My husband was referred to this program in July 2013 at least three times. In December 2013 documentation states he was approved waiting for services. When the scandal broke about the Phoenix VA. All of a sudden I get a call from a doctor one morning wanting to come out and examine him. So I say yes because his Parkinson seems to be getting worst. The doctor states: "I do not have a diagnosis of Parkinson for him." So I agree to the visit.
Doctor arrives early and sits in her car for over 30 minutes. I've gone outside with our dog and the CNA that was working here at the time.
Finally, the doctor comes to the door. My mixed terrier is following me and barking of course because he always bark when he hears the doorbell or someone knocking.
At the door the doctor states "their policy is all animals be put away before staff can enter." So I say your policy should be you do not call the same day you are going to make the visit and you explain the policy prior. Then I take the dog and lock him in the bedroom.
My husband is sitting in the kitchen in his wheelchair where the CNA had left him before she left.
I go back to the door open the door, let the doctor in, turn and walk back to out living room. I turn around and the doctor is standing by the stairwell near the door. She says "if you are upset about putting the dog away we can reschedule." In my mind, I am thinking, why is she revisiting the dog, he is no longer an issue. Then this doctor says "she walked into some hostility" I said it is not about me (I hold my hand out to ward my husband) it is about him, The doctor again says something about animosity and rescheduling while she is still at the stairwell and has set her bag down. Again I say 'it is not about me, it is about him.
To make a long story shorter, this doctor leaves our home and states we will have to reschedule. This is March. So I sent an email to the director, chief of staff and patient advocate of the facility. No one responds, I report it to Washington, no one responds.
In June I get a call about three people coming back to evaluate my husband. A SW, RN and NP comes out to our home under the guise of evaluating my husband. Then I have another two people to come out and this time the SW and her boss the program director. On this visit I am told that the chief of the program is thinking my husband is "now" too ill for the program to provide services in our home by a doctor and a team. I will get the final decision later.
So I get this call and I am told my husband is now "too ill" for the program he was referred to almost a year ago.
So I send a letter to the Senator and ask that he look into this, because I don't think it is fair to my husband. I get a letter from the senator's office in which the director of this facility wrote in response to their inquiry.
The letter to the senator from the director is very accusatory of me, very defaming and I learn from the letter that there is a fear for the staff to be in our home and they recommend nursing home level of care for my husband. Then I learn from the same letter that when the three people came to our home, two were not to examine my husband but to monitor activities in our home while one examined my husband. Then I also hear later from a relative that my husband was denied the program because the agency cannot afford to send two people into our home at the same time. Two people because one would have to monitor and watch me because of the safety concerns for the staff.
YOUR TAX DOLLARS AT WORK!!!!
Oh yes, they are also looking at my husband's medical file in which I too, now have a copy of. I could not understand why I was so in the file with the spouse called and she said this and the spouse called and she said that. But after reading the letter to the senator's office from the director I do get it.
Even more interesting, we are both service connected disabled veterans and I have a pinched nerve and some other issues. My doctor requested more assistances in our home to help me with my husband and the same person denied that request as well.
So again, who can help with this one?