Mom had whole brain radiation 5 years ago. I feel she has developed vascular dementia. I’m not sure what is going on. In April, she was dropped by her aide and fractured her tibia in 3 places. She was placed in a rehab facility, but has never come home due to “cognitive decline.”
No no one can seem to tell me what’s going on with her but did suggest I get hospice involved. So I did. As far as I know she isn't terminal unless they know something I don’t.
Most days mom is up in her wheelchair but very disengaged. Some days I can tell she is confused and speech is hard. She will start a sentence and can not finish. She swallows her meds and regular diet food but will pocket at times. Yesterday, I noticed she was holding saliva in her mouth refusing to swallow it. No food or pills, just spit. She also will take her index finger and tap things, like her food and coffee or her blankets. She doesn’t seem to remember how to use utensils and will pick up her food, like a baked potato, rice, steamed carrots, with her hands.
She knows who I am. And seems aware of her surroundings but won’t hold a conversation with me. Which may be frustration with finding her words? I can’t tell. Although, yesterday she couldn’t talk due to all the saliva she wasn’t swallowing.
Anyone experience this? I just want to know what’s going on and why would they want hospice called in? I have asked both the staff and hospice but I always get the standard, “It’s for comfort care and pain management”
(she suffers from neurogenic pain in her legs).