I'm on my own. He does have medicine for the symptoms. But what specifics do they do/say that lets you know...'it's time'. Some of his symptoms are in stage 5 and 6. I know he'll give me a hard time. I do not have his POA. He still showers/eats by himself and takes walks/bike rides...(with a cell phone and a GPS )

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I think, jackie48, that it more a matter of what you can do than what he is doing. When it reaches a point where you cannot provide the level of care he needs in your home setting then it is time to place him in a setting where that care is available.

Depending on what his symptoms are, you may be able to extend the time you can keep him at home (if you want to) by bringing in help. For example, if he gets to a point where he can't shower without help, you could bring in a bath aide. Also I hope you have help to free up your time -- a person or service to clean and do laundry, etc.

If his symptoms stop responding to medication, work with the doctor to change dosage or try different meds.

At some point, even with in-home help and a supportive doctor, you may not be able continue to care for him in your home. It really is more about what you can handle, in my opinion, that a certain set of symptoms that he has.

I was able to keep my husband home for the entire journey. Most people in my caregiver support group reached a point where they could not safely continue in-home care. It is a wrenching situation. None of them made the decision lightly but it was clearly for the best in each case.
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