Hospice and Palliative Care: Helping During End Stages of Life

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Many people think you need to wait until someone is at "death's door" before you call hospice. Nothing could be further from the truth. I have a friend whose 65-year-old father is dying from prostate cancer. He may live several months, yet, and he isn't in pain. Still, he needs nursing care for tubes that take care of body waste. He gets infections. He needs to be gradually worked into more heavy-duty care. He will eventually need pain management, and I have been encouraging her to call hospice and just talk with them. Just get started. She's reluctant. She's afraid she'll "jinx" him. What if he gets better?

Fantastic, I say! People have been known to go on and off hospice several times. That happened to the elderly mother of another friend. She went on hospice, improved and went off care, then back on – twice. Then, eventually, she peacefully died under their care.

Find a Hospice »

To find hospice or palliative care (managing pain for people in end-of-life circumstances) near you, you can go to the National Hospice and Palliative Care Organization site. On the site you can learn about end-of-life care, find professional resources and locate your local hospice and/or palliative care organization. In my area, Hospice of the Red River Valley provides the palliative care in a special unit at our major hospital, as well as in people's homes, assisted living or nursing homes. It's free to sign up on the Site, you can find hospice providers and get a great deal of help and support. Take it from this daughter, who loved her parents through very long goodbyes. I speak to hospice groups, with gratitude, thanking them for what they did for this caregiver, and her parents. No one needs to die in pain.


Elder care author, columnist and speaker Carol Bradley Bursack is an AgingCare.com contributing editor and moderator of the AgingCare.com community forum. Read her full biography

 
 

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JenJilks

Give a Hug

Jan 2, 2009

Great article, Carol. This is a huge issue.

I know that my father was in pain. In his case he sang, LOUDLY, when he was experiencing it. I had to fight long and hard, but fight I did - for more pain relief. I wish I had fought harder and sooner. My deepest regret.

I did figure out how to work through the Ontario health care system. It was not easy.

 
 

Thanks, Jen.

Fighting for pain relief is hard. I had to fight to get the doctor to put my dad on hospice care, even though the nursing home people knew he should be. The doctor said he slept, therefore he wasn't in pain! Nonsense. It was obvious that he was in pain.

As soon as he was under hospice care (with the help of a very tenacious nurse), he relaxed and was able to receive the love offered. His pain was abated. But it was a long fight.

We all have regrets. I regret I didn't touch more than I did. I had so much to "do" with so many people needing me. I should have slowed down and touched more. But I can't go back.

We can both share with others our triumphs and regrets. That's how we move forward.
Carol

 
 

kimisme

Give a Hug

Nov 4, 2009

i have been thinking that i would like to help people cross over. to give comfort & help them pass peacefully.
could this be a job.
i feel it would be very fullfilling to do this.

 
 

JenJilks

Give a Hug

Nov 4, 2009

There are a great many Hospice groups across the continent. They run (in Canada) on 30% taxpayer dollars, and depend upon donations. Volunteers are given mileage in return for their time and energy. There are various training programs, peculiar to each district or region. For example: http://www.nhpco.org/

All health care practitioners SHOULD be trained in end-of-life and geriatric care, but many are not required to have these specific qualifications.

 
 

Hospices have volunteers and hire people, so it could be a paying job. To be hired, you'd need some training. But it's a rewarding field for many.

Carol

 
 

charlene66

Give a Hug

Feb 17, 2010

I have been a hospice volunteer. It has been rewarding. Some family members don't want their loved ones to die alone, or there is no one, so when the time draws near some groups have volunteers rotate shifts to sit with the patients. I did this once, and it so happened she passed while I was there. It was an overall good experience and I would do it again. kimisme should look into volunteering or job shadowing if she feels call into this work.

 
 

pamela6148

Give a Hug

Mar 31, 2010

I have just come from my moms house. She got a letter from Hospice. Now I'm curious, she kept asking me to read it and I kept saying no because it was mixed in with a lot of paperwork and I didn't want to disturb it. I'll be ther 2morrow and will take a look at it. But I do have a question about this.

My mom is 90, she doesn't have cancer which is mostly associated with hospice, (or atleast I thought) so I'd like to know if possibly someone referred her, or someone phoned to have them contact her. The caregiver said they probably sent it due to her age, I don't know. But mom asked me if hospice deals with people who are dying. I said I believe they serve many purposes.

Can someone answer this question for me, how did they get in touch with my mom and has this ever happened to anyone else, hospice contacting you before you contacting them?

 
 

pamela6148

Give a Hug

Mar 31, 2010

I'm sure there is someone out there who can give me info on Hospice.

 
 

kimisme

Give a Hug

Mar 31, 2010

thank you for the responses. i just figured out that i had them. one step at a time & it will all work out.
peace to all
kim

 
 

pamela6148

Give a Hug

Mar 31, 2010

Can someone tell me who my mom ended up with a letter from Hospice. That's all I wanna know.

 
  •  Comments 1 to 10 of 16 

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