Alzheimer's May Trigger Hoarding Behaviors

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Hoarding <br>and Rummaging

Has your loved one, before Alzheimer's was diagnosed, always been a bit of a pack rat, someone who believed in "saving for a rainy day" or "waste not want not?" Or, as younger versions of themselves, did they like to collect things, such as dolls, coins, and other items considered valuable and enjoyable? If so, you could start to see the "collector" take that behavior to the extreme, which is sometimes called hoarding.

For example, an elderly woman with Alzheimer's may like to collect tissues because they are soft. Her caregiver begins to find tissues stuffed in pockets, purses, couches, closets, even the bathtub. Another person collects ties from bread bags. And yet another refuses to throw anything away, resulting in piles of junk lying around the house that could easily be tripped over.

Compulsive hoarding is a psychological disorder often seen in obsessive-compulsive personality disorder. If hoarding begins to interfere with everyday activities and life, it is considered pathological hoarding.

When Collectors Become Hoarders

Someone's pre-Alzheimer's personality may trigger hoarding behavior in the disease. For example, someone who was already prone to experiencing anxiety, when faced with aging and the possibility of outliving their resources, may begin to collect and save against the onslaught of feeling overwhelmed by what lies ahead.

Many times hoarding does demonstrate a need for comfort because of the deep fears and anxiety experienced by some patients.

Others will hold on to items because they fear their memories will be lost without that tangible evidence of the past. As Alzheimer's patients lose track of what is going on in the present, those items could become more and more important.

Hoarding behavior is most likely due to insecurity, anger, and confusion as brain function is decreasing. In addition a person with Alzheimer's or dementia may take things that aren't theirs because they like it for the comfort, memories, or because it calms those fears and anxieties.

Confusion Can Cause Hoarding

Sometimes, people with Alzheimer's or dementia hoard not out of a need to collect things, but rather out of confusion about how to handle a particular situation.

For example, what looks like a messy pile of mail may be the result of your loved one losing the capacity for sequential tasking. It's important for their well being to sit with them and go through those stacks. Don't let things such as utility bills go unpaid. Help them with the process of looking at bills, writing the checks, and getting them mailed.

A senior may stockpile medications because they forget why they are taking them, or don't remember how much to take. Due to embarrassment, rather than ask for help, they hide the medication away somewhere. 

 
 

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  •  Comments 1 to 10 of 44 
 
 

mitzipinki

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Feb 11, 2009

I am so glad I don't have to worry too much about this issue since my parents are now in assisted living. But I have to say when my mom was in the hospital I had to stay with my dad when I got home from work

 
 

mitzipinki

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Feb 11, 2009

Try #2.... I am so glad I don't have to worry too much about this issue since my parents are now in assisted living. But I have to say when my mom was in the hospital I had to stay with my dad when I got home from work, because he could not be left alone (I had people during the day). My dad rummaged through everything, and it was hard to know what he was into.

I remember the day he went through my purse that had my keys in it (for his car he could no longer drive). I heard him rattling my keys and when I caught him in my purse I asked him what he was doing. He looked like a kid with his hand caught in the cookie jar. He said I'm going to take my car out. I had to ask him whose car he was talking about because only mine was out there. He scared me half to death.

My father also rummaged through all the bills and paperwork that mom had stashed. I have no clue as to what he may have ripped up or thrown out, but I recommend anyone who has an Alzheimers or dementia patient check things thoroughly!!

When we had also moved my dad into the assisted living apartment while mom was still in the hospital, we emptied dressers to move over and emptied as much as possible. What scared me the most is when I would check on him in the apartment and he had pills all over the place in the drawer. I had NO CLUE if he had taken any or how much. I threw them down the toilet. The next day I went over, and he found more. I don't have a clue where mom had stashed them because we checked everything and the assisted living distributes the meds.

Just be careful. Some good advice in this article. Wish I had this back when.

 
 

cmrjr

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Feb 11, 2009

My husband has always been a saver, and since AD he likes to save everything. A box is not enough, but we do have a kind of truce. he can keep anything he wants to save in his den. Of course, I go in periodically, and sneak some of the old magazines, newspapers and catalogues out to the recyle bin. Everying that comes in the mail, he files away in one of his shelves so e has piles of magazines and catalogues, and if I didn't clear them out we would not be able to get into that room (grin). We can manage with it though. I think part of it is growing up during the depression.

 
 

Tucsonlady

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Feb 11, 2009

My mother-in-law does not have AD. However, she is 96 and hoards things that she pulls out our recycle trash: gallon milk containers, plastic bakery containers, and coffe containers, for instance. i found a bunch of this stuff when we had a bit of a flood in her room (we had to have the entire room recarpeted, repainted, etc. She was even keeping small pieces of soap in a container in the bathroom. I threw out a ton of stuff. Now I keep an eye on that as much as I can, but she did squirrel some things away behind and under her bed. Exhausting!! Oh, and she had 2 steak knives she brought from her house. I put those with our silverware but she took them back...anticipating the day she goes home (which is NOT an option!)so she can bring those back. It drives me crazy.

 
 

cmrjr

Give a Hug

Feb 11, 2009

Oh, Yes, coffee containers, and margerine containers, because someday he's going to organize all those screws in the garage. If only I live that long.

 
 

Tucsonlady

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Feb 11, 2009

Oh, i forgot the margarine containers...very important item to put behind the bed...one never knows when one might need that (???). My mom-in-law also saves every bit of mail. When I cleaned out her house, I was throwing away electric bills from the '80's. I even found an electric bill from 1953 (the year I was born...I kept that one!) I organized a lot of her important papers in an expandable file that she never uses....just piles the mail (even junk mail) up on the shelves in her closet. When she missed making a payment on something, gee!, the bill couldn't be found in all the paperwork mess. Then when she asks me to help her find these things, I start at one pile and work to the next....all the while listening to her say," Oh, I wouldn't have put it there!" If I find an object in some weird place, she's always defensive, like "Well, I didn't put it there!" (As if some other family member si sneaking into her room and deliberately moving things...it's never her fault, of course. :/ ) It's hard to throw out stuff in her room because she's always in it! As soon as I try to counsel her on where to put things, that's her moment to advise me that she's going back home to live. Sorry, lady! That ship sailed a long time ago! I swear I should write a book.

 
 

Anne

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Feb 11, 2009

If you do, I'd like to read that book! I need to laugh, and you're funny.

What's with our parents? I keep thinking, why do I have to clean up their messes? I've been cleaning out their attics, the garage, etc., all my life. But they won't. And can't. And no one else will. So we take loads of stuff to the curb on garbage day when Mom goes to appointments. Then we drive back home. She asks, "Where's my...?" We threw that out, Mom. "How dare you? This is my house! That was my..." Yeah, your broken, burned, old, torn, nasty, ugly... OK, maybe I should wait till she dies. Then it may be more fun. I can toss the stuff with no repercussions. Except, with all that stuff, it could be a fire hazard, and we really need to sell the house. Just walking through some areas is a maze at present, with waist-to-shoulder high piles. And the mice absolutely love it. How can you show a house like that? And how can they live in a house like that?

Mom's TV broke, so she stacked another on top. She won't let me trash the new one, because she said, "I need it for a table." A stuffed animal got burnt by being placed too close to a gas heater, and I threw it away. You'd think I stole a prized possession. I should have kept it for evidence.

The hoarding of food makes me angry. I can't stand the waste. Then it gets freezer burnt or expires. Hoarding is a terrible character defect and longstanding problem with them. The dementia and Alzheimer's just exacerbated it.

Ditto on the margarine containers, and the mail, and the overdue and shut off notices. Don't forget the twisty ties, the aluminum pop tops, rubber bands, empty film containers and pill bottles, and every thing they never use but will never part with because "we just might need it someday." They even save styrafoam packing "peanuts" and bubble wrap and boxes. (Not to pack up anything and throw it away, mind you. Just to save them, "just in case...")

With recycling, every label must be soaked off, and each little item must be placed into the proper receptacle. I'm surprised they recycle anything at all

 
 

Tucsonlady

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Feb 12, 2009

Here's another one: all my mom-in-law wants to eat lately is potato salad (no mayo...just potatoes crunched up with boiled eggs...so yukky). For one thing, we have a gas stove and she wears this ridiculous cloth shawl while cooking. She cooks while we aren't home, so I have a terrible fear of her lighting up and the house along with her. Then, she makes this potato "salad" with 2 giant potatoes and two eggs...eats about a handful and leaves the rest on the counter, in a paper towel covered bowl. I come home, put that into a container...never to be touched again till I throw it away. Yesterday I asked her...PLEASE...just make one potato and one egg because the stuff gets thrown away. Naturally she interprets that request negatively...like I'm telling her she can't make potatoes. She pours the pot of water down the drain and does the martyr thing. Oh, and now she should just move home because she feels she's a "burden".............same old Groundhog Day speech that is eternal...."want to move home...gotta move home....a church lady can take care of me at home....maybe I would like to try a nursing home" (!!!!!!). I have to hold myself back from yelling, "OK! LET ME KNOW WHEN THE CHURCH LADY IS ON BOARD AND I'LL HELP YA MOVE!!!!!". She's 96.....will we still be having this conversation 10 years from now??? Oh help me, Lord.

Oh, Anne, I found a Harvest Gold toaster in my Dad's garage from the 70's....along with all 4 Beatles bobblehead figures and massive amounts of tools and parts and things that could not be identified. It wasn't a garage...it was a giant 4 room time capsule. We have been trying to get that house ready to sell for 4 years. Now we missed the "bubble" but it's on the market by April 1 or I will surely go mad.

 
 

Tucsonlady

Give a Hug

Feb 12, 2009

OK, hate to digress from the hoarding issue, but I just have to expound upon my mom-in-law's mythical "CHURCH LADY".
Mom has not been to church in probably 15 years, so she doesn't have a really wide net of connections to the church or anywhere else. But, somewhere out in the world, there exists some middle-aged woman with no life...absolutely no family or friends...who is just dying to trade room and board for totally caring for a cantankerous, suspicious elderly woman. The church lady will not be subjected to a criminal background check because she is, of course, from CHURCH and therefore is just naturally an honest person. The church lady will be expected to do the grocery shopping, take Mom to the bank, clean the house, do the laundry and yardwork all for free and just for the priviledge of a roof over her humble head. No pets and no pesky friends/relatives will be allowed in lest they mess up the house or steal from Mom. However, should the church lady step out of line or cause Mom to worry or cannot help with medical problems, Sonny Boy (my husband) will be summoned in the middle of the night with complaints. Constipation will still be Sonny Boy's area of expertise (can't bother the church lady with bowel problems!!).
OK. That's about it. I'll put an ad in the paper and see what floats to the top.

 
 

kverduyn

Give a Hug

Feb 12, 2009

Couple of suggestions that I have found helpful:
Getting rid of the "hoard", enlist a family member or friend to take the person for a little ride and clean like a crazy person while gone - never TOO much from one area at a time and it is NEVER NEVER noticed. Pleading ignorance helps as well.
As far as the cooking goes? Disconnect the stove while you are gone and just say it is broken and you are waiting for the repairman. I do this when I leave the house for fear my mother will start a fire and would not be able to get out in time. I always have "easily" eaten foods that she does not have to think about - such as bananas, cold pizza, bowl of peanuts, sub sandwiches cut into smaller pieces, no preparation and no stove needed.
It's not always easy and the moods do get tiring, but the best bit of advice I EVER got was from someone who said when the negativity gets to you, put on your coat, walk around the block and walk back in like you've been gone for a month. They forget you were only gone for 5 minutes and have forgetten what they were upset about to begin with. This has worked wonders for me!!!
PS - I too am looking for thie mythical Church Lady. :-)

 
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