My loved one was eligible for hospice at home in another state with a 5-day respite care in a "hospice house". The accommodations were lovely with a single large room with fold out sofa for overnight family members, private bath and of course a comfortable hospital bed and common living room and kitchen for the 6 other residents in the hospice respite house. My husband seemed agreeable about leaving his home and being in this very comfortable environment for 5 days and came back smiling after the stay.
When we migrated to our home state for the warmer months, he was eligible for hospice at home similar accommodations alluded to except when it came time to do respite. The social worker making the arrangements for respite "booked" my loved one in a nursing home (overflow for non-emergency patients ) in a semi-private room, dark, tiny and cramped with a view of the hallway. The room mate kept the room dark as the room mate had control over the window. In fact, it felt like my husband was in the hallway the space was so cramped.
Besides being cramped and uncomfortable, my loved one is not going to want to go to those conditions next time which will compromise my "time off" (which I desperately need). I called and talked with the social worker who placed him (the day before the respite was to begin to no avail) and called the admissions woman at the nursing home claiming that the conditions were unsatisfactory, to no avail.
I learned that the hospice agency we are with is receiving $4000 per month from Medicare for their hospice services. Does anyone have any advice or experience to offer so I can advocate for more comfortable accommodations?