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I am not even certain what I am asking here. I just need to vent. I am going to try to condense as much as possible. I have been taking care of my parents and my siblings (and even their children) for most of my life. My family was dysfunctional to say the least and I never even realized just how much until I got married and moved out. I also suffer from mental health issues (depression, anxiety, ocd, panic) due to some verbal/physical abuse while living in their home. I lived at home until I was 28, not by choice but because they usually took any extra money I had that I might have used to move out. I have been helping feed them, get their nicotine, meet their bills, and bail my siblings out of jail for as long as I was able to work. Fast forward to 5 years ago (2016) and my mom has a psychotic episode which is later determined to be vascular dementia/alzheimer's. I even posted on this board about the issues back then. I start helping take care of my mom. I handle all of her doctor's appointments, medications, etc. Through all of this I am meeting resistance from my father, at times abusive resistance. Fast forward to the past 9 months (starting around the middle of October 2020, my dad's health is declining (he had AVM of the brain and copd) and he is starting to get really angry and frustrated with dealing with my mom. So, I start spending 4 to 6 hours a day every day of the week at their house cooking, cleaning, and just sitting and listening to them tell stories. I feel like during this time I am going completely crazy. My life with my husband is nonexistent. I start thinking about that frequently. We have never been on a vacation or even honeymoon in the 17 years we have been together. And I feel really bad for him because he stands by me no matter what and does for my parents when I am too drained. But, this anger I have with my stolen life is building to a fever pitch as I sit over there. Then I have to start taking my dad to appointments and I resent it because he has been both physically and verbally abusive to me. But, we have our good days more often than bad ones at this point. Fast forward again to last Thursday, July 15. I am upset because I had an appointment with my optometrist and my dad was supposed to remind my mom to take her medicine and feed her. But, he didn't because he was mad at the neighbors for playing their music all night and was outside playing his loudly to get back at them. I got mad at him and cussed about him within earshot saying I hated him and stuff to my mom. He was kind to me that day trying to talk to me. I wouldn't speak to him. He went to the bathroom and stayed in there for a long time and then went to the bed and lay down snoring loudly. I thought I heard him weakly call my name at one point, but wasn't sure and didn't check. It was time for me to go home, so I tucked my mom in bed and left without telling him I loved him because I was angry. It was the first time I had done that in a really long time. My mom called the next morning and said he was not responding to her. I told her something better be wrong because there were times he'd have small seizures and just not talk to her and I'd get there and things would be fine. (I live across the street) But, it turns out, he had died on the couch in the middle of the night. I feel horrible for how I treated him. But, I have not had a chance to even grieve properly because I had to take over care of my mom that day. She is now living with me. She is on repeat 24/7. She keeps saying my dad cheated on her. She has delusions/hallucinations. Then she cries for him. She misses her home and wants to go home. She never stops talking. She also dips snuff and gets it everywhere. I have OCD bad, so it is messing with me. I know I sound cruel right now saying these things. It is just how I am feeling. I love her with all of my heart. But, I don't think I can do this. I have heart issues as well. I am feeling emotionally numb and want to die.

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Please stop using the expression ‘putting her’ somewhere. Most of us have lived in several places in our lifetimes, depending on our age, work, needs, finances, and many other resources relevant to our time in life. Very few of us have been able to live in a place we would choose as what we would like best – eg lovely house with beautiful garden and wonderful sea view, 10 minutes drive away from work and all our favorite leisure activities. Those may have been ‘wants’, but they were not ‘needs’, and they didn't happen (certainly not to me!).

Your mother now needs to live somewhere appropriate to her age and health. Her resources do NOT include unlimited demands on your life. You should help her to find that ‘somewhere’ where her needs can be met. It’s HELP, not ‘putting her’ anywhere. She can no longer organise the choices that need to be made, and that's why you need to help.
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You ask "what do I do," well the very first thing is to get your mom placed in the appropriate facility, and out of your home, so you and your husband can get back on track with your marriage, as your husband must be your number one priority.
Then you STOP being the run to person in time of need for ALL your family members, as they have used and abused you long enough. It's now your turn to take care of you. If you don't, you will be the next one to die from all the stress.
Then you should probably seek some kind of therapy for all you've been through, and to properly be able to grieve the loss of your father.
Not all these steps will be easy, but they will in the long run be worth it. I wish you the very best.
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perturbed07 Jul 2021
Thank you for your reply funkygrandma. It breaks my heart to think about putting my mom in a facility. But, I feel like I can't take care of her. I promised her and my dad that I would not put them anywhere. She is still cognizant of her surroundings. She wants to go home and doesn't understand that it wouldn't be safe for her to live alone. She insists she's capable. Then, she says she's going to find someone to live with her. She says her neighbors, who she has never spoken to are her childhood friends and they will come live with her. She says she doesn't like living in our house. We have structure..like we eat 3 meals a day..etc. She's not used to that. When she's not talking about going home, she tells me she's sorry that she has to be with me. She says she knows i don't want her. In the meantime, I honestly am doing good to get myself out of bed and dressed each day. I don't know how I've managed to take care of her needs. I feel like I'm in a dream or something. Nothing has feeling attached to it. That's the only way i can describe it. I don't think I'm capable of caring for her, yet i can't imagine putting her somewhere, especially with her telling me she doesn't want to go. I'm not even sure what i can really do. I don't have guardianship of her. All I have is medical POA. It's all so confusing from one side to the other. But, as you said, i also have a responsibility to my husband. Thank you again for your response. Each response helps me to bring some clarity to this situation. I really do appreciate and love you guys for taking the time to listen and respond.
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You are strong.
But you do not need to keep carrying every family member.
It takes a different type of strength to stop & carefully put down what is not yours to carry.

You are generous with your time & kindness.
It is not an infinate resource, it can be depleted.
Keeping time & kindness for yourself is not just OK - it is crucial.

What would help you TODAY feel calmer? Can you name three things? Being outside, walking, a warm bath, music, time with pets?
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perturbed07 Jul 2021
Thank you Beatty for the kind words. I hope to be able to find enjoyment in something again. Right now, nothing feels good or right. But, I hope that soon something will feel normal again. In the meantime, i could take things that I did love to do, as you suggested, and try them. I really like to watch birds and nature in general. Maybe I will try that today while my husband is home and can watch mom for me.
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Dear Perturbed, I second the previous comments, but this is a different approach. Your husband ‘stands by me no matter what’. He is a martyr, which isn’t always the right thing to be. It might be more helpful if he backs you up by putting his foot down and saying ‘this can’t go on’. A bit like ‘’I’m sorry to hassle you, but my accountant says I simply have to chase up all the debts’.

Having someone to ‘blame’ can be easier than having to make the decisions yourself, particularly when you are the one struggling with FOG. Try talking to him about how to bring this to a close. It might help.
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perturbed07 Jul 2021
MargaretMcKen I do wish I had someone to just step in and just tell me that this is what needs to be done regardless of how I feel. I long for one of my brothers to help me think through this so that the decision isn't mine and mine alone. But, that is a long shot. One of them, who lives locally, took the day off from work that dad died, but then said he was just too sick to come over. So, he has not even been to see mom. The other one lives on the west coast and we live on the east coast. He has texted me and asked how mom is doing. But, he hasn't called her personally or spoken to her. She can still talk on the phone and loves to, she just can't really concentrate on what you're saying. Sometimes she responds to what you're saying. Most times she just talks about whatever she has on her mind.
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Perturbed,

I am so sorry for the loss of your dad. You have certainly been through your share of suffering.

You mentioned being ashamed. Please don’t feel any embarrassment or shame. No one has a ‘perfect’ family. Many of us have shared our experiences on this forum. You don’t have to share anything that you are uncomfortable with. Details of your past aren’t as important as planning for your future. Don’t be overly concerned about any past incidents that aren’t relevant to today.

You are fortunate to have a compassionate husband. He obviously loves you very much. You deserve to be happy with him.

Please speak with Council on Aging in your area and a social worker to help you plan for your mom’s future care.

Wishing you peace as you navigate your way through this difficult time in your life. Take care.
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perturbed07 Jul 2021
Thank you for your condolences NeedHelpWithMom. Thank you for the information about the Council on Aging. I do appreciate your response.
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You post from 2016 is still up.
https://www.agingcare.com/questions/how-do-i-help-mom-202925.htm

First, sorry about your Dads passing. But please try and not feel guilty. You had a right to be mad. He only had 2 things he needed to do for you and he felt getting back at the neighbors was a priority.

Now time to get a life. Once you see how your parents stand financially you can make plans. Place Mom. Sell the house and use the proceeds to place her in an AL or Nursing facility. When the money starts to run out, apply for Medicaid. (Ck with AL to see if they allow Medicaid at anytime) If she has enough money you can place her in AL and selling the house will help keep her there.

There is only 2 people you are responsible for. You and your husband. Tell your siblings there will no longer any caring on your part. Learn to use the word NO. My daughter is reading a very good book right now called Boundries by Townsend and Cloud. Because you will need to start setting boundries.
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perturbed07 Jul 2021
Thank you for your condolences JoAnn. I have been looking at AL facilities online. They seem really expensive and my mom doesn't have much money. Her house is probably not worth much either. I need to talk to the local places and find out more info as you suggested. Thank you for the Medicaid suggestion. I didn't even think about that. This is all new to me. I'm also struggling with placing my mom in a facility because I promised my dad i wouldn't do that to them. My dad, possibly realizing how much his health was deteriorating, put me on their bank account the week before he died. Thankfully he thought about that or it would have been much harder to pay his final arrangements. They didn't have any sort of plan for their passing and no will. Now I'm dealing with probate over my mom's house for her. It may be an easy process since her name was on everything. I'm hoping it will be. Given her capacity right now, my intentions are to sell what we can and put it into the bank account for her care. I don't want to put her in AL, yet I feel it may be best for her and me and I'm not certain my health (mental and physical) will allow me to continue anyway. I'm having extreme bouts of panic and depression. I am emotionally numb right now. Plus I have multiple health issues. Thing is I feel even more guilty because I'm 45 (as of tomorrow) and should be able to do this easily. I can't seem to feel anything at all though. I think it would be best for my mom to be around someone who is better able to deal with her emotional ups and downs. I feel she has many more years of life and i don't want to make those years miserable. I'm not even sure where she is on the spectrum of dementia at this point. I've read, but can't really discern. She can't cook anymore. She doesn't know what month, day, or year, or season it is. She has started to forget her sons names because they don't visit. She remembers my name. Since my dad passed she calls him by my nephew's name sometimes and his others, but then she is in the throes of grief. She talks about missing my dad, but she has added this tale about how he sat next to her right before he died and told her he cheated on her and he was sorry and gave her a medical bracelet of his. But, she didn't find the medical bracelet until after he passed away. He never wore it. It was on a shelf in their bedroom. I'm going over this not to say anything bad about my mom, just giving an idea of where she is at. She can't recall any phone numbers except 911, but I'm not sure she'd know how to dial it. She repeats about 3 to 4 things all day long and she asks the same questions about every few minutes. She checks all of her stuff frequently to make sure it is still there. My husband and I can't have a conversation about anything without her interjecting with something that is part of her repeat pattern even if it had nothing to do with what we're talking about. Yet, sometimes she may say a small something relating to what we're talking about. She needs help showering. It started with telling her from outside the shower what to do to now having to open the door sometimes and point out the body parts she needs to wash. I try to get her to do what she can on her own so that she still has some control. Plus, admittedly, I am a full on germaphobe and get really anxious when having to touch things i consider "dirty". I'm sorry I keep mentioning myself. I'm just giving an idea of where I'm at too. I have issues I've been working through for years that only my husband knew the extent of and how bad they have become. I've been too ashamed to let others know, even my doctors. Yet, here I am blurting it online. At this point I'm rambling. I'm sorry. Thank you for replying. Thank you for the medicaid suggestion as well. I really appreciate it so much. >hugs<
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