Being a longtime caregiver for my mom with Alzheimer's has made me change my opinion about what kind of care I would want should I develop this horrible disease.
My mom was my best friend for as long as I can remember. For me, there wasn't even the thought of sending her to live in a NH. It was just always known that I would take care of her to my dying breath if that's what it took. As a caregiver, despite all the terrible stress and exhaustion, I think most people feel that it is right to take care of their loved ones (at the very least). Many of us couldn't have it any other way.
My mom is gone now but living through that has made me completely change my mind about my own wishes. All of us know that there is a chance that we will get this disease. But if YOU get dementia -- what about you? Who would you want to care for you? Are you concerned? Have you made arrangements? Has knowing the progression, experiencing personal losses and giving your life over to caregiving colored your stance?
Hugs to all