Get Help From Your Siblings With Caregiving

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So it goes when it comes to siblings and elder care. Not always, of course. I was fortunate in that, though I was the primary caregiver to all of our many family elders, my sister was only 40 miles away and she did her best to come in to visit once a week. The fact that I didn't take time off when she did visit was my problem, not hers.

One thing I've finally learned is that it's the caregiver's responsibility to ask for help, and I wasn't very good at that. Asking early on is best, before everyone is trained to believe you have nothing to do but be the caregiver. However, given the sneaky way of slowly expanding in scope that caregiving has, it's not always easy to know when to let your need for help known.

Also, asking doesn't always bring results. I interviewed 20 caregivers when I wrote "Minding Our Elders: Caregivers Share Their Personal Stories." A full two thirds of the people I interviewed had sibling problems. And of those, many complained most bitterly about the siblings who were always too busy to help, but then when they did visit, often during the holidays, they would spend their time criticizing the decisions you made for your elders and how you did things for them.

Here they were, fresh from home, telling you how you should be handling Dad's medications. You didn't even get a chance to explain that Dad would play a shell game with the daily pill box you set up, putting one pill here, another there, until no one had a clue what he'd taken and what he hadn't. Yet, when you mention that maybe it's time for assisted living and/or some in-home help, they start screaming about the cost.

The last you heard, the money belonged to your parents. If your parents are agreeable to assisted living, then maybe that's what they need. But it saves so much money to have you shoulder the whole responsibility, so the siblings, with an eye on inheritance, often like that idea best.

Even if they would agree to assisted living for your parents, you'd still be responsible for emergencies, for bookkeeping, for setting up or providing yourself the "extra" services such as medication monitoring, doctor appointments and shopping that aren't covered by most assisted living centers.

It's made you wonder for the last couple of years. Mom and Dad get excited about the assisted living center that some friends live in. There are things they'd miss about their house, but there are so many things that are a nuisance. They see their friends taking part in activities and having a great social life, while their own neighbors have all moved on or died, and now they are surrounded by young families. None of their old neighbors are around anymore.

 
 

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viva2

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Dec 10, 2008

My brother and I are the only children my mother has. Another brother died about 4 years ago. I am caring for my mother in my home while working. I have two people who stay with her during the day. I just called my brother to ask what he was doing for Christmas. He didn't think mother needed a crowd so he didn't think we needed to do anything. I told him my children were coming on Christmas day and he was welcome to come, since I was afraid this may be mother's last Christmas. To my surprise he was really booked up that day but may be able to make it for 30 minutes. We have never been close but I thought he loved my mother. Well, Thanksgiving alone at home with her was a blast so I'm really looking forward to Christmas. He is a prince to let me have her all alone. How can people be so selfish?

 
 

195Austin

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Dec 11, 2008

Your brother will have to answer to our maker some day aboutm his treatment to your Mom and esp. you.

 
 

anonymous5546

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Dec 17, 2008

Mine never show up so whatever they say they can say to themselves because I don't have that discussion, If we did they sure wouldn't like what I have to say. you could call me BLUNT to the point of don't let the door hit you on the ass on the way out. i found out that friends are more family and more help than "family" are. so I am blessed in either case as mother would say I have too many friends well hate to say it but she doesn't have enough family. hmm food for thought since food is what we will be having a lot of LOL sometimes I crack me up

 
 

anonymous5546

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Dec 17, 2008

Well mine don't show up and if they did they wouldn't want that conversation it would end with "don't let the door hit you on the ass on the way out" you could call me BLUNT. Mother says I have too many friends, who by the way are much more loving and caring than any family so to speak of. I say mother you don't have enough family hmmm food for thought in this holiday season full of good food, sometimes I crack myself up LOL

 
 

bllysgrl

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Dec 17, 2008

My husband and I care for Both his parents(one w/Alzheimers, one with Spinal injury). We moved in with them 6 years ago, becaause we were spending more time with them than at our home.
My husband has 8 siblings who do next to nothing to help. To be fair-4 of them live out-of-state. The other 4 are within 20 minutes of the house.They don't call unless they need something and NEVER offer to sit w/mom and dad so we can have a break.
My husband and I took a weekend off in Oct. but before that it had been 15 months since we had a break.

 
 

Great reading, Ladies! It's always nice to know we're not alone, right?
Carol

 
 

anonymous5546

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Dec 17, 2008

It seems that is the way it always is bllysgrl. One does it all, I am trying to turn my thinking around, a very hard thing to do, I find that most people are very self centered including those we care for. We can't be responsible for what others think or do only ourselves, can you afford to hire someone to take care of your in-laws for a week end sometimes a weekend every six weeks or so is better than a whole week once a year. or just to go christmas shopping by yourselves and have a small meal hold hands and laugh I know its hard I did my husbands mother with Alzheimers 11 years ago and he was a truck driver on the road, well he still is so the majority 99% falls to me. I really do admire those in the family that just from the get go say she ain't coming here. But I am glad to be me I have a heart and even tho we have those stupid arguments and can't seem to find even ground on most days I wouldn't trade who I am for the world. I kinda like me as a matter of fact. so you hang in there check your DFACS offices on aging and see what they have to offer. I will be doing that in the new year because I see a decline and know I can only handle so much. take care

 
 

bllysgrl

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Dec 17, 2008

I think I am getting all the help I qualify for so far. I have an appt. w/DFACS on Fri about Medicare. My Father-in-law was just injured in Sept, so he was working up til then(78 years old). Up until his injury ,he made too much money to get us any help, between his paycheck and SS.
I should add that Mom is completely bedfast and has a feeding tube.
Been changing her diapers for years but this thing w/Dad is the killer. He can't even transfer to bedside commode(no strength and only one leg) He weighs 230#, so I can't lift him, hubby can't either.
Maybe the surgery he's having on the 29th will give him some relief(me too) because he will have to go to a rehab center for awhile.

Thanks all for listening

 
 

msdiva

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Dec 17, 2008

you know i know just how you feel im formally msbruce if you read my profile im the same person i wrote my family wants me to move out for some reason i couldn't log in but i know the feeling when you give all you give and you get knock down by something you been doing for along time i was told its jealous but i made my mind up i went on ahead and move out i hated to leave my dad i have been with my dad since my mother passed never left his side but they did but thats o.k.
they all will reap i went to see my dad the other day and he seemed withdrawn he wouldn't get up for them or eat i wouldnt tell them nothing they did this my father is not gonna last your not suppose to change a alz person like that but they don't care but i did and still do my brother is the D,P,O,A now by court not by my father wishes and brother knows that now he has to count for everthing but when they came in my dads house they seened all the work i did they were shock and i hope they choke on it they were surprise c instead of sending me to court they should have came to the house and seen what i did but they haven't been there since fathers day but oh well i did my part of caring for both of my parents god will truly blesss me

 
 

anonymous5546

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Dec 17, 2008

bllysgrl, when he goes into the hospital he will lose weight, I know what you mean I took care of Dad, went early in the morning he had broken his hip had to run back and forth to two hospitals eight different times, one of them was a hour away had new hip had to have two weeks rehab hip popped out, go to the hospital a hour away put hip back in stayed a week came back to this hospital for two weeks, hip popped out, back to the other hospital, stayed a week, back to this one stayed two weeks, went home, two days later back in ER has MRSA back to the other hospital take hip out stayed two weeks, back to this hospital stayed two weeks, went home, had to give him a IV each morning before work, got him up pottyed, cleaned into wheel chair sit with him which I did not mind all of this but it did take its toll on my body which no one has noticed but me and my doctor did this for six weeks back to ER massive stroke, week later dead, make all arrangements for funeral, call family, drive three hours to government burial site, entertain brother and family sister and family came to. enjoyed seeing her and hers but not enough time they had to rush back, jobs and all, now mom I don't believe in feeding tubes I don't want one when the body is giving up its time to let go it doesn't make anyone feel better or happier to have someone hang on by a thread . So I do understand very much what you are going through. love and prayers to you

 
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