Follow
Share

It’s only been 6 weeks, but I am always full of nerves & dread (& guilt) as I head over to see my mother in MC. It’s a horrible feeling. I’m not sure if it’s because she blames me for her being there, that I sometimes find her in rough shape - angry, miserable & terrified, or just the uneasy feeling of not knowing what to expect and not being able to control it.
Her diagnosis is brutal; late onset bvFTD. I didn’t ever imagine it would be this hard. I guess I had a “rose colored glasses” belief that she would - in the end - have memory loss, but be fairly pleasant & content while living her last days with me - and I would hold her hand in her own bed when she passed.

This question has been closed for answers. Ask a New Question.
Find Care & Housing
None of us who has ever placed a loved one in a facility has ever done cartwheels and backflips of pure joy down the middle of the street. It’s damned hard. This person whom you love and has always cared for you is now living in the Twilight Zone, acting like a two-year-old and blaming you for everything that’s ever gone wrong in her life. I know. I was there. To make matters worse, my mother, always the World’s Greatest Prude, became obsessed with sex. And, in her babbling, a few skeletons fell out of the family closet that I sure would have chosen to not ever know.

Six weeks is not long enough for either of you to deal with this Life Change. It took me months. One thing that helped me was staying in contact with her nurse. I got the true picture of her behavior from the nurses and aides. They told me she was doing well. They told me not to visit every day. That made things worse for both of us, they said.

If, after a few more months, you find yourself still on the verge of a breakdown when you go to visit, speak with the social worker at the facility. You can be referred to a therapist who can help you deal. Good luck and sending many hugs.
Helpful Answer (4)
Report
NanatoRandS Mar 2020
Ahmijoy - the sex thing came right out of the blue. It was quite alarming, since my mother was also a prudish woman. From everyone is trying to rape her (men & women), to her sister having sex with her husband - molesting my brother as a small child, etc. etc. It’s so hard to listen to - all the diverting in the world does not last long. None of it is true, from what I can determine. But it is very true to her. Her 92 year old sister who lives out of state keeps asking my cousins about her & wants to call her. (She also has some memory issues, but not as severe as my mom’s - but she does forget from day to day that she hasn’t spoken to her.) My mother refuses to speak to her, says she hates her.

i didn’t visit for the first week, then with the guidance of the staff - I visit 3-4 times per week, unless they tell me she’s being a little more agitated after I leave, then I skip a few days. It doesn’t seem to matter, she either thinks we haven’t been there for weeks, or she thinks we were just there.

I do think the staff likes me there - When I walk in I say hello to everyone, and they (other residents) seem to respond well to me. My Mom is & always has been very anti social. She’s become more & more paranoid. Doesn’t trust anyone, although I have seen this past week that there are two people she actually calls her friends! Progress I hope!!??

thank-you for your Encouraging words - it really helps to know I’m not alone, and others have successfully navigated thru this! ❤️
(0)
Report
Your question about being sick to your stomach really hit me. I visited my mom at her NH almost every day for about 4 hours the 2.5 years she was there. From the time I woke up to the time I walked in her door I was a mess. I lived on Tums and Pepto. If I could have had a beer in the parking lot before I went in, I probably would have, ha. I was never a very religious person but I knew that i needed more strength than I had. I found that saying a little prayer in my car really helped me. I prayed for Mom to be healthy and happy, but the strength to deal with whatever I found that day with love, and compassion and patience and kindness. And I prayed for all the nurses and aides for their strength to deal with all the residents with love and compassion and patience and kindness. Then I took a deep breath, stuck a smile on my face, was cheery with all the aides and residents I passed and went in to her room. Somehow it got me through it. I know how tough this is, but just that quiet minute in the car really helped me.
Helpful Answer (4)
Report

I myself have found that it takes about a year to adapt and adjust to placement of a loved one. At first it is terribly depressing. I would say for 6 months, if my own case is any guide, it is difficult to imagine ever being happy or "normal" again. Slowly, after that, real life leaks back in with it's "some good days and some bad days". Be easy on yourself. Your feelings are normal. There is nothing good in all this, and it is hard to adjust to. You will slowly learn to let go of "Ms. Fix-it" and when there is an acceptance of limitations it becomes easier to maneuver.
Helpful Answer (3)
Report

My mother is 93 and has been in the Memory Care part of the ALF since May (in the regular ALF since 2014). Every time my husband & I go visit, it just seems to get harder instead of easier, truthfully. I never really had an idea of how 'the end of life' experience would be with my mother, I just knew it would be difficult, with her living to to a very, very old age and never going down without a big, hard, ugly fight. The dementia & all its ugliness I never banked on. Every time I see her or talk to her (weekly visits, daily phone calls) she seems to have another issue. Another problem. Another side effect to a medication. Another complaint. Another problem. More drama. And very ugly stories to repeat to me about other people, but mostly my father who she didn't much like and who passed 5 years ago. UGH, I hate it......all of it. Every minute of the dreaded visits, the dreaded 'conversations', the not knowing what vile words she will spew or how badly I'll feel afterward. All of it. I literally make the sign of the cross before I go into the place and before I pick up the phone to call her every evening, truly.

I feel your pain. I wish it would get easier for both of us, but I don't foresee that being a reality. All I CAN tell you is please don't feel guilty. We're doing the best we can given the circumstances. Many daughters would have stopped visiting and calling by now, considering the criteria we're dealing with. We haven't given up; we keep coming back. Some families drop their mother's off in an ALF with a piece of luggage, never to be seen or heard from again. When my mother was in rehab, the nurse told me the woman across the hall was screaming in pain 24/7 because her POA wouldn't even answer the telephone to authorize hospice comfort care for her dying mother. So the woman would die alone and in excruciating pain.

Don't feel guilt. I don't. It's not warranted.

Wishing you the best of luck, my friend
Helpful Answer (3)
Report

This is a horrible desease and there is no romantic side to it. I hated watching my Mom go down hill. And when she had her paranoid moments, it was me she blamed. Because, I was there and always was there. Yes it hurts even though u realize its not her talking. She went from being my Mom to a child who needed everything done for her.

Yes, TV always showed the "seniale" person sitting in there rocking chair staring at the wall unresponsive and humming to themselves. But as we know, Dementia does not work this way.

How many times do you visit? Maybe you could cut back. Mom needs to adjust and you visiting may cause her some anxiety. Maybe she needs some medication for her anxiety. Its really hard. She eventually will adjust it will become her norm. She needs this now. She is beyond what u can do for her. She is safe and being cared for.
Helpful Answer (2)
Report

My moms dear friend, and one of my best friends was diagnosed with cancer in July 2017, and died by September,2017. The last time I saw her ( a day before she died), she asked me. “How is your mom , hun,”. ? I said the same. She said, “ At least I know what’s wrong with me” . The tv was on , I asked her if she was watching young and restless ? She said , no, bold and beautiful. A few minutes before she died, She asked her nurse, “ how long is this going to take “? By complete contrast, my mother with Alzheimer’s just continues. Oblivious to so much. My long drawn out point is, that I placed my mother in memory care in July , 2019. She has adjusted. I fall to pieces every time I go to visit. I went to counseling, was diagnosed with classic anxiety, The therapist told me to reshape my thoughts. That I did the best I could , for as long as I could. My mother needs full time care, provided by 3 shifts of nurses and other professionals . None of this easy, Just know you did every thing you could . I’m working on guilt too. But realistically, I made the best choice for my mother and my family
Helpful Answer (2)
Report

Nana, prayer before going in is helpful.

I made a point to be in control of the visit. Meaning, I brought something for us to do. I made sure that I brought treats that could be shared from my dad to others, I participated in activities with him and I left if he got nasty.

Sometimes I would cut his hair, do his fingernails and eyebrows. Sometimes I would push him around the facility, inside and out.

With my granny I would share a coke and play catch with a stuffed animal. I would help her change her babies outfit and of course make a big fuss how beautiful the baby was and how big she was getting and what a good baby. She was a beautiful spirit and had a playful manner until she died. She was so easy compared to others.

I recommend that you find things to share with her, no matter how simple they need to be. Be as matter of fact and positive as you can be. Fake it until you make it. It does get easier.

Set boundaries and enforce them. If she is grouchy, cranky or mean and nasty it is a short visit. If it is a pleasant visit then you spend some time.

She is where she can get the care she needs, your part is about enriching her life and advocating for her. Be kind to yourself and know that you have and are doing the best you can for her.
Helpful Answer (2)
Report

I gained guardianship of my father so I could place him in MC. He was very angry with me and the first few months after placement were particularly difficult. I limited my visits to once per week for no more than 2 hours. If at any time Dad got angry and started a rant, I simplely said "Dad, it's not good for you to be so upset, I will see you again next week, Good bye." and walked out the door. Dad's dementia meant he had little control over himself, but that does not mean I had to listen to it.

Things did get easier. I started taking Dad a favorite snack and he would usually remain pleasant at least until he finished eating it, which gave me time to see if he needed anything (socks, lotion, etc). Dad was still pretty good at checkers, so I would try to get a game started as he finished his snack. I would bring an old photo of the town published in the local newspaper or on Facebook and ask some question to get him started. "Is that how you remember the Sears building?" and he could talk for an hour. Dad and I had enjoyed singing when I was a child so I brought a song book and we started singing again. He really liked the attention when other residents started coming to his door and we started going out into the common room for the singing. When Dad couldn't sing anymore, I still took him into the common room and sang for the residents.

Dementia changes our LOs but often it leaves small pieces of them around and buried somewhere in the middle of the confusion. You can never have the relationship/interactions back you enjoyed from their pre-dementia lives; however, you can still find some things to mutually enjoy or tolerate for at least a few minutes. For me, going back to my childhood and the simple things we did then helped. Because long term memory lasts longer than short term, getting my parents talking about things and people they knew years ago worked well; they could function better and I found some new and interesting stories.

Even if you find some way of connecting with your mother, there will always be sadness when leaving the facility. I could endure the pain for a weekly visit, but not more. It's a little like a weekly period grieving for the death of your LO's capabilities. But at least for me it did get better and I came to a point where I didn't dread the visits anymore. It's hard to believe but after Dad's death I was both relieved these visits came to an end and missed them at the same time.
Helpful Answer (2)
Report

NanatoRandS, it is normal to second guess when we place a love one into senior living. You need to keep telling yourself you did the right thing. You are not a village but one person who was trying to care for a person who need so much help. Thus, your stomach is trying to tell you to stop kicking yourself.

Usually the Memory Care facility would recommend not visiting your Mom for about 4 weeks so that she can settle in. Yes, it is quite an adjustment for her, and for you. It could take several months or more before your Mom gets into a routine. And yes, your Mom will continue to blame you and will insist you take her home.

If you had children, compare this to leaving your child off for the first day of school or at college out of town. You probably didn't yell FREEDOM and enjoyed the day, but fretted on how your child was doing, was he/she scared, was he/she missing you, was he/she making new friends, etc.
Helpful Answer (1)
Report

To trick yourself into this, try mindfulness.

I am getting into my car. The door sounds solid. My keys are heavy. The car smells of [something nice, I hope!]. The road is dry. The music on the radio is a song I know. Until half past seven, I will be in my car driving along this route and I will see x y z.

Once parked and walking to the building, remind yourself that you are still taking one step at a time. That you are there to cope with what the day presents, and to give your mother what support you can. But that if what she needs goes beyond your ability, you will give her words and a gesture of love and then be free to turn and walk out and leave her in safe hands. The next visit will be a new opportunity to try again.

That is a brutal diagnosis. Be extra kind to yourself whenever you catch yourself thinking it's your fault you can't put everything right.
Helpful Answer (1)
Report
NanatoRandS Mar 2020
Thank-you Countrymouse.
This helped me a great deal.
Mindfulness.
(1)
Report
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter