if a person is on hospice care at home, does this mean that under hospice rules, he may not be taken outside the house or be taken for a short ride in the car during those times when he feels well enough to do it?
is the aim of Hospice to facilitate a person's dying by limiting or denying oral fluids or by overmedicating with tranquilizers. I had a hospice person tell me that I cannot /should not ask the patient if he would like something to drink? It was up to him to make the request. He was not unconscious and was able to say when asked if he would like a sip of fluid.
if a patient has no physical pain, should a patient be medicated with morphine for (emotional pain???) the patient was already being sedated for anxiety to the extent that he complained of being "so very exhausted".
Is it Hospice's aim to hasten a person's death by overmedicating and denying oral fluids???? to someone who is not yet unconscious?
Not only that but the aides that the family had hired were told not to give him passive exercises of his legs, not to offer him liquids, essentially not to stimulate him in anyway and though unspoken the reason was not to prolong his death.
Unfortunately at the time he was diagnosed with cancer for convenience , he had named his daughter as his health care proxy and hospice allowed her to use that designation as the person to manage all his health care decisions, to the point that when he wanted to be allowed to be taken out of the house for a short ride he was told he could not do that In fact the hospice nurse, his daughter and the hospice social worker brought him almost to tears telling him that it would not be allowed even if he felt up to it. I had to step in and tell them to stop brow beating him and that I would see that when he felt strong enough I would see that he was helped into the car and I would take him to the park. You see we had lived together for many years and he was in our home where he was under hospice care but the hospice people allowed his daughter to make all the decisions and in fact it was like pulling teeth for me to get them to tell me what medications he was being given , the dose and frequency as I was sure that she was over medicating him with sedation, tranquilizers and pain medication. Hospice even threatened me by saying that his daughter could take him out of our home any any time if I continued to object to their terms of care.
when he arrived at my home from the hospital, he was cheerful and happy to be home since he had been in the hospital for 2 months. He died 3 weeks after coming home and I believe it was because of being over medicated and discouraged from even asking for fluids to the point where he just gave up. During the last few days, no visitors were allowed , except for his daughter who stayed in my home from the beginning to the end, and a couple of family members whom she was on speaking terms. The room was to be kept dark, no TV or music , no talking to him , no offering of liquids though he was semi conscious , until about the last 36 hours.
For me it was 3 weeks of Hell and having googled Hospice services, it would seem that it varies according to the way the local hospice people interpret the international regulations as to what is "comfort care" and as long as I have my wits about me, I would never surrender my independence to Hospice services as I think that some in their zeal to help the patient die comfortably are in reality practicing euthanasia without the legal oversight to do this .