My mom has congestive heart failure and so some days she is fine and other days she is quite weak and frail. When she is OK she wants to live independently and was recently passed through a big evaluation to drive. When she is weak and frail, she does not drive, she should have someone with her all that time to cook and clean and take good care of her. She is eating less, losing weight and the weak times are more frequent. We are evaluating assisted living facilities and interviewing for additional help in the home, but when I called a care manager, they charged us nearly $300 to sit in the living room and tell us nothing that we didn't already know.
So, my next step is to understand hospice... I've checked on line, but I'd appreciate hearing examples from your experience about what happens if you call hospice early, when all is well, but slowly going down hill. Thank you in advance.
Your stories and experiences have been very helpful. Now I'm going to call hospice at mom's hospital... to hear what they have to say, and I'm looking forward to your advice about the right questions to ask and if this is too early or the right time.