My 96yo mother lives alone and never wants to leave her home. She refuses any help like cleaning and cooking, which is OK with my brothers and me. I am the only daughter and have taken her to doctor appointments, picked up prescriptions and visited or called almost every day. I helped her care for my dad for several months at home when he was sick. He died 6 years ago. She has dementia now thinks and expresses to others that I am stealing her money, sending nasty pictures to her and basically waiting for her to die to get to the house. If I call, she hangs up on me or doesn't answer the phone. When I go to visit, she insults me and tells me to leave. I worry about her, and I am reluctant to call or visit her because it seems to set her off and it is having a toll on my health, both mentally and physically. I realize it's dementia, but I can't talk to her about this because she cuts me off with "I don't want to talk about it" as she cuts me off again and again.
Dementia is the bad guy . It can make a nice person not nice , or a not so nice person worse.
Sorry to say , the one who helps , often takes the brunt of their unhappiness .
My mother was like this too . I called the local County Area Agency of Aging . ( I looked on the county website under services for elderly or something similar ) . The social worker told me “ Stop helping her , let her fail, so she sees she’s not independent “. The social worker came out and interviewed Mom . She Asked Mom , What if ……happened “. Mom “ could not come up with a plan” for various scenarios and the social worker deemed her unsafe to live alone . I had already picked out an assisted living but could not get Mom to go . The social worker was willing to come back 2 weeks later with “ help” to physically remove my mother from her home and bring her to assisted living .
I am a firm believer that a person with dementia should NOT be living alone.
It simply is not safe.
Your mother has no concept of safety. Of reality. This is evident by her accusations.
Is anyone POA?
If not at this point someone would have to be appointed Guardian. that can be a family member or the Court can appoint one.
Someone has to pull up their "big boy/girl pants up" and make the decision that mom either needs a full time caregiver OR mom needs to be placed in Memory Care. And mom has NO say in this decision.
No one WANTS to leave their home but at some point a decision must be made based on safety.
YOU obviously can not be her full time caregiver since she pushes your buttons. This is not good for your physical or mental health.
Are either of your siblings able to move in and be a full time caregiver?
I think it is time to have a sit down talk with your siblings and an Elder Care Attorney.
Before we knew my aunt had dementia, my cousin (her other niece) who lives close by and cares about her deeply, all the sudden became the bad person. I didn't comprehend. Aunt called me one day and told me she was threw with her. Shocked, I asked her what happened. She never gave me a clear explanation. I was shocked. Then a few months later, I get a note from my aunt's neighbor asking me to come by and check on my aunt. She no longer trusts my cousin who lives near her and doesn't want any parts of her. She was accusing her of stuff that I knew wasn't true, such as letting people in her house. It was baffling.
So because of all of this, my aunt decided I would be her medical POA even though I am far. I had no idea it had stipulations, such as being at her beck and call, as well.
I did what I could, as I love my aunt, too. However, it was becoming unbearable and aunt wouldn't listen and wanted everything her way or no way. I saw myself paying for everything, and mind you, my aunt has the money. She even tried to make me pay for her caregiver. I was expected to give up weekends or worse yet, go and move in with her.
I had enough. ENOUGH! I gave up the POA, gave up my visits and now I am the bad person, which I knew would happen sooner or later.
Like your mom, when I would call her, she would get mean towards me or not answer at all. She wrote me off, and that hurt, but at the same time, I had to look out for my well being and peace. So, you may need to step away from all of this like I did. I have no idea how she's doing now, but I know it can't be good. Like someone mentioned, dementia is a wild ride. I had no idea I would experience this. I didn't see it in my parents until my aunt. The changes, the personality, even her looks changed drastically. It's just so sad, and I'm sorry you're experiencing this. You're not alone and I wish peace and serenity.
I'd call APS as suggested bc mom is NOT safe alone, especially cooking. Don't take what she says personally, if possible, and let APS decide she needs placement. You'll still be the Bad Guy, but who cares? She'll be SAFE.
What probably needs to be done now is for you to call APS and report a vulnerable adult living alone with dementia, and allow them to come out to do an assessment and if need be take over her care.
Your mom should NOT be living by herself, and APS will make that determination, so make that call sooner than later.
Don't give up you, for her, back off, set your life direction understanding that it doesn't and shouldn't revolve around her.
You do not have to condescend to her and her behavior.