My Mom had a brain stem stroke about 3 years ago. Since then she has slowly regressed. My dad is full time care taker and , as hard as I try, I don't get a lot of details. She complains about dizziness, all the time- she says she feels drunk all the time, has horrible balance issues - is in a wheel chair- lost much of her bladder control, cannot talk above a whisper but remembers everything! She just cannot talk very well. She also cannot read. The eye doctor said her eyes have not changed- so why can she not read? She had a neurology appointment Wed. and I told my dad to ask about vascular dementia but, as usual, this darn doctor was very non committal and vague(" it happens with strokes, yes,).dad said her brain scan has not changed, her muscle strength is Ok, blood pressure Ok, her weight is only 113-she is about 5'7"- so she needs to gain weight. Doctor said she should not regress much more if she does not have another stroke (she is on all the proper meds) BUT she is!!! I am 4 hours away and watch her periodically- she is coming to my house for a week in March- (I am going to get her and drive her home) Her doctor is 77 and just seems so -vague- so ho hum. I have no legal rights to her health care. I am so worried about her though. I just feel like there is more going on. BUT WHAT? Does anyone have any ideas? Thanks!