Mom and I have an appointment with Dad's neurologist next week. It has gotten to the point where we are considering a move to a care facility, due mostly to his delusions. Dad is 80 years old and has been retired for over 15 years. He is now almost continuously obsessed with going to work, calling his job, going to the personnel office, needing someone to take him to personnel, to work, to the job site, to the hospital, to the doctor, etc. He is constantly on the move, unable to sit still. He paces the hall and circles the house. No matter how we answer him he has a response back that somehow changes the question he asked previously to the point where another answer is necessary. He goes around in circles! Several months ago this might happen two or three times a week in the late evening. Now its every day, for longer periods of time. Yesterday it started around 2:00 in the afternoon and never let up, even through dinner. As soon as I walked through their door at dinner time he asked me who I called (I tried to get him off track the day before by telling him I'd call and make sure personnel knew he wouldn't ever be back, which I'd told him I'd do already several times before), did I get a signature, what was their phone number, what was the person's name, did they need papers, he needed to drive by the workplace, etc. This goes on and on and on for hours, sometimes until he tires himself out and lays on his bed, usually at 9 or 10 at night.
And no -- and I don't mean to be harsh! -- his attention CAN NOT be diverted. That's an impossibility at this stage. And no, he doesn't have a UTI!
We need to do something. We want to keep Dad at home as long as possible. Mom still takes care of him and doesn't mind the physical part - she toilets him, showers him, shaves him, gets him to eat, etc. Its just this emotional stuff that's taking its toll.
Thus, an appointment with the neurologist. We plan to let him know what's going on and that we either have to make some type of med change to calm Dad's anxieties, etc. or we'll have no other option than placing him in a nursing home, which we don't want to have to do. Do we ask about changing meds? Dad was diagnosed 4 years ago with AD (possibly has Lewy Body Dementia based on what I've read and how he acts, which is also a question for the neuro) and has gone through a number of them already. Do we ask about adding a med during the early afternoon? Maybe one he's already on? I know the neuro doesn't want him drugged up, but what is worse? Meds or the constant stress -- to both him and his caregivers? Do we try a miniscule amount of the Zyprexa that turned him into a Zombie at a higher dose? Do we try stopping any meds? He takes Exelon patch (does it still do anything?), Seroquel in AM and PM and Sinemet three times a day, along with two prostate pills, baby aspirin and Vitamin D. Doesn't seem like much based on what others indicate their loves ones are taking, and that's been a blessing!
I know others have come to this point... HELP! Any suggestions about what we might ask the neuro?
Thanks for listening...