Follow
Share

My Mother is in the hospital for dehydration.. She also has a version of dysphagia.. but is eating "honey" textured food. She also has dementia but knows who I am and can speak to me and also recognizes people and can carry some conversations. She was giving alot of medications that she wasnt use to( from no BP meds to 5 BP meds) and was knocked out from the meds and in the hospital they are suppose to adjust the meds. But now I got a call from Palliative care to make an appointment to talk..


I dont want my mother on either hospice or palliative care unless I see that she doesnt want to live which at this point is not the case.


So what do you think they will discuss at this meeting and when should someone go on Palliative care?

Find Care & Housing
For us , Palliative Care meant that we stopped having mom sent to the hospital for things like pneumonia and UTIs. They could be handled in the NH and if they couldn't, we made our peace with that.

The ambulance rides and hospitals stays do more harm than good at some point. You need to decide where that point is.
Helpful Answer (1)
Reply to BarbBrooklyn
Report

Let them talk to you. If the subject is being brought up, then they are trying to tell you something about mom. You may not want hospice but think about quality of life. Each time you accept and bump up life saving care, ask yourself if this is just prolonging life or suffering with no meaningful way to full recovery. When doctors take their oath to do no harm they also empathize about doing no further harm. In this country, decisions are left to the families when patients cannot think for themselves. There are good decisions and worse decisions but the ball is being thrown to you
Helpful Answer (2)
Reply to MACinCT
Report

MONEY
Helpful Answer (0)
Reply to shad250
Report

Palliative literally means “not a cure” It’s care designed to provide for ongoing needs while realizing there won’t be a cure or fix possible.
Helpful Answer (1)
Reply to Daughterof1930
Report


Palliative care is specialized care, where the focus is in relieving the patients symptoms in order to improve the quality of life. The palliative care team met with the family about my FIL, who has been hospitalized for 4 months now. I didn’t go to the meeting myself, my husband went and he said they wanted the 3 kids to take FIL home & take care of him themselves. Because they were having a hard time finding a rehab to take him. What I have gathered is that they were recommending palliative care (comfort care) to treat his systems & keep him comfortable rather than keeping him in the hospital trying to cure every problem that crept up.

dont feel pressured to agree to anything. Weigh the options. Ask lots of questions. And please, consider your mothers quality of life above all else. Making these kind of decisions is extremely difficult! I am so sorry.
Helpful Answer (1)
Reply to worriedinCali
Report

Ask a Question

Subscribe to
Our Newsletter