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Cant wait to get chastised...Why are we keeping elderly (with multiple problems) alive to live crappy lives? I find it selfish on families and the medical community, hospitals, etc. People are benefitting from the inevitable? We are more humane to our pets than our family. Not to mention how rich pharmaceutical companies have become (and doctors paid by them as well). How many drug commercials do you see every evening on television? I sure don't want someone keeping me alive in a nursing home!

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Do you think you're the first person who's ever thought or said this?

You are not.

The elderly are kept alive in spite of having miserable, painful, horrible lives because they generate money. All old American people (age 65 and up) have Medicare and that is the real cash cow. The elderly of today usually have small assets too. Like real estate, insurance policies, savings, and small investments. The care industry wants it all. So some poor elderly person out of it with dementia and living a wretched existence in a nursing home must be kept alive at all costs.

The part that bothers me is that the healthcare industrial complex will let a young person die in the street if they can't afford good insurance. That's the real tragedy.
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Scampie1 May 23, 2025
@BurntCaregiver,

I'm sick of it as well. Years ago, people died around the age of 72 years old. Now, they are living well into the 100's. It's good if they have some semblance of life and can still function.

I had a client years ago who was mid-nineties who was tired of living. I still see that poor soul with their fists waving upward yelling to God; "Why won't you take me." This is the time that I wanted to leave homecare. I couldn't bear it. This person didn't live far from me, and I did not go into that neighborhood for almost two years after leaving that case. I had a friend who needed my help who lived in the neighborhood, and I had to tell her no. I didn't give a reason. I was just too traumatized at the time and didn't feel cut out to help anyone at that point. This particular client had traumatized so many aides that went into their home that many quit the agency after that one particular case. The primary care doctor was no help in prescribing medications to calm down their anxiety. It was just a horrible situation for the client and for the care aides being sent into this home. The client would self-medicate taking tylenol with codeine. Some days I would have to call a relative to come open the door to make sure the person was safe and hadn't fallen down the steps and broken their neck. One time it took me an hour to gain entry to their home.

I'm 67 and I've noticed some doctors trying these antics with me. I'm time enough for them. One doctor tried to talk me into going to the emergency room last week. It was late at night, and there was no way I was going to commute all the way downtown to the emergency room being exposed to who knows what risking cross contamination. My age would have worked against me, and they probably would have admitted me just to get the Medicare money. This particular practice has almost a two million dollar deficit that they are trying to close up.

Pardon all of my pronouns, but this forum is not private and questions come up in google.
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I feel like I just read my own post. I would say also that many of us here (including myself) would’ve liked to say it but didn’t have the courage. So thank you.

I’m dealing with my 90 yo mom who is in rehab and has recently diagnosed pneumonia and on antibiotics. With her recent obvious decline (before she fell and broke her hip) I tried to get her to do a DNR with a loving explanation of why that’s a good idea. I also wanted her into hospice. She seemed on board but in swoops my brother who exerts a strong influence on her who also refuses to discuss a plan of care with me and is obviously in denial, who has helped make her a FULL CODE and of course won’t even discuss hospice. Unbelievable— but also heartbreaking. For her and him it’s largely driven by a mistaken sense of pride. She doesn’t even realize she’s setting herself up for living the rest of her days in misery, as her family sits and watches.

Now the handwriting is on the wall that she CANNOT go back to her home. She thinks she’s going home so all I did yesterday is kick the can down the road that she will have to stay longer. A SNF is definitely in her future and for what ???

So greedy corporations can continue adding to their bottom line.
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Because some people want to live. They still find simple joys in life. My late husband (he had frontotemporal degeneration, a form of dementia) and was a private-pay long-term care resident for years. During a hospital stay at an academic medical center, he wasn't eating much and I felt pressure to place him on hospice care. I e-mailed his neurologist (the medical director of his long-term care and a nationally-renowned, if not world-renowned) clinician and researcher at this academic medical center. He found things in my husband's record that I couldn't see in the MyChart portal and noticed my husband hadn't been tested for. He ordered a thyroid test for my husband. Turns out hubby had a thyroid disorder. He started on generic Synthroid and began eating again. Left the hospital about 10 days later. He lived another 13 months after this. Don't regret the approximately $110K that this extra 13 months cost for one second. Some people think every second of life is precious (my late husband did and so do I). I can only hope someone will value my life as much as I did my husband's if the same thing happened to me someday.
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As part of your medical health directive state that all your medications be stopped. A DNR. No tubal feeding/water. When you're completely incapacitated, unable to function independently, this is one way to die.
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LucyImHome May 23, 2025
I will take it. But I also would not want to be treated for anything else whatsoever.
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It's a hot topic over here in the UK as there is a bill going through Parliament for assisted dying for the terminally ill. I don't have any children so I am in full agreement for a "Living Will" whereby I stipulate under what conditions I would not want to be kept alive artificially.

I visited my 93 year old spinster aunt in a care home, she is wheelchair bound, has chronic kidney failure amongst many other ailments and has 12 medications a day to keep her alive including a sedative as she is slipping into aggressive dementia. In one of her most lucid moments she said she had been praying to die as the home had become an existence. 15 months earlier she was living on her own in sheltered accommodation, then she had a fall and broke her hip. She describes herself as an inmate in a prison and wants it all to end. I am the only relative visiting and have the farthest to come. Walking into that care home (which is actually lovely) depresses me to see so many just sitting in a chair with their chins on their chests all day except for mealtimes when they have to be fed by the staff.

I am now UK retirement age (66) and I can see my generation being the one where we start to get serious about our future needs. My neighbours are around my age and all of us do not want to go into any form of care home, we will make provision to remain in our homes for as long as we can with daily assistance. If we can't then I feel in my case that is the marker to say enough is enough.
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Because every time someone brings up dying with dignity and allowing someone to end their own pain, every religion starts screaming about euthanasia and how kids will kill their parents for their inheritance. Remember all the ridiculous lies about death panels when Obamacare was being debated? Since it is impossible to have a real discussion about this issue, nothing ever changes.
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Fawnby May 23, 2025
There's always Switzerland. We could sightsee before the main event.
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@swmckeown76, I experienced both of my parents crying out to die. Dad, dying of cancer age 92, asked the hospice doctor to give him a shot that would do it, but of course, that wasn't possible. I dread being in that condition and having to live when I don't want to. I don't understand why, when I'd only want to assist myself in dying and have no wish to off anyone else, that option isn't available to me unless I travel somewhere where assisted dying is regarded with more compassion than where I live now.
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cover9339 May 23, 2025
You can take some comfort that if you were to die at a facility or hospital, they would want your body out of there at once!
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If we had MAID in every state, we could choose to die when we wish.

Medical Aid In Dying is a means by which a physician provides a prescription for a lethal dose of medication with which a person can end their life at their request. Some people call this physician-assisted suicide or assisted suicide. 

Since you feel so strongly that elders shouldn't be living past their expiration dates, please flood your national and state lawmakers with requests to make MAID legal now. Either that or start stranding old people on ice floes. That works too.
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cover9339 May 23, 2025
Dr Kervorkian was roundly criticized for feeling this way.
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I am uncertain what you are suggesting.
1. Are you suggesting we make it more clear in our advanced directives what constitutes a good quality of life, and what heroic measures CPR, ventilators, dialysis, artificial feedings we absolutely refuse to prolong our lives?
If so, great.
2. Are you suggesting that we work for laws in which we can self deliver ourselves with our own final exit when we wish to? Many already are legals such as VSED (voluntarily stop eating and drinking). And many are available with cognizance and a 6 month prognosis.

I agree with you if you are speaking of the above.
If, however, you are suggesting we can take grannie into the vet and have her put down for her own good, as we would our aged spaniel? Won't happen.

There are many ways in which we can, if we are mentally able, to make a final exit on our own terms. I suggest a membership in FEN (Final Exit Network). You can also avail yourself of information of Pegasos and Dignitas, in Europe. Onerous paperwork, I am here to tell you. And about 20,000 should be available overall cost and cost of residency prior to exiting. Does require you be of sound mind.
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LucyImHome May 23, 2025
Clearly, my whole post was about stopping medical intervention and would not fall under “putting granny down”.
I am in agreement with the oncologist who wrote a lengthy article years ago about how he would stop any vaccines or anything that could prolong his life after age 75. It’s not suicide or euthanasia and it’s individual choice. The only thing that I might differ with is the age. My own father was deep into Alzheimer’s at 69 when cancer took his life. Now I take care of my mother, with her dementia.
I already have notarized papers (that I found online) stating I don’t want to be cajoled into eating if my mind is gone and I’m resisting. I’ll get other papers drawn up stating if I get pneumonia or a UTI, etc. I just want palliative care when/if I get the dx. I expect I will, since I carry the APOE4 gene and I had an early hysterectomy due to OVca and didn’t stay on hormone therapy long term. Plus other risk factors. I don’t care to sit in a facility for maybe years. I’m sure my kids will get no joy out of watching my mind go down the tubes, just as I haven’t with my parents. There are worse things than death.
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Jules or lucyimhome, I assume based on your posts you are one in the same.

Medical personnel are trained to save lives and repair injured bodies. They prescribe medications for just that, it is fully on an individual to decide if they want to take life prolonging medications or not or seek life saving intervention. It is unfair to put that on another human being.

My grandmother lived 12 years after a series of strokes, over 2 days, left her deep in the throws of dementia, she was not getting any life prolonging medications, yet her body kept on for more than a decade. That proves to me when it's our time; it's our time and nothing is going to change that, whether suicide or withholding live saving medications or treatments or pursuing full code.

For everyone that wants to get their paperwork in order when they get the diagnosis, I would caution you that you may be to late at that point. My grandmother was fine on Friday and on Monday she was not and never would be again. You should get the paperwork now while you can, waiting could put you exactly where you are trying to avoid being.
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