Our mother is in late Stage 5/early Stage 6 Alzheimer's dementia. She's mostly confused and makes no sense, but she can "turn it on" for brief periods and sound relatively OK, although what she says/reports is likely false. She is in the best facility around, well cared-for, and with 3 of us adult children making great efforts to get her to appointments and get the treatment that she needs.
In the meantime, Mom manages to contact people who are barely acquaintances, and who have no idea about her real condition or day-to-day life (for example, she regularly calls 911 from AL to report that "they are killing her" and she is "about to die") who then do stupid things like take her to her home and leave her there alone (she can't cook and has left the gas stove on) or, this week, canceled her doctor's appointment and scheduled with a new doctor who has no idea of my mom's history, and clearly did not read her chart. (My mom has severe anxiety and is in pain from chronic sciatica, and the new doc sent her home with B-12 and D vitamins!!! SMH.) Today, my MD brother came to pick up Mom to take her to the appointment that he had scheduled for her (and taken a day off of work to accompany her) only to find that this "friend" of mom's had canceled it because our mom told her to. This friend has zero idea what is actually going on.
I'm not sure there is a real solution as Mom will just call someone else she barely knows and convince them that her children, the AL facility, and doctors are in a mass conspiracy against her. I'm just frustrated as hell and wonder how others have dealt with this.
My mom is truly in the best facility in the area, is given a lot of support from the facility, and has attentive children, even if we can't be there 24/7. (As a side-note, she relinquished her financial POA to her accountant because none of her bills were getting paid although she used to have a 800+ credit rating.)