Mom has Dementia. She Doesn't Sleep and Calls for Help. I Need Sleep. Help!

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Q: Mom has dementia and never sleeps. As soon as she lies down, she calls for help. What can I do? I need some sleep, too!

A: Sleep disorders are common among people with dementia, especially when awareness of time and time of day deteriorate. As the rest of the household beds down, there are fewer cues and reminders about what's going on and what to do next, which can be quite anxiety-provoking to a confused person.

In the search for reassuring stimulation, people with dementia may get up and start wandering around and head for the door (sometimes with suitcase in hand). The behavior can be difficult to change, and results in many prescriptions for sleeping pills—which often lead to other problems.

Before taking that step, it's worth trying some classic "sleep hygiene" measures. Make sure your mother gets adequate exercise during the day to ensure that she'll be tired by bedtime. To the degree possible, urge your mother to avoid sleeping during the day. Avoid heavy meals or caffeine use for several hours before bedtime. Ditto for emotionally charged discussions or upsetting television shows.

Try to establish going-to-bed routines (a set bedtime, with a ritual of undressing, washing up, etc.) and stick to them as best you can.

Despite our best efforts, however, sometimes nothing works. Many nursing homes address the issue with "night owl" services—staff members are available to assist the restless resident to a tranquil spot, and provide a cup of tea and a little quiet conversation or music to keep them occupied before suggesting that they return to bed.


Dr. Mary A. Languirand, PhD is a clinical psychologist who co-authored "When Someone You Love Needs Nursing Home, Assisted Living, or In-Home Care." Read her full biography

 
 

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  •  Comments 1 to 10 of 11 
 
 

ROSEHOOKS47

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Aug 17, 2011

My Father had Dementia sadly he passed 4 months ago. I went through several Months of watching him not being able to sleep as well as myself being that I was the Primary Caregiver and on top of it all I had to work daily. I tried everthing possible to try and help my Father sleep at night from doing the exercise routine, keeping him up during the day and not allowing him to go to bed until 9 PM everynight. Still nothing worked he would still get right back up at 10, 12, and 1 AM. The Doctor advised me to give him nightly an ibuprofen and a benadryl please none of that worked.

 
 

christina28

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Aug 17, 2011

My condolences, Rose. It seems that one of the many disturbances in a person with dementia is the 'clock' that goes haywire. Each night I hope will be one of sleep, but 3-4 nights a week it is not. This is even with meds, but no sleeping aids. Doing this in our home for over a year now has shown me that you can depend on nothing to be the same on any given day or night; not attitude, ability to walk, talk, or sleep. One can usually depend on chaos and stress. Seeing my Mother with dementia has confirmed to me that random everything certainly occurs in the brain as it is burning out. That is the only thing that we can count on with Mother: Chaos and random behaviors. Sleep, or no sleep.

 
 

shelbytrace

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Nov 16, 2011

My experience with my mother having dementia has been interesting, I have three other siblings and the person I expected to step up and help out didn't. My youngest sister has been a true Godsend. I had been going weeks without sleeping because my mom has her time of day confused, sleeping during he day and awake at night.
I got so sick and tired of answering the same question, how is "mom" doing. If you really want to know how mom is doing come see her. No matter how many times I would say not good the question would be the same, what is she doing.
I finally got to the point where I no longer gave blow by blow details of what mom was/ is doing. They just didnt get it, until my yonger sister kept mom for a weekend to give me a break.
My younger sister understands now what living with mom is like, the erratic behavior, the constant waiting up with things packed because she believes that someone is coming to get her.
Mom has Lewy bodies dementia so she hallucinates, and has constant conversations with people that only she can see.
I am angry with my other siblings because I had to put together a schedule for them to get them to show up and help out with their own mother and give me time to go to work or to get a few hours away to go grocery shopping or just get time to myself.

This is an UGLY desease, if your parent was difficult a difficult person growing up, it's a crap shoot how they will be if they get dementia.

 
 

tltimme

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Nov 16, 2011

Am there right now so I totally understand. My mom's neurologist suggested Melatonin prior to bed. It is a natural supplement as I didn't want anytype of sleeping pills.

 
 

shelbytrace

Give a Hug

Nov 16, 2011

I did consider Melatonin, for the same reason, unfortunately my mom has become very suspious and believe that I'm trying to kill her so she will not eat or take anything from me.

 
 

tltimme

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Nov 16, 2011

I feel so bad for you Shelby, my mom luckily trusts me. However, getting her to take her regular medicine is sometimes a battle as she doesn't think she needs it. Is there any way you could have a person come in several nights a week just to care for her? I know I just went through a week long period were mom wouldn't sleep and was extremely confused, turns out she had a UTI. After a course of antibotics she is better.

 
 

rebecca139

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Nov 16, 2011

We are using melatonin and it seems to work. My dad still trusts me most of the time and it helps that he has always taken evening meds. I got a prescription for sleeping meds from his doctor but am reluctant to use them till We absolutely need them he has not done well on central nervous system depressants in the past. A few weeks ago he had 5 or six nights with little sleep on my work nights thats when I asked for the script. It's so hard sometimes tryying not to take the next step because I know it adds to his decline. I know I have to take care of myself first, it's not always an easy choice.

 
 

shelbytrace

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Nov 16, 2011

Tititmme~ it's funny you should mention the UTI, she had oneand prior to hav ing it diagonised she was acting really bizarre, that when I found out that UTI's have that affect on the elderly. My mom is the most stubborn person, she does not like to talke medicine, if she is prescribed it, she won't take it. It was fortunate that the UTI got addresses because she agreed to go to the hospital, and once she got there she had a fever, not sure if that was from the UTI or touch of pnuemonia.

Rebecca your lucky that your dad will take his meds, sometimes that hald the battle. Thanks for sharing with me both of you, it lets me know that I'm not trying to figure this out on my own, anf that helps!

 
 

CarolF

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Nov 16, 2011

My husband, Bruce, would like to tell you his experience:
My name is Bruce Flett, I suffered from dementia. I was diagnost with cognitive skills of 11 out of 30. My wife saw on facebook a youtube post about Dr. Mary Newport and how she treated her husband Steve. He had Alzheimer's, his cognitive skills were 14 out of 30. She gave him Coconut Oil because it is high in medimin chain trygliserides which the liver can process and make Keytones. With dementia the neurons in your brain can't burn of glucose which norminally feeds it. The Keytones produced from MCT's provides an alternate source for the neurons in your brain. About 47% of dementia sufferers are dramatically improved. In Steve Newports case he went 14/30 in about 3 hours. In my case in 3 hours I was again speaking in complete sentences. My Doctor had me retested after beinging on Coconut Oil for one week, my cognitive skills were 24/30 and have continue to improve since then. I have been well for 11 months and counting. Go to YouTube.com/GrandmaCarolFlett you'll find videos of me and Dr. Mary Newport. If you can't find us search on YouTube dementia, coconut oil. Try it may help your Mom and give the relief you are seeking.

 
 

CarolF

Give a Hug

Nov 16, 2011

Sorry, the last comment was written too fast and has lots of mistakes. Hope you can still read it. The sentence about Steve Newport should read "he went up to 18/30".

 
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