The Number One Issue That Causes Caregivers to Break Down

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When I was a kid, one of my role models was Horton the elephant, from Dr. Seuss. His phrase, "I meant what I said and I said what I meant—an elephant's faithful, one-hundred percent!" became my childhood mantra. Only later in life did I grasp the more subtle message, that I need to choose my meanings carefully.

When we communicate, in speaking and listening, we share meaning. In fact, in caregiving I came to realize that the words that I spoke (to myself and others,) and what I was listening for gave me my experience of caregiving.

So, let's take a minute to look at an aspect of communication that determines your well-being in caregiving.

How to Speak to Create Well-Being

"Life is 10% what happens to you and 90% how you react to it"
-- Charles Swindoll

Imagine yourself visiting your loved one in the hospital. You are walking down the hallway when you overhear two people talking. One of them points at a nurse coming down the hall and tells her friend, "That one has a lousy attitude."

Later, you meet that nurse in your loved one's room. Do you feel good about her caring for your loved one? When we speak we create realities, both for ourselves and for those around us. And those around us, in turn, create experiences for us. Like fish swimming in a communal fish bowl, we each create our own experience and that of others.

We are constantly being infected by others. Does someone you know speak in a way that deflates you or drains your energy? How do you feel after listening to the TV news? Or perhaps you have a friend who is prone to saying things like, "I'm having the most horrible day!" or "You won't believe what she said to me!" By one way of thinking, you are being invited to join in "awfulizing." When someone is being negative or hyper-critical, I've been know to say, "Hey! Stop pooping in the fish bowl."

It is easy to think of ways in which the words of others affect us, but what about the way our own thoughts and words affect how we are feeling?

If you say "caregiving is hard," do you mean you are committed to it being hard? How does your feeling about it shift when you say "Caregiving is a challenge"? Consider the way you "share" about caregiving with your siblings, friends, or family.

We use words to describe feelings, but words also generate feelings, so choose them carefully. Or think about the words you use when you're just thinking about caregiving at four in the morning. Those words that run through your mind create your caregiving experience.

While many forms of communication in ordinary life can seem recreational, (commonly called "sharing") caregiving is not ordinary life. Your energy and attitude are to be safeguarded at all costs.

Of course there will be times when you need to vent, but use them carefully. Set yourself a time limit. Then move on to more constructive forms of communication that are sourced by your commitment to caregiving. One of your mantras for caregiving could be, "If I'm going to make something up, make it good."


Holly Whiteside, caregiver's coach & advocate, is author of "The Caregiver's Compass: How to Navigate with Balance and Effectiveness Using Mindful Caregiving." 

 
 

Comments

 
  •  Comments 1 to 10 of 56 
 
 

RamonaLouise

Give a Hug

Oct 2, 2011

Nonsense, this is obviously written by someone who never did any hands on care. What causes us to break down is that we are aging and maybe going through menopause as we are doing hard physical work caring for someone that will not get better. We don't need a mantra, we need a break and a hug.

You just don't get it.

 
 

jeannegibbs

Give a Hug

Oct 2, 2011

Where else can goldfish poop other than a fish bowl? Somehow that analogy doesn't work for me. :) (I'm imagining fish litter boxes suspended just outside the bowl, with fish jumping in and out to use them.)

When I say caregiving is hard, I mean that it is difficult, also known as not easy.

When I say caregiving is a challenge, I mean that there are problems I have not resolved yet, that the tasks are pushing the limits of my resources.

Some things are hard (cleaning up after a flushed Depends) but not particularly challenging -- I know how to do that. Sometimes they are challenging (figuring out how to keep him from losing weight) but the answer might not be hard, when discovered.

I've said them both. I've meant them both. And neither statement detracts at all from my committment to give my husband the best possible care I can provide. Somehow it is difficult to believe that changing one word for the other is going to cause or prevent a breakdown.

Sharing feelings and experiences in ordinarly life is recreational? That's an interesting way of thinking about it.

If I'm going to make something up ... should I be making things up? Why?

 
 

Soverytired

Give a Hug

Oct 2, 2011

I'm not sure what the article is advising. Are we not supposed to vent? I have already learned that you must vent to someone safe and safe means someone that has been there. Some days I don't need to vent at all. Some days I need to vent a lot. And usually a venting day is one of those days where I might also comment, "This really happened - you can't make this stuff up". So, sorry, I don't get it.

 
 

emjo

Give a Hug

Oct 2, 2011

It is not clear to me what the writer claims is "The Number One Issue That Causes Caregivers to Break Down", unless it is the wrong choice of words to express the stress caregivers are going through, with which view I do not agree. I don't think people on this site are"awfulizing" their experiences. There is no need to "awfulize" the effects diseases like cancer and the various dementias have on people or to make up (?) anything about them. They are "awful" in their own right. To state otherwise would be denial in my view. This seems to be a bit "Pollyanna-ish".

 
 

The author failed to heed her own advice - "If you're going to make something up, make it GOOD".

 
 

cricketinafp

Give a Hug

Oct 2, 2011

I think this Author was writing with the principal of the "law of attraction" in mind and I can see the point trying to be made, however from the additional comments that were being stated about the caregivers experience it is obvious that the Author has no clue from real experience of 24/7 365. I totally agree with Jeannegibbs above.

 
 

windytown

Give a Hug

Oct 2, 2011

The author sounds like someone who went through EST, or Erhard Seminar Training. I did that back in the dark ages and I came away from it calling BS.

Sometimes things or situations are just hard. Calling it by another word does not make it any easier. It just is, what it is. Denial of the situation by sugar-coating it can often lead to more guilt and depression. One starts to feel guilty that they are unable to feel more positive like the obviously more highly evolved author of this article. :P

 
 

vstefans

Give a Hug

Oct 2, 2011

What causes caregivers to break down is usually not the attitude per se but the experience - the hard work, the sacrifice of so many other important things and people in your life, the lack of sleep, etc.,etc. which is often rewarded by getting figuratively kicked in the teeth by the person you are doing it for and constantly criticized by the others who could be helping. Sometimes the kick in the teeth becomes more literal and then it really may be time to call it quits. I can then turn around and tell myself a thousand times that I am not doing this for the rewards to me personally but for the love of the person I am caring for, and it may help a little; but attitude may not be enough to make a genuinely unbearable experience into a positive one. (On the other hand, some people's caregiving experiences are a lot more positive than all that, and a lot of those folks don't need to post on here as much.) I'll give you the nice version of a not-too-old saying: You can't make chicken salad out of chicken poop no matter how much mayo you add.

 
 

sierraseven

Give a Hug

Oct 11, 2011

I had much of the same reaction as all of you, so I did some reading about this author, and read more items she has written.

She's a "life coach" - and she did, indeed, follow Erhard. She has a blog where she posts much the same stuff as this - full of psycho-babble buzzwords. I looked up her book on Amazon, and the preview pages were enough to find out that while she claims a "decade-long caregiving experience", in reality her mother actually lived with her for only a short time - and was fairly "able" during that time - so the big problem was their prior difficult relationship. Her mother moved to assisted living, and the majority of her "decade of caregiving" consisted of visiting her mother there three times a week!

So, if you were thinking that all the BS she wrote sounded like somebody that never really had to live through the tough stuff - the 24/7 caregiving, the urine and feces on the bed and floor, the stove left on, the blaring TV, the day you had to quit the job you loved, and always and always the horrible, hollow feeling that your life will never have anything in it ever again but the endless needs of your parent - you're right, she never did.

She's just making money with her book and blog, spouting a bunch of vague platitudes. She has no real help to offer.

 
 

jeannegibbs

Give a Hug

Oct 11, 2011

Thanks, sierraseven. I am afraid that this kind of superficial treatment of a very deep subject does not reflect well on the AgingCare website.

 
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