are near a divorce over my father being sick. I have been taking care of him for the past 6 years. I have my dad pulling me one way and my husband feeling like I am choosing my father over him. I often feel like running away from home.

I cannot believe this situation. I have three sisters who do nothing at all they all live elsewhere and always just call and say

 
 

mindingmom

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Jan 29, 2009

You talk about the cargiver who is not that old herself because mom had her at a late age. What about the caregiver who herself is in her 70's because mom had her at a very early age. I'm 72 and I have my own problems too.

 
 

msTish

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Feb 4, 2009

i feel as though my life is over. I no longer have friends, My children will not visit because my MIL is such a bitch and negative about everything. I know my husband lives here in this house but we certainlly see things from two different perspectives.i have been screaming for him to open his eyes and see the things his mom is doing but he just refuses. We have no future here.WE have been digging ourselves in a big hole for many years, and living here is is only making it worse. After our kids moved out we started to have all this time together and i really thought we would always be together.Then this caregiving journey.I understand the love a commitment to his mother, but when do i come first.when is the day going to come that i put my feet on the floor and for the entire day no one wants or needs anything from me.. WHEN I am 41 years old and i need a life. Sorry for the long vent i needed it.

 
 

lizp

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Feb 5, 2009

I have been caring for my mother every weekend since 1989, when my dad died. I was a single mom raising 3 boys, working 2 jobs to make ends meet. My mother has had 3 back surgeries and 2 strokes during the 20 years that I've taken up as caregiver. I was an only child. My mother was from a large extended family who is still offering a lot of free advice, but no actual help. Most recently, my mother has been in assisted living, and she agreed to give me POA, and I now live in her house. She developed health problems, and had falls, so she had to go to full nursing care for a few weeks. I went to a Care Conference today, and was told that now she needs 24-hour supervision. I want to put her in an Adult Family Home, but she adamantly opposes this. She wants to come back to the house and have a full time caregiver (me). She doesn't want to spend her retirement income, about $3,000 per month. I am a teacher, working at a job I love. I don't have time to rest on weekends, and I don't have time for friends or family. I wanted to retire from teaching next year, and now I'm afraid my mother will insist on all my time. As it is, she calls me every day of any vacation I have. I WANT MY OWN LIFE!!!!

 
 

I am caring for my 77 year old father, who is VERY dependant. My husband is wonderful, attempting to be patient...but he loses it rather easily. I feel like my whole life is centered on caregiving for others. I am a RN...so, naturally, I have the caregiving "gene" (I say with a smile on my face). I have 2 brothers who live in another state and WILL NOT take my father in, even though he begs and pleads to live with them. My father has enough wits about him to know that he is coming between my husband and I, but life remains the same. I have now begun to look for outside agencies to help, but even that task is sucking up my time. My brothers are free with advice on what I should do...or how I should spend my father's money, (they are always watching...I imagine they are eyeing the inheritance)...but when my dad goes to visit, from the first day, they want to know if he can go home early. It breaks my heart. I too, want my own life back. I have not had a life alone with my husband since we got married. Thank you for letting me vent!

 
 

sooz

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Feb 7, 2009

'Don't let caregiving ruin other relationships,' you say. may someone answer one question?.......HOW? it has [and it should not have but] now its been 20 years and no one in the family speaks to me and it's been forever. if i should happen to run into one sib, i'll will be happy and social and as nice as can be. nothing in return. i will send a nice card with happy message, nothing in return. if i make an out of the ordinary call, nothing in return.

many years ago my mother started doing some very cruel actions towards us. like not showing up for christmas dinner, july 4th picnic ect. ect. this went on several times a year for years! she would plan a dinner out with my sibs on MY birthday and not include me. she would always say in an innocent surprise, "ohhhh i didn't knowwww". so rediculous and sad for both my hubby and me. i went to see a family counselor and she said its called 'passive aggresive'. i said, 'why'? she said, 'anger'. i will never forget that day. anger? omg!

well, there was nothing more i could do. i had them over always [if they'd come]. my husband unable to walk or talk needed me 24/7 and that's all i could do unless one of our busy teens could stay home from college or work, to help out for me. in the beginning that was possible on occasion. i see now, that she was angry that i put my loving wonderful man [who they loved as well] first, in my life. my parents became angry and bitter and soon got all my siblings to follow suit. 10 years ago, this month, i learned about respit care. now, finally, i could get out of the house. my mother remained stand-offish, but i'd push myself into her life a bit. i had 4 hours a month and wanted to use and appreciate those much needed hours. my sibs remained 'quiet'. i was busy and happy enough so just let them 'be that way'. i moved on in my very controlled life, wishing they hadn't been so cold and narrow minded. we were nice and fun people and my husband would have LOVED some visits. but nothing. now, he recently died after 17 years of total paralysis. none of my family even picked up the phone. i have yet to hear from them. did they ever care about either one of us? do they know how their narrow minded actions hurt the nicest man in the world?

"Don't let caregiving ruin other realationships". HOW? i ask............sooz

 
 

mindingmom

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Feb 7, 2009

Dear sooz, I am so sorry for your lose. My prayers are with you. Your story is so much like mine. It all started when my husband had a heart attack and had to be on oxygen 24/7. I noticed I started losing some of my friends. But was so busy taking care of my husband that it didn't bother me too much. I now have my mother living with me who I take care of. She is 91 and can't do much at all, has dementia and trying to carry a conversation on with her is almost imposible. She also was like your mom...wouldn't go to my house for the holidays, or to my granddaughters graduation, or communion...but instead would go with any one of my 3 brothers. They do not want her and they will tell you out right that they don't. They put her in a nursing home and I had to take her out to come to live with me. I do what I can after all she is my mother. But she has this attitude that this is my obligation. I am an only daughter. The boys call only once in a while.
Since I have my mom here I noticed I lost all my friends. My husband and I don't do much anymore. He watches TV in another room because mom talks all the time and mostly jibberish. I feel so alone. I started eating a lot, I found food comforting. Then New Year's came and I said to hell with all....I am taking care of myself..started losing weight and feel good.
So the heck with "Don't let caregiving ruin other relationships" I don't care, if they don't want to bother with me then they really weren't my friends.

 
 

You are right that intense caregiving is almost guaranteed to ruin some relationships, even if it's just a few "friends" that feel neglected. Then there are family members that want you to devote your life to caring for the parents, but they want to decide what you do and how much you spend. Then there are the spousal issues - and your children. Everyone feels neglected, and the caregiver is a wreck trying to care for everyone.

There's no magic answer, like there's no answer to "reduce your stress." It's about self-care, trying to get help, and in the end, detaching from the people who stress you and are treating you badly. That doesn't mean you must treat them badly, but try to figure out your part in the problem, and then realize most of it is their problem. Try to let go of the relationship and find supportive friends at caregiver groups or church or wherever you can.

It's hard. Isolation is one of the biggest issues for caregivers. It's like people are afraid the may "catch what you have." Also, I think people are so afraid of seeing what could be their future (either as a caregiver or care receiver) that they stay away. Some people don't want to help, so they stay away from fear and guilt. You may actually ask them to run an errand or something, and rather than say no, they abandon you.

My heart goes out to all of you who have had this happen - and we all have, to some degree. We need to hang together. But, do try to examine your own role and see if you can change anything. If you can see a counselor (I know, when would you do that and how would you pay for it????), but if you can, you can talk it out and get some perspective. Otherwise keep communicating with other caregivers, and know you are not alone. Sharing your problems and perspective helps others, and in the process, helps you lighten your load.

Blessings,
Carol

 
 

sooz

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Feb 8, 2009

thank you carol for your insightful thoughts. gosh, i appreciated that. the word 'detaching' is the exact word i have been working on. it was easier before my heartfelt loss. now, just memories of how so many people are not blessed with compassionate hearts, just little ones for pumping only. not only have all my siblings turned their neglectful backs on us, but as I've mentioned in the past, his brothers as well, never showed up despite my bribing and begging and pleading. and for other sibling rivalry reasons, 2 of our kids have done their nasty neglectful abandonment towards us as well. I'd call a few times this year and plead, 'please stop in daddy misses you'...nothing. months later, 'daddy's been sick, how about a little compassion?'...nothing. then, 'daddy's in the hospital'.....still nothing. 3 days later, 'daddy's taking his last breaths'....one showed up for 30 minutes. the other didn't even come to his funeral. is this a case of cruelty running in the blood?
yes, friends have kindly stuck with us, saying 'they' don't deserve us. carol, my only part in this nightmare is sticking with the one who needed me for his life. i am not sorry for that. and to treat anyone badly is the furthest thought in me. however, i am now FERIOUS with the 2 kids who have shown their father such cruel neglect form a Christmas no-shows, father's day no-show, and for his last birthday, another no-show. not to mention every day in between. they don't want my forgiveness. jealously runs thick in their blood. and i am completely done with that low form of humanity! wheeew! now is that a 'vent' or what.
one more thing, are there any proverbs, prayers or definitions of a caregiver written anywhere? i would love to read some or even one. maybe some homemade creations from the readers. I've got an idea, but don't want to go first. anyone?......sooz [sorry if this is more 'venting' then wanted]

 
 

Anne

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Feb 9, 2009

Venting accepted. How, indeed?!

As much as you loved your husband, now you get to feel sorry for those who were not able to show love. They have hardened their hearts, but you don't have to. You chose the better way, now don't get bitter. "Forgive them, for they know not what they do."

I admire that you stuck by your husband. You are a hero. "...Inasmuch as ye have done it unto one of the least of these my brethren, ye have done it unto me." Matthew 25:40. Read verse 41 also, and you will see what happens to those who don't show love and compassion. They have their reward. And you'll have no regrets.

You're loved. Spend time with those people. Don't waste your energy on the others. (I'm preaching to myself, too.)

 
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