Share
83
Print Email

Caregiver Secrets: What Caregivers Are Really Thinking

83 Comments

 Print

Email Email

 

Caregiver Confession #4: "Dad has no clue what I give up to do this. He thinks his care is routine."

This is a tricky one. As caregivers, we don't want to make the care receiver feel like he or she is a burden to you. The flip side of that, however, is that sometimes caregivers are so giving and cheerful all the time, that the care receiver completely loses sight of the fact that we give up a lot of our lives to be caregivers.

Also, some care receivers are not cognitively capable of even understanding the concept that the caregiver has other obligations. If you have a constant nagging thought that you are unappreciated, you may be in over your head. Getting some respite care may help. Once the care receiver understands that you need to have a break, he or she may be more appreciative. Either way, if you take a break, you will likely feel more refreshed and able to cope with the situation.

Caregiver Confession #5: "Everybody wants a piece of me – there's nothing of myself left for me."

Nearly every woman has had this feeling, whether it's a new mother with a baby demanding to be fed, changed and nurtured while the boss is sending her emails from work, or a caregiver of elders who still has children who are needy, or a mate who feels neglected.

In most cases, we get through this, but if it's ongoing, you may need a third party to help you decide what you can give and what others must do. Say you are the primary caregiver for your dad and your mother-in-law. Your spouse is whiny because he/she feels neglected. It may be time to say, "If you help me by picking up some of this extra caregiving, we'll have more time together." This won't always work, but some spouses just don't "get" the teamwork concept unless they are directly approached. If this doesn't work, look for some paid help. You need some time to yourself.

Caregiver Confession #6: "I can't even take a bath without someone needing me."

This is often a literal problem. If you like to relax by taking a half-hour break in the evening to relax in the tub – maybe with candles and music – but are routinely interrupted even during this sacred time for yourself – you are bound to feel some resentment. Expect to have this time interrupted on occasion, but if you never can take time to yourself, please look for some help. Even a Senior Companion from the Retired Senior Volunteer Program (RSVP), or a friend, may be able to sit with your loved one. If that isn't possible, it's time to look for a few hours of in-home help. Everyone needs some peace – even a caregiver.

Caregiver Confession #7: "Nothing I do pleases them – they are never happy."

See number two above. This behavior is often not about you. It's about them and their unhappiness over all of their losses. Do your best to detach from the criticism and get breaks when you can. Not taking criticism seriously is the best way to avoid resentment. Trying to understand why they are so critical can help (I'm not talking about historic family abuse here – just crabby, complaining behavior).

 
 

Comments

 
  •  Comments 1 to 10 of 83 
 
 

sammie

Give a Hug

Nov 11, 2010

I have been going through the same thing. My ex loves to dance .we went dancing the frist 3yrs. that we were togather.But now my body just won't holdup to go anymore.I just want to be by myself .And have a brake.With all I have to do for my ex is getting me down.I haven't even been able to take care of myself as I need to. I have had lower back surgury &neck and 3 shouder surgerys. I need A hip replacement,had to put it of so i can take care of my ex.Sometimes I just want to die to get out of it all.Then I think what i have always been tought You can't get forgiveness for selfmurder.So here I am doing the best I can do.

 
 

dgharris

Give a Hug

Dec 4, 2010

Oh my goodness....most of these thoughts just went through my head yesterday and the day before. I hate to say this but I am so glad I am not the only one who is going through this. I felt so alone and like such a bad person for having these thoughts but now I see that it is really a normal thing and that I am really ok. Thanks for sharing these with me and I will pass this on to my caregiver friends. Donna H

 
 

emily88

Give a Hug

Dec 4, 2010

My wife has MS and has totally lost her short term memory. I am 62 years old, healthy, alive and very lonely. I have all the emotions and feelings that have been listed above. But it is the loneliness and sense of entrapment that I feel the most. I have my responsibility to my wife that I will not walk away from, but I also have a responsibility to live my life as full as I can and would love to find companionship. I do not know how to go about doing this. Are their organizations for people who are in the same boat as I am? The loneliness is the worst part of this. Any thoughts?

 
 

kcandrick

Give a Hug

Dec 4, 2010

Since I have not lost my sense of humor YET, I really enjoyed this article. It's like those articles "If you suffer from seven or more of these symptoms, then see your doctor......" I am trying to cut "me time" out of my day and try to find the humor in the arguments and strange habits of my mother-in-law (a true horder) We gave up our home and my antique business to move 1400 miles after my father-in-law passed away, to move closer to her and ended upommoving in with herwhen we found she could not be left alone in her own home. She refused to leave it andher "stuff". Its been six months of cleaning and filling an ENTIRE 10X30 storage unit with enough stuff for us to move into her 15x20 back room with our two cats and 3 dogs. Our own possesions are in five more storage units. We've already spent over $30k fixing things in her house to even make it livable (new well, upgraded electrical system, renovated bathroom, etc.) We've wrestled over finances (hers were a mess with bill collector's calling daily) and she still gets bills and puts them only God knows where. She has congnitive losses and doesn't recognize a bag of cat food or kitty litter so had over 20 bags of each,all opened with one or two uses and still insisted she needed more, Her attitude was if I can't find the iron, I'll just go to Walmart and buy another. She was a flea market and Goodwill store Frequent Flyer....so the amount of "sweet" things she had accumulated was enough to fill several stores. Not to mention the over 1000 cookbooks (she dose not cook) and over 500 empty picture frames.

 
 

JoinCO

Give a Hug

Dec 4, 2010

We just moved my (hoarding) mother-in-law to our state, 710 miles from her home. She lived in the same apartment for over 40 YEARS, and didn't throw anything away. (How many empty margarine containers does a person need?!) Her husband passed away about six months ago, and we realized she could not live on her own. She is increasingly deaf and blind, and is not very mobile. We are getting her new glasses, hearing aids, and PT for the mobility issues. Today is unpacking day....Ack. My daughter and I will be trying to unpack her things, and dumping stuff when she is not looking! ;) I am being sensitive; I know what things are truly special to save (her mother's things, etc.), but really, the rags she calls washcloths are OUT. I am happy to replace anything that needs doing, but I do think this will be a challenging time in our lives. My husband was an only child, and she was very domineering. We have six children (2 in college, 4 at home), and we homeschool. I am used to being a caregiver, and my own mother is deceased. I am praying a lot for strength! Wishing you all well in your journey caring for your loved ones.

 
 

steins

Give a Hug

Dec 4, 2010

So many of my friends are coping and dealing with mothers in their nineties. Since we are in our sixties, it is hard to have the energy and patience for it. Plus, we see ourselves at that age looming right around the corner and it is so darn scary. My old college roommate told me last week that when she left her mother who is 99 years old after listening to all her complaints commented to her husband. "Dan, just take me right to Burger King where I can load up on carbs and fats so that I will not have a chance of living into my nineties." That is how I am feeling. At our age, we get our cancer treatments, try to watch our diets, exercise when we don't want to.....all to prolong our lives". If we manage to make it in to our nineties.....all we do is complain....."Why am I living so long??" Don't you think it is a joke and quite funny.

 
 

ChristinaW

Give a Hug

Dec 4, 2010

I have said a couple of these in the last 3 months. It is not necessary to be perfect, and it is human to express honest emotions. I would be afraid of someone who "pretended" to be a saint and sugary sweet! HaHa!
I am thankful that I have a weekend caregiver who comes in for 48 hours and I have 2 nights to sleep without hearing (on a very effective baby monitor) every breath, snore, moan, shaking of the guardrail, and every half hour from 3:30 am to 6 am, yelling, "I have to go to the bathroom. No one is paying any attention to me! I think it's against the law? I can't get out of here!" (Oh really? Duh!)
I know I give my Mother the BEST loving care I can, and am trying NOT to make sense of her behavior. Remembering this, one can learn to say, OH, WELL, and get on with ones day!
It is NOT going to last forever. I am so thankful to have found this site, with "People from my Planet"!!

 
 

ReallyTired

Give a Hug

Dec 4, 2010

It sure is a joke. On all us caregivers. I have promised my children that I will not do to them what my mother has done to me. I will be out of their lives for good as soon as they can be on their own so they don't have to feel the guilt, anger frustration etc. that I have been put through by her.

I am an only child. My husband walked out on us a few years ago and I have two teen age sons who now have their own problems because of all that has gone on here. Fianancially I am destroyed. Mom's SS and pension are supplementing my meager income (15 years out of the work force raising children will do that to your employability) but she is driving me over the edge and I realize that sharing a home is NOT working for me in any way. She can't live on her own so I moved her in with us thinking it would be best for all of us. NOT!!!!

I have all of the thoughts in this article. She is doing all the things everyone else is discussing. I am disgusted by her. And I can't help but wonder, "Why?" Why are we helping ourselves survive to these ages when there is nothing left in life but to torment those who come after us?

Hugs to everyone going through this. Cyber hugs are the only ones I get anymore anyway. I have no one who actually cares what happens to me so can't wait to be out of this situation and really by myself so I can get on with some sort of life.

 
 

agiver

Give a Hug

Dec 4, 2010

I have a well thought over question . Most Care Givers are either closely related, married,or somewhat in-separable to each other.Are the professional, trained and non- related Care Givers whom are hired and paid and go home afterwards as disheveled and sapped and strained as I am ? Yes , I am a Care-Giver and I Iove my wife-patient. Aren't there two different worlds there ?

 
 

maggiesue

Give a Hug

Dec 4, 2010

ReallyTired, I have often asked myself the question you raised: Why are we helping ourselves survive to these ages when there is nothing left in life but to torment those who come after us?

I don't get it. Life doesn't seem so prescious when someone is no longer a whole person.

Does anyone have an answer that doesn't have to do with "God's will"?

 
  •  Comments 1 to 10 of 83 

Add Your Comment









Caregiver Poll

*Please answer 4 quick questions in this poll* Question #1: Should physician-assisted suicide be legal?

Yes
No

Ask A Question

Get answers or advice from other
caregivers. Ask your question!

Follow AgingCare.com

NewsletterFacebookTwitterPinterestGoogle+
Sign up for our newsletter