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The nursing home keeps calling me and telling me my mom doesn't have much time left, she is on Hospice and Hospice has been seeing her daily, but they don't stay long. Yesterday my mom was lethargic all day, she is barley eating, says she doesn't like anything, usually just eats a few bits and that's it. She wants to come home because she said she liked what I cooked for her better than what she gets in the nursing home and she thinks she could walk better at home, but then yesterday she could barely take any steps and it took 2 people to get her out of bed and in her wheelchair. Today, she's a little better, not much, but she keeps having ups and downs.


I've been unable to find a job locally, so I've had to take a job 50 miles from here for $15/hr. I'm just going to have to do that until I can get something else. They call me when I'm out-of-town and tell me I need to return immediately. My mom couldn't hardly open her eyes, didn't even know I was there and the nurse says "I thought you would have got here sooner after we called".


I can't just keep my employer waiting while I'm afraid she is going to die while I'm gone. I need to start making money somehow. Would I be wrong for not answering their calls and running back everytime they call?


I go to visit when I can, but I can't just stay there with her because she might hang on for days, weeks or even months.

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Yes she may hang on that long,, we all hear stories of pts living for months and years on hospice. My mother passed on hospice at home,, I was lucky to be a long term employee with FMLA for my mom,, not something you can get as a new employee at most places. I would have sworn my mom was going to be dead in a few hours,,, it took 5 days of her actively passing,,, and she still managed to actually pass when I went into the kitchen to get some soup,, I kid you not! They pick their own time.. and you have to have some income to continue on. So do the best you can,, and leave the guilt at the door! Let the NH know you work an hour or more away,, and will do the best you can
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Tell the NH to contact you if your mother asks for you, and then to do it by assisting her with making a phone call. If your mother really needs you there *right now* you'll be able to tell. If not, let the phone call make do until your next planned visit.

You're going to have to be pretty hard-nosed about it, I'm afraid - the NH's attitude seems to be what sort of person doesn't listen when the NH tells them their mother's about to die? - but I'm not sure what they're trying to do to you. When they call and tell you she doesn't have much time left (I think that's a *terrible* thing to say to a family member, unless things are clearly imminent), what exactly are they expecting to happen?

Your only other option is to ask your new employer to defer your start date. Jewish, Gentile or any other shade of human being, I'd expect any employer you'd actually be happy to work for to show understanding of your incredibly difficult circumstances.
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To those who commented on working vs. taking off time for a job, there are a lot of factors that haven't been addressed, but just hinted at, one of which addresses the level of employment, which for many people, is not such that time off would easily be granted.

However, I stand by my position that my family is always more important than a job.   I can always get another job, but not another family.    However, I respect that some people don't feel this way, and that's their prerogative.

And I'd like to also suggest consideration of working for Jewish employers.  Two of the Jewish law firms for which I worked were far more understanding than any of the Gentile firms.   I was even told to "take as much time as you need."

I hope that each of you finds a workable, and morally acceptable solution to these kinds of dilemmas.
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Actually, who is calling you? The facility's nurse or the Hospice Nurse?

If the facility nurse, I would talk to the Hospice Nurse. Tell her the stress ur under with having a new job, a long commute then the Nurses calling constantly where u feel you must get there and then find Mom is OK. Ask her if her visits everyday are because Mom is actively dying or because the Facility Nurses are calling her in. Either way, you may ask if calls can be thru the Hospice Nurse only in reference to Moms passing.

Hospice is as much for the family as the person on Hospice. And that Nurse who made the comment about how long it took, I would have made her aware that it takes u an hour or more to get there.
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My Mom was on Hospice a week when she passed. A week before that she had closed her eyes and refused to get out of bed. My nephew and I visited, said goodbye and left. She was pronounced 20 min later.

What I am saying is that Mom could die on your way there. You could sit there for hours, and she would die 5 min after u left. Compromise maybe you visit Mom every night after work. (I really think its kind of dangerous to drive an hour, at least, under that stress) Explain to the Nursing staff that u appreciate the calls but ur 50. To please only call if Mom has passed because you doubt with an hours ride u could get there in time.

What happens after she passes is the Funeral Home picks her up. You can then view her there after they get her ready.
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I think you should always take calls from the nursing home just to be informed. But I don’t think you have to necessarily drop everything because mom might die soon. Care facilities and hospice are usually very good at trying to let people know when death is near and I agree that they should.

It seems it’s instinctive for most people to want to be present at the very moment a love one dies but it’s very hard to predict. I had a12 hour drive to see my mom when she was dying. I got there a half hour after she died. My dad was near me, I was notified by hospice that he was “actively dying” . I did a bedside vigil for most of 2 days but he died at 6am while I was home asleep.

Neither of my parents would have been aware of my presence at the time of their death. I think being there at the moment of death is more for the living. And I tried but just wasn’t to be. I don’t fell guilty.

We do the best we can as our circumstances permit.
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It seems to me from the OP's comments that although their mother is eligible for Hospice she doesn't appear to be imminently dying so IMO the comments from some posters that family is more important than employment are just adding a level of guilt to an already difficult situation.
Even when my mom was actively dying I wasn't getting multiple calls from the NH, I got one asking for a decision on whether to transport to hospital and the second when the nurse noticed mottling (a sign that time was very limited), even then she lasted another several hours. It sounds to me as though somebody at the NH is going overboard and there needs to be a clear boundary established about when to it is appropriate to call.
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Why not try to work out a compromise?  You call them in the am, or at lunch, or in the evening, but if there's an emergency or your mother passes, they'll call you.

Personally, I totally agree with FunkyGrandma.   My parents and relatives are far more important to me than my employment; I could always get another job, although I realize that this new job is important to you and shouldn't be jeopardized.   

Are your employers aware of your mother's delicate condition?
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Nursing homes typically don't call family members unless it's something very important about their loved one. And the fact that your mom is dying, is of utmost importance. Unless there is more to the story that you've not shared with us, I would think that you would want to be with your mom every moment you can, knowing that the end is near. If your job doesn't understand that, well you probably shouldn't be working for them anyway.
I can only imagine that you would be devastated if you ignored a call from moms nursing home, and then later found out she died, and you weren't there.
Perhaps it might be best that you request some time off, so you can be at moms side during her transition. If this job doesn't understand what you're going through, shame on them, and you shouldn't be working for such an uncaring company.
Your mom should be your number one priority right now. And you should be trusting what hospice and the nursing home say about your mom, as they deal with death on a regular basis. Praying that God will give you wisdom and discernment in this situation, and please make sure that you're leaving nothing left unsaid with your mom.
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notgoodenough Jul 2021
While I appreciate your sentiments, not very many people have the option to just "leave" their jobs; and I don't know of very many jobs that will let you take off indefinitely because you have an ill family member who "may be" dying. Certainly, mine would not have let me just not show up to work days on end without some sort of disciplinary actions. When you're hired by someone, it's because they need you to do a job; and while there should be some understanding, they can't hold the position indefinitely while you wait for your loved one to pass on. Nor should they be expected to.

The OP has posted here numerous times about her finances, and needing a job, and the lack of available, viable employment in the past; it's not really fair to give her advice to just up and leave the first employment she's been able to find because her mom's in decline.
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I agree with cwillie's comments, you contact them instead of receiving daily calls. I was called at 3 AM by my wife's hospice nurse saying my wife was having apnea periods of 45+ seconds and thought death was near. Myself, son, daughter and g'daughter immediately left for the facility. My wife had been in a coma for about a week already. Hoping she could hear, we all said our goodbyes, and after 13 hrs we finally decided to leave. Her breathing had actually improved!

As it turned out my wife died about a week later at 10:25 AM on that Sunday morning while I was at church. I wasn't with her but I was OK with that, knowing I had said goodbye, expressed my love and that her tribulations were over. Death comes when it is inconvenient for the family. So when you do visit her, hold her hand and remind her of your love for her.
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I'm sure the reason they call as often as they do and are as insistent as they are is to avoid the "You didn't tell me how bad things were, and because of that I wasn't here when my LO drew their final breath" drama, which I have no doubt happens often.

I don't know that ignoring the phone calls is the right thing to do necessarily; you want the NH to be partners WITH you in caring for your mom, and if you repeatedly ignore the calls, they might stop calling. I would have a frank heart-to-heart talk with them; explain that you just started this job which you need to support yourself, and you can't risk losing it at this point by missing too much work. Make it very clear to them that you won't blame them if you choose to not come back and mom passes while you're not there; and then follow through with that promise and don't blame them - or YOURSELF!! - if it happens that way.

Hard as it may be to accept, your mom has come to the end of her journey, but you have much living ahead of you to do, and in order to do that, you need to have a job wherein you can support yourself. Your mom is being looked after; that's why you opted for NH care in the first place. So trust them to take care of her and go to work knowing you're doing the best you can for her.

And just as a point of information, neither of my sisters were here at the moment our mom passed on. It doesn't make me doubt their love for her, nor their grief at her passing. They simply had jobs and other obligations that they had to attend to. They had both come and said their good-byes, but none of us saw any need to a full family bedside vigil. If you can live with your decision to stay at work - which is not a wrong decision, BTW - then be at peace.
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It's kind of like the boy crying wolf, if you ignore the calls are you OK with missing the opportunity to be with her at the end? Make it clear that you will check in daily and that they must stop calling unless they see signs that death is imminent - believe me they usually know.
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