It's very easy to get overly protective of our elderly parents. We don't want to see our mom or dad fall. We certainly don't want Dad to get electrocuted or Mom to get burned lifting hot pans from the oven. But, what of their pleasure, their sense of self? When do we interfere?
My dad had brain surgery that threw him into severe dementia, which necessitated his move to a nursing home. In the first years after the surgery he would go through streaks of "getting in shape." This was a man who spent his life with his nose buried in books. Suddenly he wanted me to get him hand weights, which I did. If he was in a non-sleepy mood, he could sometimes be found sitting in his recliner lifting weights. This was great for him and the staff was pleased.
However, in the same mood, he would decide to race his wheeled walker up and down the hall of the nursing home. Rather than wait for help to get him balanced on his walker, he'd get himself up. Generally, he was okay. The staff would chuckle about the fact that Dad would come zooming out of his room and start racing his walker down the hall as though in a competition. The problem was, he had no judgment. There would be days when he was too sleepy or off balance to get up safely on his own. But he'd try anyway. And he'd fall. What to do?
All kinds of alarms and other options were tried, and he'd circumvent everything that made basic sense. Anything too restricting caused such psychic misery, we had to let go. We knew there would be falls, but we also knew that restraints weren't an option. Dad needed some freedom or his life, to him, wasn't worth living.
Often, people with Alzheimer's or other dementia will perk up if they have a task to do. Most adult day care centers have a variety of activities, and can determine from the person's past what they may like doing. Some women enjoy folding laundry. That's what they did when they kept house. They feel useful. Others like to bake. Some enjoy gardening. Good day care centers and nursing homes foster a sense of purpose for the people they are caring for. Home caregivers need to do the same.
Should the elderly father mentioned previously be made to give up his handyman ways? I'm certainly not close enough to the situation to say one way or the other. If he's doing things like Joe did, well, I'd try to persuade him to back off a bit. If he's trying to use power tools, you may have to so some creative "breaking" to stop him from cutting off his fingers. But I wouldn't stop it all-together, and I wouldn't step in too early.
My father-in-law always had a "shop" in the basement. For as long as he could, he'd drag himself down the stairs to his shop. He always loved to put cane seats in antique chairs, and that gave him a purpose for years. When he could no longer go to the basement to do this work, a little part of him died. Piece by piece, he lost his sense of purpose in life. I watched him fade away until the last stroke took him. I believe he was ready to go. His work was done.
Each person is different, but I think nearly all of us need to feel useful. We need a purpose. My personal belief is that people should be able to do as much as they can do, if they aren't going to hurt another person in the process. If there is some risk involved, then it should be discussed. Maybe some safeguards can be put in place or compromises made. But I'd be very, very careful about taking away hobbies or tasks that help people feel useful. They just might die because they feel no reason to live.
Elder care author, columnist and speaker Carol Bradley Bursack is an AgingCare.com contributing editor and moderator of the
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