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I recently took an elderly family member (who has dementia) to a doctor’s appointment. A nurse was attempting to take her blood pressure, and my aunt began yelling “Stop it! You’re hurting me!” Then my aunt began counting 1… 2… 3… 4… 5…, like something was going to explode when she got to ten. My aunt then began shouting expletives, and the nurse was taken aback. I apologized to the nurse and told my aunt to “watch her language”. Not sure if that was the correct response to the nurse or to my aunt, but I felt like I had to do something. My aunt also made a comment about the clerk who was scheduling her next appointment. The comment was “What is she doing? Sitting on her a__ doing nothing?” I want to be better prepared for future doctor visits. I need some pointers on responding to this type of behavior. I wonder if I should give the nurses/doctors a heads-up by giving them a short note describing my aunt’s condition/behavior at start of appointment.

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Some people have cards printed and hand them discreetly to others, such as salespeople in a store or others you might encounter in a doctor or dentist office. The cards say something like, "My companion has dementia. Please excuse unusual behaviors, and thank you for your kindness."

You might be able to order these from companies that cater to Alzheimers customers. I've seen such companies online.
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It should be in the doctor's record that Aunt has Dementia. My Moms PCP was very aware of it before the diagnoses. This Nurse should know how to handle patients like this. I doubt your Aunt is the only one who has acted out. They lose their filter. Say whatever comes into their heads. Did you say anything to the doctor?

My Mom would cry out when they did her blood pressure. I had to get mine done a few weeks back and realized it does hurt. Tell the nurse next time to use something else to get her reading.

When my Mom could no longer write her checks, I did it and found she was going to the doctor every 2 months. I asked her why and she said he wanted to see her that often. My Mom was on BP meds and cholesterol meds only. Healthy as a horse so no need to go every 2 months. My State requires that you see a doctor every 6 months to renew meds. She had stopped driving so I was now taking her to appts. The next appt I told myself, if he asks why she is there we will not be coming every 2 months. He asked.

So what I am saying is, does Aunt need to go to the doctor often. I did not make Mom another appt that day. I would be taking her when she was sick or to renew her med prescriptions. She had a couple of specialists, once she was stable, I asked that she only come every 6 months or even a year. Her meds should be looked at too. Mom was on one she did not need anymore, I questioned it and the doctor removed it.
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BurntCaregiver Jul 10, 2025
@JoAnn

I've seen this happen to with the doctor requiring the every 2 month visit. If tele/health visit is available, it's so much easier.
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When a person has dementia many "filters" that we use to be accepted in "normal" society are lost.
Your aunts medical team should be aware if this.
If you are POA and designated on HIPAA forms you should discuss medication for anxiety. And it would be a good idea to "pre-medicate" if you know she will be in a stressful situation. Do know that these meds can make her more of a fall risk.
And at some point many (if not all) doctor appointments become unnecessary. I would find out if your aunt would be eligible for Hospice and switch all care to the Hospice team.
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Sigh123 Jul 12, 2025
Thank you for your response. Will definitely review her meds, and pre-medicating before a trip to the doctor. Thank you for mentioning hospice care; will look into it.
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We found taking 2 people to the appointments with Mom was helpful.
One could stay with Mom and one could talk to the Medical Asst, LPN or CNA in the hallway regarding Mom's status.

Mom also did not like the blood pressure cuff and say "It hurts, it hurts, it hurts."
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Sigh123 Jul 12, 2025
Thank you very much for responding. Hearing from other people that are in similar situations helps me a lot.
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I am assuming that Aunt's medical team is aware of her overall condition? You listed this under "dementia" so it seems clear they know Aunt? If so this will not be surprising behavior for them. And yes, BP may hurt a fragile elder's arm a bit, and in cases of dementia they may not take it lightly.
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Sigh123 Jul 12, 2025
Thanks very much for your helpful reply.
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Who or where does your aunt live with? Can you talk to them about her behavior? Why are you the designated appointment driver? Do you know what kind of dementia your aunt has? This can help with symptom management techniques. Once you find out, research the web for specific Zoom groups. I'm in two, which have helped me a lot with my husband's Frontal Temporal Dementia.
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Sigh123 Jul 12, 2025
Thanks very much for your helpful response.
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Definitely give the doctor's office a head's up in advance about her behavior, and anywhere else public you may plan on taking her.

You handle that behavior the same way you would with a child. You tell her firmly and very plainly that she's acting ridiculous and to stop it immediately or (we won't be going to lunch, or for ice cream, or for a drive, etc...). Promise a treat of some kind if she behaves properly in the doctor's office (or wherever you're bringing her) and if she acts up, the treat is cancelled.

I did this for 25 years as a professional caregiver if I had to take a dementia client to a doctor's appointment or anywhere else. I also did it in their home if we had to do an activity they were being stubborn or ornery about like changing a diaper or taking a shower. It usually worked.

It's funny because my care clients who would act up and get a treat cancelled always remembered the treat. They'd ask after their doctor's appointment or wharever else we went if we were still going to lunch or for ice cream, etc... and the answer would be no. Of course I'd get the silent treatment or the orneriness, but I never gave in and this is why my clients even with dementia, knew I meant business. Even when a person has dementia they may still possess some level of understanding and have some self-awareness. If they're at a point in their dementia when they don't, that's when it's time for a memory care facility.
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Sigh123 Jul 12, 2025
Thanks so much for responding. Great information.
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Redirect your aunt when the inappropriate comments happen. Quickly talk about another subject. Quietly inform those who don’t know that she has dementia. Make sure any medical staff knows by using the patient portal or sending a letter ahead of the visit. Some have small printed cards to hand out stating the condition and thanking others for their understanding. Ask her doctor if a medication to calm the behavior is appropriate. Know that most people are kind and understanding in such a situation. Your aunt is blessed to have you
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Sigh123 Jul 12, 2025
Thank you for your response. Going to bring some notecards to discreetly inform/remind staff of dementia at next appointment. Will ask doctor about meds to calm behavior.
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If it’s her doctor appointment they should be aware and informed about her dementia. It’s a medical condition, not a moral issue. Nurses should learn how to react, redirect and tolerate dementia behavior. It’s quite common. Getting my dad to a doctor appointment in his wheelchair is an ordeal. He may have to use the bathroom, struggle with mobility while doing so, make odd comments to strangers…..get restless and demand we leave….so, I focus more on getting our goals accomplished at the visit than what others might think. I usually just ignore what he says, if inappropriate I change the subject. I don’t let it bother me. Most people get it. Plus, discouraging a person with dementia is pretty pointless. They won’t recall it. Oh, for the last visit, I hired a home health aid to accompany us to help with transfer, transport chair, bathroom cleanup, etc. It worked out great and was worth the money. She even took notes during the visit.
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Sigh123 Jul 12, 2025
Thank you for responding. I am surprised that some medical staff do not know how, or maybe don’t want to, redirect dementia behavior. I could relate to your experiences of getting your dad to doctor appointments. Hearing your story helped me to not feel so alone in dealing with this. After going through doctor visits/trips that were like nightmares, I am more prepared now for the trip itself. Now I’m learning more on how to handle the actual doctor visit itself. Thank you again.
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Who stuck you with this chore of taking your unruly Aunt to her doctor appts? Did you tell them how terrible she behaved? Get reimbursed for gas?

Elders with Dementia are like dealing with a bratty toddler. It's a miracle you got her to a doctor appt as it is! Usually the demented Elder refuses to go inside, has nothing to say, or doesn't answer questions, has a toddler tantrum....or they are full blown obnoxious.

Better luck next time!
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Daughterof1930 Jul 10, 2025
Blaming someone with dementia for their unruly behaviors is unproductive and inadvertently cruel as they don’t choose these actions. I often thought how embarrassed my aunt with Alzheimer’s would be to know how she was acting and the hear the words she was saying. She’d been robbed of all self awareness of her actions, a formerly proper, mannered lady became someone she’d never recognize
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