I'll start -
1. Just because I have aides come in and care for Mom, that doesn't mean I'm off the hook. I still have to coordinate when they don't show up/show up late. We are not spoiled for having them.
2. Your time is not your own anymore. Sorry I can't take that trip or go away for the weekend. Sorry I can't just meet up for dinner in the evening or do something at a moment's notice. My life is built around my mother, trying to hold on to my job and when aides come to help.
3. Yes, this is rewarding but it can also be boring. Lots of sitting and eating which explains my weight gain. Plus the non stop worrying about everything. This is not a luxury gig.