How to Care for Someone Who Has Alzheimer's Disease

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Sadness, agitation, fear, pacing, rocking and mood changes that occur around sunset are known as Sundowner's Syndrome. To manage sundowning:

  • Establish a routine by trying to do the same things every evening at about the same time, so the person with Alzheimer's knows what to expect.

  • Create a Quiet Setting
    Prevent excessive noise and provide an area of privacy away from family activity and other distractions.

  • Structure Afternoon Activities
    Plan activities and entertainment later in the day to re-direct the person's anxiety. 

  • Use Distractions
    If you see agitation starting, try to re-direct the person's attention to a non-threatening object or person.

Sleep Problems

Sleep problems are another problem among people who have Alzheimer's disease.

For the exhausted caregiver, sleep can't come too soon. For many aging parents with Alzheimer's Disease or dementia, however, the approach of nighttime may be a difficult time. Getting the person to go to bed and stay there may require some advance planning.

  • Encourage exercise during the day and limit daytime napping, but make sure that the person gets adequate rest during the day because fatigue can increase the likelihood of late afternoon restlessness.
  • Try to schedule more physically demanding activities earlier in the day. For example, bathing could be earlier in the morning, or large family meals could be at midday.
  • Set a quiet, peaceful tone in the evening to encourage sleep. Keep the lights dim, eliminate loud noises, even play soothing music if the person seems to enjoy it.
  • Try to keep bedtime at a similar time each evening. Developing a bedtime routine may help.
  • Restrict access to caffeine late in the day.
  • Use night lights in the bedroom, hall, and bathroom if the darkness is frightening or disorienting.
 
This article is filed under: caring for alzheimer's disease
 
 

Comments

 
  •  Comments 1 to 10 of 19 
 
 

Loretta

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Apr 25, 2008

I am the caregiver for my aunt who has been diagnosed with alzheimers. Sometimes she can remember things from the past as if it were yesterday. All she does is complain about aches and pains. She refuses to use her walker and has fallen several times. I try to explain to her that she needs to use the walker or she may fall and break her leg or hip, she refuses to listen to my uncle or myself. She is always saying she can't give up, but she does nothing but create more work for me. I'm sorry for sounding off, but sometimes I think she does everything she can to get attention and contro everyone. She refuses to go to a senior citizen day care program. It's her way or no way. Any suggestions?

 
 

shadyldy131

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Apr 26, 2008

Loretta, i am the 24/7 caregiver for my mom, who is 90. she hasnt actually been diagnosed with alzheimers disease, but i feel that she does have it. She will start to tell me something and forget mid sentence what she is talking about. she has forgotten names of people who have lived down the street from her for 40 years.
She has 5 grandsons, she confuses each one with the other. And on top of all of this, she does the exact same thing as your aunt, in that she will not use the walker, although she is quite unsteady, says she doesnt need it. Yes, my mom does the same on control. and she is very hateful in her way of talking to me. She does not want to go to sr. citizens lunches or to church or anywhere, unless i go with her, and sometimes i dont need to go with her everywhere she goes. And, she cant go with me everywhere i go either. one more thing that she does that drives me out of my mind, is she goes thru drawers, takes everything out, puts it back in, maybe in the drawer below, then the next day, she will be changing it all again. This has been going on for months, it is all i can do to keep from screaming, STOP THE MADNESS. but i dont. no advice, just to let you know you are not alone in this problem.

 
 

brending62

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Apr 27, 2008

I also know the headaches and heartaches of being a primary caregiver (24/7). I however, have the luxury of having a wonderful friend who will come and sit with my Grandfather while I run errands. My mom said something that I try to keep in mind as much as possible. "He (my Grandfather) is still in the same body, but he doesn't behave the way you expect him to because he ISN'T THE SAME." I also have had difficulty with remembering that some of the things he does he doesn't do on purpose, he does them because his mind is gone. He has Alzheimers Disease and I believe that he is in the last stage. This is from my research on the subject.
Every night when I put him to bed, I tell him that I love him and he sometimes suprises me by responding that he loves me too, but those times are getting fewer and farther between because of the loss of speaking ability.
Being a caregiver is a totally mind bending responsibility and I never would have thought I could handle it, but I promised my Grandmother when she was dying that I would take care of Grandpa and no matter what it takes I will do it! Some days it takes everything!!!!

 
 

sbarlow

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May 14, 2008

I am changing my life soon. In 2 weeks my son who is 10 and I will be moving back to my hometown to live with my mom and step father. My mom has alzheimer's and is a diabetic, my step father has parkinsons. So I feel it is my duty to help take care of them. I am reading up on both of there diseases so I can be as much help as I can. I know it will be a challage for me, and I would love any advice, comments, or just anything that will help with this move.

 
 

shorty4631

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May 25, 2008

Myfather had parkinsons and I know exactly what you are facing. I prayed mine would not ever reach the point of not being able to talk or swallow but he did and it was extremely hard for allof us. He did end up in a nursing home as we could not sacrifice our mother for him, and we were not yet retired at that point and could not take care of him daily. Mom did visit him every single day in the nurisng home and my sister and I went to see him at least each of us once a week and on the weekend. He had reached the point where he fell easily and had a difficult time speaking when he went tothe nursing home. It took two nurses to get him to the bathroom. There are special chairs to raise them up and to a walking position which social security can help to pay for and special spoons or forks for them to use to eat as they have a difficult time handling the forks and spoons. They have difficulty chewing and swallowing so they eat slowly. We avoided a nursing home as long as we could but as I said reached the point where we had no choice. It takes a lot of patience and love. I wish you the very best. JR

 
 

Donlyn

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Jun 5, 2008

I moved my 74 year old mother in with my daughter and I in January 2008. She has early alzheimer's, and is unable to walk. i am a nurse and i work full-time while my daughter attends college and works part-time. i prayed to God to let me be able to take care of my mother and he answered my prayer. i can say that it is not easy but my faith in God has gave me so much patience with caring for my mother. My mother also has a sitter that works 5 days a week so that i can continue to work and i also have a part-time sitter that works on Sundays and fills in for my mother's full-time sitter when she can't come to work. My daughter is 18 years old, but she is a lot of help. She stays with my mom to let me have a breather and run errands. She tells me all the time that this experience with her grandmother makes her patient and appreciate of life itself. My father is in the nursing home due to dementia and has recently been diagnosed with prostate cancer. he is able to walk, and is doing great and i pray that i can go and get him on week-ends to spend time with my mother. I can say that my faith in God has enabled me to handle this great task of being a caregiver. I can only share my hope, strength and love for God and pray for caregivers everywhere and to remember that you never know how your health will be at any given time.

 
 

juditin6

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Jun 6, 2008

I too am a caregiver for a sweet lady whom has alzheimers. I have been taking care of her for 3 years. Sometimes when I feel down I just need to think of how much happiness I have given this woman. Yes it does get a little frustrating to listen to stories at least a hundred times. But I listen like I have never heard them before. Sometimes I wonder where I will be in the future. None of us know how are health will be down the line.

 
 

anmng

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Jun 16, 2008

Just wondering if there is a correlation of memory loss and urinary urgency. My 93 year old mother lives at at nursing home and they report that she gets up over 10 times a night, apparently, with no need to it.

She does not remember how many times she goes and it would make sense to me that if she does not remember having alredy gone, she would try to get up again even if she does not need too.

Appreciate any feedback.

 
 

heavyload

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Jun 17, 2008

anmng,

Have they checked your mother for a urinary tract infection? This will certainly cause urinary urgency and frequency. Having worked in long term care these are not all the uncommon.

 
 

sandy89

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Oct 13, 2008

I am the caregiver for my 94 year old grandmother she has alsheimers and is now bed ridden because it seems she has forgotten how to walk and talk at times I work fulltime and go to school parttime and I am a mother and a wife I am really stressed out right now because she seems to be having a really bad day I see her slip away a little more everyday Today she does not remeber that she lives with me and my family I have explained it to her over and over but she still insist that she does not live her it is very hard because she also risied me most of my life and my real mother pasted away two years ago I know i have other family but I feel like I am losing everything

Sandy

 
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