My Mom has a UTI. The doctors recommended making her comfortable rather than treating the UTI. My sister and brother made the decision to make her comfortable. I don't understand. A UTI is treatable with antibiotics. Mom's UTI's symptoms showed up in her mental abilities. She would get confused and disoriented. She is 92 and I get that she's old (for lack of a better word) and she has dementia on top of the UTI and my father passed 5 months ago (they were very closed and married for 68 years). But why does putting her on hospice feel like we are playing God? I feel so dam guilty. This would has the greatest amount of feeling for anyone in pain and I keep thinking, what if that was me and she was the one calling the shots...I know in my heart she would not give up on me even if I werent her daughter. The guilt is eating me alive! I love and respect this woman so dam deeply!!!
In my opinion, "playing God" is when we decide to take heroic medical measures to KEEP a person alive. Not when we allow nature to take its course. Regardless though, God WILL take your mother when He is ready, despite antibiotics or hospice care to keep her comfortable.
Hospice doesn't kill people. Time and old age does.
Best of luck accepting the outcome of your mom's situation here. Without guilt, since it's all out of your hands. My father's UTI never did clear up, even with antibiotics. He passed 19 days later. It was his time to go.
So, we decided to stop the antibiotics and let nature take its course. She was much more comfortable and relaxed. She passed on that October 31st. If she had been a young woman, things probably would have been different. But Mom was tired of living in pain, with spinal stenosis, arthritis, and high blood pressure, along with the dementia. She was tired of not being able to do the things she loved. Her siblings were all gone, her husband of 50 years was gone, and two of her 4 children were gone. She was ready to just go to sleep and not awaken until she hears Jesus' voice call her. (John 15:28) If I regret anything, it was ever starting that antibiotic treatment. When I went back and looked into Medical Directive, she had once again stated that she did not want any IVs to keep her alive. There was not going to ever be a good outcome, so we unintentionally dragged on the course she was going through. I thought maybe hearing the thoughts of someone who had the flipside of your situation might give you some thoughts upon which to ponder. May you find peace.
As to "playing God" I don't happen to believe in God, but were I to do so it would be a belief in a god that has made us to be born and to die. Your mother is currently in the latter stage of life. She IS dying. With or without God, and with or without Hospice, your mother is likely in the opinion of her doctors to die within the next six months. It is not "playing god" to provide comfort to the dying. Neither is it playing god to provide antibiotics if the patient wishes to have them, or if the POA designated believe that's appropriate.
What seems the case here--correct me if wrong--is that the POA and medical team have made what they believe to be the right decision. If there is pain, trust that Hospice will address that; comfort care is their prime imperative.
As to guilt, you did not cause the fact that WE ALL DIE, nor can you FIX it. So guilt isn't appropriate. What you feel is GRIEF, and perhaps some anger that you are not in charge at this time, the choice is not yours, and someone else is acting for your mother as they feel she would wish things be done. They are using their best judgement and that is what your mother CHOSE THEM to do. Had you been asked to be POA then you would have been making the decisions.
It happens that I agree, myself, completely, with the decisions being made here. And that others on this Forum will more agree with you. That is neither here nor there. But this now is how things will go, and your questions will be best directed TO Hospice, to their nurses, their doctors, their social workers, their clergy.
I am so sorry for the coming loss. I encourage you to concentrate on the wonder of having had so long a life and so much love at the end of it. And to celebrate the wonder of that, and the mercy of preventing a painful end.
At the end of her life, my mom died from congestive heart failure and kidney failure. The hospice nurse told me that most people die with at least one infection, whether it is in the lungs, the urinary tract or somewhere else, if something else hasn't killed them first. But my mom took her medicine to prevent UTIs up until the last 3 days when she wasn't taking anything at all or eating and drinking. I have wondered if she would have been better off to die from the UTI, as it might have been quicker than heart failure, but I can't know that. All I can do is know that I did my best for her to not suffer and the way things happened is the way they happened.
I think you should read up about hospice care and also talk to the hospice nurses who take care of your mom. It will ease your mind. They have religious counseling too if that is what will make you feel better about what is happening with your mom dying. She has been alive a long time, and you will miss her no matter if she lives 10 more years or 10 more minutes. You will feel more reassured if you understand what hospice does and doesn't do. They do not hasten death, that is illegal and they have no reason to do so, as they get paid only when the person is still alive. All they do is to treat symptoms that arise as the person is at the end of their lives and doesn't want to get surgery, or another test and another trip to another doctor etc. They do liberally use medicines like morphine and ativan, which do not kill the patient. All they do is relieve pain and interestingly, they make it easier for the person to breathe. I was surprised about that but that's exactly what happened for my mom. She really really hated using O2, so I wish I understood the morphine would make her breathe easier. It likely wouldn't have mattered as she didn't want to take any meds until very late in the game. This is why I'm telling you all of this, as my mom has died now and I hope what I know can help you or anyone else reading this.
There is a lot of misinformation about hospice. There's a lot of fear mongering about opioids. Don't let these things trouble you, look into it and ease your mind. You hear so much about overdoses that it leads to unwarranted fear even in end stage patients. There is a lot of undertreated pain out there as a result. Hospice is one time they don't have to worry about that, just about keeping them comfortable.
I am sorry that your mom is dying and I wish you some type of peace with these things. It happens to everyone and I understand hospice feels like giving up. It isn't. It is just that there is no test or treatment that will make the person any better and in lots of cases just getting them into the testing itself is a huge disruption and for what? A follow up in 3 months? Please spend time with your mom after reading up on hospice and talking to them. You can call them and even if you don't have POA you can just ask general questions about the services they provide.
But just because your moms UTI may get treated doesn't mean that she's not going to die as dementia itself is a death sentence and the kindest thing we can do as loved ones is to keep our family members as pain free and comfortable as we possible can until they leave this world for the next.
And then there's the fact that your mom lost the love of her life just a few months ago and I'm sure would much rather be with him then to continue on with her broken mind and body. It is so very common when one spouse dies that the other dies shortly thereafter especially in marriages that were as long as your parents, so respect the process and just be there for your mom best you can as when it's her time to go she's going to go.
May God bless the remaining time you may have with your mom.
For all we know, God sent hospice to ease us out of this life into the next without pain. Why on earth would a loving child want mom to continue in ever-worsening confusion and suffering? I don't think God wants that for anyone.
Just a different viewpoint.
"Antibiotics used to treat urinary tract infections (UTIs) in older adults can cause a range of side effects. Common side effects include fever, rash, diarrhea, nausea, vomiting, headache, tendon ruptures, and nerve damage. These medications can also disrupt the body's natural "friendly" bacteria, leading to conditions such as vaginal yeast infections, other infections, severe diarrhea, hospitalization, and even death. A significant concern is the increased risk of Clostridium difficile (C. difficile) infection, which is particularly elevated in older patients. Long-term use of antibiotics like nitrofurantoin is associated with additional adverse effects, including liver damage, pulmonary fibrosis, and peripheral neuropathy, necessitating close monitoring. Furthermore, antibiotic use promotes the development of drug-resistant bacteria, which are harder to treat and can lead to more severe, costly, and complicated infections.
See All Answers