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Elders Who Abuse The Relatives Who Are Taking Care of Them

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<strong>Caregiver Abuse</strong><br>Elders abusing their adult children

Why do elderly parents turn on the child that is trying so hard to take care of them?

Most of us have seen evidence of people being harder on the people they love than they are on strangers or even people they don't like. One example that comes to mind is a man that I have known. He was a jolly, good natured "good guy" in public, a salesman by trade, but a totally different person to his family – sullen, often angry and emotionally abusive. I've also known a couple of women who have admitted to behaving in a similar manner.

Families Take the Brunt of Elder Rage

It's not really news that people tend to be their worst with the people they love. Generally, this is thought to be the case because people feel safe enough with family to just "let it all hang out." Their anger at their circumstances, which may or may not have to do with these family members, is the real cause. Other times, the behavior is because the person has an abusive personality with deeper problems lurking.

Whatever the reason, it's not good. We owe the people we love our best selves. Not our "dressed for company" selves, but our compassionate, honest selves. However, most humans are very imperfect creatures. They will take out their frustrations on people they feel won't desert them.

Why do elderly parents turn on the child that is trying so hard to take care of them? This question came directly from the AgingCare.com community and it got many responses from people struggling with the same issue.

Why Do Elders Turn on the Caregiver?

My take on this is, unless the elders are people with personality disorder – which is a mental illness – they "turn on" the one adult child who is showing the most love by doing most of the care because they feel safe enough to do so. They don't consciously abuse this son or daughter, but they are frustrated and need to vent this frustration about getting old, having chronic pain, losing friends, having memory issues, being incontinent – all of the undignified things that can happen to us as we age. On a gut level, they trust that this caring person won't leave them.

The first step in handling abuse from an elderly parent is understand that the elder feels frustrated - like their independence is slipping away and death is right around the corner. Why wouldn't they feel frustrated? They suffer so much loss and feel every bit of it deeply. They see their own mortality written on the wall with only the date of death left blank. They feel humiliated and betrayed by their bodies. Does this make it right to lash out at the one person who is breaking her neck, and perhaps her marriage and bank account, to care for them? Absolutely not.

Don't Take Insults Personally

I think it helps if the caregiver can do her best to not take personally every insult. It also helps to be able to detach with love. My experiences with that kind of treatment don't stand up to many of the horror stories I read on the forum, but I was subjected to some pretty nasty treatment by my mother a few times.

She was a wonderful, loving person, at heart. But her escalating physical frailty and frustrating memory issues, coupled with other dementia problems such a losing the ability to make good decisions, would cause her to lash out at me.

There were times when I was nearly in tears by the time I left her after my daily visit to the nursing home. I'd had several family members in this home and knew the staff well. They knew me and they knew my mom. One day, when Mom was really nasty to me, the nurse, who couldn't help overhearing, told me to just skip a visiting day. I couldn't imagine carrying out her advice, so I ignored it. Things smoothed over, but eventually the same scene happened again. The nurse said once more, with emphasis, "Carol, just skip a day." This was a Sunday.

Sometimes You Have to Walk Away

That Monday morning I found I just could not make myself go to the nursing home for my daily visit. I didn't do this to be stubborn or to "show her." I was just hurt and exhausted. I knew Mom was well cared for by the staff. I gave myself a deserved day off. I didn't even call her on the phone.

When I went to visit on Tuesday, Mom was sweet as pie. I couldn't believe the difference. The nurse was right. I needed to stand up for myself. When my mom got verbally abusive, even though I understood that it was frustration with her situation that caused this behavior, I learned that I still needed to take care of myself. I (sort of) learned a tough lesson there. Even people with dementia can often sense when they have crossed the line. If the caregiver shows that she won't be treated in an abusive manner, the elder will often behave – at least for awhile.

This, of course, is harder if the parent and caregiver live together. However, if you are wounded enough by mistreatment, you can say that you are hiring an in-home caregiver to come in, since your company seems to not be agreeable to them. Then do it.

Research home care agencies ahead of time. Then when a day with your parents gets so bad that you need to take a stand, reach for the phone and say that you are calling the Whatever Agency to arrange for a substitute caregiver. Tell them that you are no longer taking abuse, and when they are in such a mood, you have relief arranged. Follow through, unless you see immediate results.

Find Backup and Take a Break

You never know. Maybe finding a little respite for yourself by getting help will allow your parents to gain a new appreciation for all you do, while still letting them see a new face. And you will get a breather. Maybe getting a little help would be good for everyone. Whatever you decide, you don't have to take abuse. If they become abusive, you can calmly say you won't be treated like that and walk away. If the elders can't be left alone, then you need to send for reinforcements. But most likely, when you stand up for yourself, acknowledging their pain and frustration, but saying that while those are things you can't fix, you are doing your best, and if that isn't good enough they will have to find someone else.

Be prepared, as bluffing won't work. Be kind, calm and stress your love. But be strong in your resolve. The philosophy I lived by - "please everyone no matter what it costs to me" - taught me some things I hope I will never forget. I have feelings and I count. My unending patience is not always a virtue. And taking a stand early on can help a great deal throughout the whole caregiving journey.


Elder care author, columnist and speaker Carol Bradley Bursack is an AgingCare.com contributing editor and moderator of the AgingCare.com community forum. Read her full biography

 
 

Comments

 
  •  Comments 1 to 10 of 247 
 
 

Mimis

Give a Hug

Dec 30, 2009

People with Alzheimert's are prone to this behavior. I strongly feel that books like, Creating Moments of Joy, should be a must read for all family members of people with AD, as well as their care givers. My time is yet to come, but I know that I will respond beter to love and patience than a commandeering, belittling tone, that gets to be common with frustrated care givers. Especially family who don't get enough respite. Have you watched Annie from the HBO series (The Alzheimer's Project on your computer search engine.) She is the one who lived on a farm and her friends fenced in a huge space so the mom could get out. She was so kind and gentle and recognized her mom's art. The mom is since deceased, but Annie was a wonderful example of a great Care Giver.

 
 

195Austin

Give a Hug

Dec 30, 2009

It is sad but true that this happens often and is very hurtful to the person trying so hard if you can just seperate yourself from the person if it is a parent is is harder to do-you have to self talk and if what they say to you is not true you have to just to tell yourself this if it is a spouse it is a lot easier to deal with.

 
 

Jeffgdee

Give a Hug

Dec 30, 2009

Hi,
Most of the newsletters I read are about taking care of your parents. My wife has Alzheimers and I am the sole caregiver. My wife is 79 years old and I am 69. Being that much younger is certainly a blessing because I have much more energy to deal with my wife's abuse. However I still struggle with her forgetting who I am and she always wants to go to her own house when shes already in her own house. My wife has had Alzheimers for two years now so I have already learned a lot and the struggle is not as great as it was a year ago, however, if there is anyone out there who is a caregiver to there wife, I would like to here your comments or suggestions. Thank you,
Jeff

 
 

Mimis

Give a Hug

Dec 30, 2009

Hi Jeff,
I don't fit your category. I'm the one with Alz. However, have you read "Creating Moments of Joy". It's great and it's the way I want to be treated.
The book emphases dealing with the patient where the patient is. Your wife's mind is probably in that time period when she was a child. Where was that? What was that home like? The book is better than my remembrance of it (I'd better buy a copy). Possibly some thing like: What would you like to be doing? or Didn't you have fun doing ....

Another idea: how long a person has been diagnosed with AD has nothing to do with where they are in the disease process. Some of us are lucky and are diagnosed at a very early stage. For others, the disease has been making steady progress towards diminishing our minds for some time before some one does some thing..

I used to explain to a friend whose mother was afflicted: She is regressing. You can't expect adult behavior. She's acting more like a five year old. However, a five year old learns with every breath; your mom forgets with every breath.

Lots of patience and TLC are needed.

 
 

Jeffgdee

Give a Hug

Dec 30, 2009

Hi, This is Jeff again,
I am a caregiver to my wife. I love her very much and have always been gentle with her. She does respond much more peaceful with love, patience and gentleness.
I have been playing the game so to speak, when she forgets who I am and wnats to know where her husband is, I have found that no matter how much you try to convince her that you are her husband, she will not believe it. So I tell her that I am a very good friend of her husband and that when he leaves he has me come over to take care of her. She has been accepting that and keeps telling me she is so thankful that I am there. Than just as suddenly as she forgets who I am, she will remember that I am her husband.
The question I have is, is it ok to play the friend of her husband or will this do more harm down the road?
Thanks,
Jeff

 
 

Mimis

Give a Hug

Dec 30, 2009

Hi Jeff,
You are responding to her where she is.Go with the flow, and whatever works.

 
 

These are great comments. I heard in an email from one woman who was angry with me because she thought I didn't know anything about Alzheimer's.

I thought I was clear in the article about my compassion for the care receiver, but perhaps I wasn't. This article was meant to help caregivers be better caregivers, and sometimes distancing oneself and taking a break accomplishes that. In fact, this step can prevent elder abuse. Exhausted people, especially adult children who are trying to care for parents who abused them as children, can become impatient, no matter how much education they have had. They need to pull back at this time for their own sake and that of their care receiver. They can do this by reaching out for help.

Anyone who follows the forum or reads an number of my articles knows that I strongly believe in getting into the world of the person with dementia, not arguing or forcing issues, and that I have deep respect for people with dementia. Four of the seven elders I cared for had dementia (all different types). I fought with doctors over my dad, because psychiatrists at the time didn’t believe in what I was doing. Now, it's a standard practice called "Validation Theory." Some of you may want to read: "A Caregiver’s Personal Story: Getting Into a Dementia Patient’s Head," that I wrote for Agingcare. This is the link: http://www.agingcare.com/121365

I'm adding these notes here so that if anyone misunderstands my intent in this one article, they can rest assured that I do understand that the person with Alzheimer's has a different thought process than those of us without it. I spent two decades caring for a total of seven people and have spent another decade as an elder and caregiver advocate.

As I said in the article, people living with the ravages of aging can become very difficult because of their own misery. Some take their misery out on the people they know won't drop them - their caregiver. And many times, if the caregiver can get through to the care receiver that they are doing all that they can, there is enough love and understanding left in the care receiver that they can, at least for a brief time, understand that caregiver is wearing out. Whatever the situation, no caregiver should "stick it out" to the point that they, and the care receiver, are both at risk. They should seek help.

I hope this clarifies the intent of the article a bit. Thanks for all of your great comments. Keep talking!
Carol

 
 

tori

Give a Hug

Dec 31, 2009

My mom has been living with us for four years. She is so much like the article describes, but even when she was young (and I was young) she treated me this way. It has gotten so much worse lately though. One factor that has contributed to this is that she fell in March and had to spend some time in a nursing home. She blames me for putting her in the nursing home and now she says that I have said things to her that I have not said ("I want her out of this house" "No one wants you" "You are ruining my life") I have asked her doctor if I can come out and talk to him, but he won't see me unless she is with me. THEN his nurse told her I wanted to come out and talk with him and now she thinks I want to have her committed! I try to walk away...I tell her that I will not stand and listen to her call me names and treat me this way...and she just gets madder and madder. I don't talk to her much because whatever I say ends up in an argument with her hurling insults at me and calling me names. Yesterday her doctor said she is fine...memory is good, etc. I'm glad he sees her for 10 minutes and can make that determination! I know it is her age, but it is SO hard to deal with!

 
 

This sounds like more than age. She probably needs to see a different doctor. The fact that she has always been mean to you is there, but since there are changes, she could be in a stage on one kind of dementia or another.

Her doctor doesn't seem to be that interested in seeing what is wrong, however he may be using HIPAA privacy laws as a reason not to see you. If your mom hasn't signed papers that you can have access to her records, he may not feel he can talk with you. Still, if he gives her ten minutes and says she's fine, she isn't being given the workup she needs to see if any type of dementia is present. A specialist could do that.

Of course, getting her to another doctor could be a problem. People face that issue all of the time. You are in a tough spot, and definitely need third party help. Is there someone she trusts (outside of the family) who can say, "I know this great doctor who may be able to help you feel better" and get her to see a specialist?

Try to take care of yourself.
Carol

 
 

tori

Give a Hug

Dec 31, 2009

I know she needs to see a different doctor. She actually sees several because she has many health problems. She was seeing a good elderly care doctor, but she quit going to him when he refused to give her a medication that he felt she didn't need. I am on her HIPAA forms, but her doctor still feels that she should be there if I talk to her. I discussed this a little with his nurse and she said they treat her for whatever ailment she presents at each appointment. I told her I was very disappointed that they were not interested in treating her as a "whole person" rather than just patching up her ailments. Thank you for your comments. I am always "on the lookout" for someone to give me great suggestions!

 
  •  Comments 1 to 10 of 247 

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