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txmaggie, I live in Virginia. Anyone else live in VA?
naheaton, I do go to the gym, but men are there too-not that I'm opposed to men being there! I don't go to church, but could do some activities there true.
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Ics My husband was always jealous of my being able to get out and take a walk on our county bike path but it was his fault to give up on activities and I did it for health reasons also. I also had to take a break from him and use to go out to our sunroom where the TV did not work very well because he always had to have it on and I liked to read and have peace and he always wanted to argue but would not listen to what I had to say though there were times I would talk back just to get him angery so he would go silent and then would do some things for himself and I would get a little peace,
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KarenP, that's what I love about Curves is that it is ALL women, and we face each other in a big circle that is a circuit. You know women, we chat in between exercising. I haven't gone for awhile cause I got burnt out after 4 years, but I didn't give up my membership, so I plan on going back.
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In reading so many paragraphs of stories I got lost, with all the names but I am certainly glad the panel spoke on feelings that our parents would be better off to go and not have to endure all the pain because the quality of life changes so drastically. I have been ashamed to even say that to anyone and have just been thinking about it, so I'm really glad I'm not the only one.

My sister is back in the hospital for the second time and now it's just me and my moms care giver however now I have to go sleep at my moms house (in her room in the recliner) nightly because my mom says she "feels safe" with me there. Of course she is constantly asking me to get this, get that, do this, do that, the entire time so I get very little sleep. My sister and her family live there with my mom, (that's an entirely whole nother story) but my mom still calls on me.....all the time....

My sister had gastric bypass surgery 6 years ago and now her colon is all twisted and is causing a lot of pain. Last time she went to the hospital, just before Christmas, her husband came and picked up their daughter and brought her to the hospital to be with her mom, therefore I had no help and had to remain at my moms house for 5 days and nights. When the ambulance came the first time, I'd just left there after staying there 4 days, turned around and had to go back for another 5. So while my sister was having a nice vacation in the hospital, I was pulling my hair out and just about going crazy as I was in the middle of trying to find another care giver for my mom. Thank God she has one that we both really agree on liking this time.

This time when my sister went to the hospital, they did the same thing said call Pamela and there I went again. Although this time I called the agency and got help for today, Sunday, I'll still have to go over there tonight @ 7 and stay the night again, and keep doing that until my sister is released. By the way, my sister never even called to tell us, I just called around 3 different Kaisers to find where, and if she'd been admitted. Her not being there puts a real strain on me as I'm already there for 3 days and nights already.

I just got notification that my mom was approved for Medical though, and that will be a relief for me because if I have to keep doing everything myself without help from my sister or her family, I will have to put my mom in assisted living. I have 2 sons that I'm still trying to get straight as well and I have to work with them too.

I've learned a lot from this forum though and as everyone says it's good to know that you're not alone and although every case is different, we all have the same feelings and that let's me know that I'm not totally losing it, although sometime I do feel like I am.

KarenP when you find time for yourself, as I hope to do as well, we will find time for those others as well. Right now there's so much on my mind with my mom, I'd just like to work it all out so that I can be as ease if you know what I mean.
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pamela6148, my thoughts are with you. And yes, even though our lives aren't exactly the same, there are a lot of similarities.

Again, I want to thank you all for all of your help. You have all been so kind with your words and intentions.

I know some of you have posted to my "wall." Well, guess what, today, for the very first time I actually found out that I had a wall! I will respond to each of you who took time out to write on my wall and sorry for the delay.

Today I actually feel better. I feel like I am in control and it is NOT a bad thing to want to do things without your mother. It is a normal, healthy thing.
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Good for you feeling better, Karen! :)

I write this to myself as well: some things we can control, and some things we can't. Those that we can (ourselves) we do. Other people, we cannot. It's easy for me to forget that at times, until I'm painfully reminded.

I think the hardest thing for me, (besides fear of the unknown) is dealing appropriately in a crisis situation. When I'm being asked to act quickly or make difficult decisions during a panic moment, I sometimes have a hard time knowing what to do in new situations. I grew up in a very volatile and abusive home, and don't do well during personally confrontational situations, either. They fill me with anxiety. Subsequently, I become anxious when anticipating a situation (fear). I lose my reasoning power, and clear thinking at times of duress. (That happens when dealing with my mother.) I've come to expect it, so now, have learned, and am learning ways to deal with her more effectively, and see her actions for what they are (also fear-based). She always was difficult to deal with, and I'm told by Physicians that she will become worse in times. We are seeing that, so have no doubt there.

What I am doing though, is getting counseling for myself, and surround myself with loving supportive people and good books. The feedback from this site helps as well. I am not the "bad girl" my mother says I am. She has a problem with multiple Personality Disorders, and I'm educating myself about those, and learning how to deal with them (mostly by distance). I love the distance from her! It's renewing and healthy for me to not be in the constant battle with her. Though I love my mother, I cannot be her caregiver anymore. Her bitter spirit and critical complaining is not good for me to be around. I am thankful that she now has a public guardian who deals with her. I am free to go back to living my life, rather than trying to live trying to please an unreasonable tyrant.

I resisted the court taking over, but now am glad it happened (for the sake of my sanity). I have governmental takeover of anything, most especially my own family. But mother was a handful, and her toxicity was damaging to my marriage, to the peaceful raising of my young son, and my own well-being. Why sacrifice myself any longer? I pray for mom, and hope she gets the care she needs, but know that the other person will have difficulties with her as well. Mom is only happy having her way, and that is not possible in all circumstances. She is cognitively incapacitated, and have many problems. I don't envy anyone having to deal with her. Dad escaped through Alzheimer's. Neither of us has to put up with her outrageous abuse any longer. Though I love my mother, and tried to do everything I could for her, my best was never "good enough" in her eyes. Nothing I did pleased her. I am feeling somewhat relieved to have someone else on the "hot seat." We'll see how things go...from a distance.

I, too, have been helped through things from this site, Karen. Hope you find all the tools you need to navigate the difficult situation you're in. May God guide and bless you!

P.S. Just for the record: I do not advocate to ANYONE that they obtain guardianship. It is a last resort, only. You won't like the results, on the governmental intrusion into your family. We have learned the hard way. We also had no other option. Obtain POA if at all possible for your loved ones, well in advance of a problem. (I realize that is not always possible, as well.) Take care!
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Karen, I'm glad you mom is getting treated for depression. It's possible that she isn't on the right antidepressant - not all of them work for everyone.

Your statement, "I am at the point right now where I truthfully feel I could hurt her or me because I cannnot take it anymore" concerns me.

I urge you to see a doctor for yourself and ask if you may have depression. You also may want to see a counselor about how to work through the guilt you feel with your mother. She knows how to make you feel guilty. If she has dementia, a doctor can help with that, and you can find ways to get help for her. However, if sounds like she gets along fine with others and doesn't have memory problems. One thing to ask yourself is how new this behavior is. Knowing that will help a doctor with a diagnosis.

It's easy to tell someone they don't need to feel guilty, but it's hard for the person with the feeling to drop it. Please seek some help for yourself, as well as your mother.
Carol
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She's lonely. She's drugged. She's depressed. She's older, wiser, and afraid. She also likely spent alot of time when you were little wishing to God she had some time to herself. But- she had a child to raise--a 24 hour job. Her dreams and wishes set aside to be a Mother. Now, she is reduced to being a nuisence in your living room that loans you money, and needs your Love, and you resent that. Man, it sucks to be you. (Hope your children are prepared when it's their turn to "deal" with you.)
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Lilly, How long have you been a caregiver? Does your mother also have the health issues such as Alzheimers, Parkinsons, etc? These diseases steal the loving parents we used to know. I'm happy you adore your mother. I love mine too but she is driving me crazy. The role of a caregiver is not an easy one and a little compassion for fellow caregivers goes a long way.
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Hey--tit for tat dtflex......How about some compassion for the person you are caring for? You receive back what you put out. As long as this woman is putting up a firestorm of resistence and resentment, that's all she will create in her experiance. We are here to help each other, not cater to others with politically -correct, warm and fuzzy, enabling rhetoric. No one can drive you crazy...you choose with every moment how to respond. BTW: 6 years now, and Alzheimers.
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It appears that you feel you have to "entertain" your mother when she is with you at your home. Why not enlist her help, make her part of the solution, part of the family? If she can't move around very much, she could still fold laundry, perhaps she could do the laundry for you, maybe even make an easy lunch or dinner for your girls and you. Put on some music she likes, maybe you can sing together (who cares if it is on-key!) when you come down, or even dance! Make it a fun time without words.

I do think you still need to put some limits on the every day visits, but if she is willing to help you out with some tasks when she is allowed to come, she could relieve some burdens and make your tensions much less as you concentrate on your business.

My Dad is slightly older than she is (80) and it is just impossible to get him to volunteer or go outside a small circle of family and perhaps a few friends. I don't understand this, but it's them at their age, and they aren't going to change now.

Good luck to you. Take good care of yourself, your Mom would want you to.
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Lilly, congrats if after 6 years of 24/7 caregiving you can be so optimistic. Compassion is the reason I do everything for my mother who is very unable. Yes she is very fiesty, but fiesty in the ways that will cause her harm. I will agree to disagree with your comment that we aren't here to cater to others. My mother is unable to care for herself so yes I will cater to her needs of being bathed, dressed, fed, taking her to doctor appointments and places to get her out the house. None of these tasks are accommplished easily with people with physical and mental impairments.

Good luck on your journey since you are evidently traveling a different road than I.
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Lilly, I never said it sucks to be me. What I did say is that I am having a difficult time dealing with all of the things that are happening to my mother, as are a lot of other people. If I did not love my mother as much as I do, I would not be feeling guilt. Thank you for your support.

Dtflex, well said!
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Lilly,
My goodness, why so judgmental? Not everyone has fairy dust sprinkled over them and their families. Compassion is not defined by being a doormat and not seeing the reality of what is the fight and struggle. No, you do not always receive back what you put out, especially when dealing with a loved one who has deficits in cognitive skills and physical illness. All of our situations are different. You are correct when you say no one can drive you crazy - but sometimes the old tapes are difficult to tear apart. I have compassion for the person who is not able to say no, who is juggling a job, children, husband and a sick parent or two. The role of a parent is to guide and nurture their child to spread their wings and leave the nest. It is also a choice to have children. You should make the sacrifices and nurture and do all the "motherly" tasks when you are a mother. But let's be real - not all mothers are the Norman Rockwell version of a mother. Just as all adult children are not made for the care giver role. So what if she is annoyed (with) and resentful of her mother. Those are her feelings within the context of her experience. She (Karen or dtFlex or whomever) is entitled to have her own life. There is no need to put down Karen or Dtflex.
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Let's face it. sometimes it does suck to be one of us. We love our moms and dads and spouses more than anyone could imagine, more than even we knew we loved them. We dig deep and when we run out of energy or hope we somehow keep going. Our loved ones will never get it and we need to figure out a way to continue on without: a) running away b) killing ourselves c) killing something or someone d) cocktails at 6:00am.

Oh wait, it's almost 7am my time. I'm off for a beverage before Mom wakes up!!

Be good to yourselves,
Bobbie
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I know that when you get really old, they say it's like a second childhood. But when you're raising children, they DO grow up, they DO become independent and most of them DO move on with their lives. My husband and I were looking forward to the 'empty nest' so we could have privacy again. Remember privacy? But for you that are living with parents that will NEVER become independent again, NEVER grow up, I feel for you. It's not fair to make the correlation between raising healthy, active children to an Alzheimers/dementia affected person. I understand what Lilly was trying to say, but it's different. The commitment may still be there to take care of the parent/husband but the circumstances are greatly different, with nothing to look forward to (like with children) than for it to just stop.
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Hi Karen! I thought someone had started writing about me when i first started reading your story! I am 45 years old with 2 young children and a 20 year old daughter. My mother had a stroke in 2003 and my dad died in 2007. My mother lives 2 hours from me and cannot drive due to the stroke. The stroke devasted her life. She chooses to live 2 hours away. She lived near my sister and I for about 9 months and it is draining! DO NOT let anyone guilt you into anything! You can only do what you can do! My sister dumped it all in my lap after only 4 months. At the time, she had no children and worked 8 hours a day. I worked 12 hours a day 6 days a week with a 6 year old, 9 year old and 17 year old. My mother lives on her own with caregiver's that come in daily, do her grocery shopping and take her to the MD and I thank God for them! You have to take care of yourself and your children. Your mother is responsible for her. Is she physically able to do these things? You can also contact Senior Companions through your local Dept of Social Services that provide Seniors at no cost to visit and help mom with house work, or just to be a companion to them at no cost. I hope this helps. I feel your pain through your written word. I understand the desperation of not knowing what direction to go in next. Take one day at a time. Plan tomorrow that more time will be spent with the kids. It becomes less overwhelming. :)
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Dear Karen, you are courageous to ask for help. It must be very tough to be your mother's sole care-giver. I share the responsibility with my 2 other sisters, and it still is very difficult. I suggest that you sit down with your mom and make out a calender. So she knows the days she will visit you and then work out days that she will do other things; like volunteer,or go to a senior day program etc. Structure and a schedule may help her to feel useful, so if you give her something she is capable of doing, she may not feel so lonely anymore; the calender can be the mediator with your schedule, so guilt can be place on the date and not you. I hope that you find something that works for you and your family.
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Lilly, I would be interested in learning more about your particular situation. Have you been providing 6 years of 24/7 care to a parent/spouse suffering from dementia? Is this person in your home or are you "on call" 24/7? Do you have any other family/community support? Are you still raising children? Is the person you are caring for docile or feisty? Appreciative or abusive?
Bobbie, you made me chuckle - so what REALLY was in that 7am beverage? :-)
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lilly, Ics took the words right out of my mouth please check into all this she has wrote it would help you alot i know how you feel my friend is going through the same this.. may god bless you sweetie
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Lilly, you sound really tired and resentful. Not trying to be judgemental, just trying to say I have been in a similar situation and been overwhelmed, resentful to the point of screaming and throwing things. It is ok to feel this way. Please take care of yourself! I can't speak for everyone but I dare say we have all had the same feelings all of these caregiver's have had at one time or another. I am glad I found this site because at the time, I felt like I was the only one trying to take care of it all and survive with no help from sibilings!
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Karen, the guilt trip is very common. But you don't have to feel guilty. You have done your best, and it's only natural and NORMAL to want some time to yourself and with your kids. Your mom is much like mine, it sounds - using guilt to manipulate you instead of taking some responsibility for her own situation. If she wants to sit at home and be lonely, that's her choice. If you are certain that she's healthy, and her physical needs are met, you do not have to be with her every waking second.

It is very hard to deal with this kind of guilt - I know, I deal with it too. But you need to take care of yourself too, and that is your first responsibility. It's like on planes - they tell you to put on your own oxygen mask first, then worry about your kids or others. This is not being selfish, it is being sensible. You cannot be expected to work 24/7 at any job, and that includes your parents.

Yes, you are lucky she's still with you. But that does not mean you have to sacrifice your sanity and your kids' needs just so she won't be bored.

Take care and cut yourself a huge slice of self-compassion.
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Again, I am amazed by all of the wonderful helpful comments here.

alixcase, thanks for your kind words.

Mo, I wish I could come up with a schedule with my mom, but everytime I have mentioned coming up with a schedule that takes care of her need to see me a lot (understandable) and my need to take care of a house, try to get work etc, i.e time away from mom too (equally understandable), she resents the fact that I don't want to see her every day. She says to me, "Karen, if that's the way you feel (not wanting to see her every day), then I will go away. I won't come over your house anymore. You can be with YOUR family." Of course, mom is my family too. I would LOVE to have an honest and open discourse with my mother, but cannot. I have never been able to. If she doesn't like the subject or doesn't want to take about it, well guess what? It ain't happenin'. Sad but true.

I would love to say, "Hey mom, I know you want to spend eight, ten, twelve hours a day with me, but I just can't do it. It doesn't mean I hate you, it doesn't mean I don't love you, but I also want to be able to have some time without you so I can do things that I want to do too." But if I were to say that she would be offended. I would love to be able to communicate honestly with her, but it ends up with her angry and unhappy, so there is no point.

I feel so very sorry for my mother. She is so loving and kind and compassionate, but she just won't talk. I am not the only one who feels that way. She just sits there and stares into space waiting for someone to say something to her so she can talk. It's like there is a padlock on her mouth which can only be opened by other people. I want things to change. I really do.

I think I am FINALLY (with all of your group effort here nudging me towards the realization) accepting that what I want and what I have are two different things. If I had a brother or sister or we had any family at all, my mother would have other people in her life besides me, me, and oh yeah, me. If my mother would be willing to go to the senior centers like other elderly people do, and would be willing to socialize with them, it would be great. Not gonna happen. Everytime I mention her doing something on her own, she says, "Oh Karen, stop pushing me away. I feel like you don't want me." This after me spending five days a week with her. Realization of how ridiculous she is being? Not going to happen.

I am giving myself the freedom to love my mother, take her to all of her appointments (38 within the past three months), see her the majority of the week (four days is a majority), and not see her the minority of the week (the other three days). I am going to spend as much time as I can with her, but I have to be happy too. Again, I would prefer to see her one to two days a week. She wants seven. I"ll settle at four. Yeah, I know it sounds crazy.

I am not going to push my mother to do anything anymore without me. She doesn't want to be pushed, even though I was pushing to give her a social life. She loves people but won't talk around them too much and surely won't do any activities without me. But I am going to live my life both with and without her. I was thinking more about her anger at me talking to her about taking my daughters to the movies without her, and I realized how crazy she must feel inside to resent me spending time with my own children. That's sad.

My mother is near eighty. I don't know how long I have with her, but I do want to see her and love her. I also want to do things without her. It's only normal...
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dear karenp.
i feel for you , you are seeing and feeling what your moms feelings are . i would be hurt too if my daughter doesnt want to see me everyday . you are all she has and she likes to be in her old home which u are living in it .
i dont go anywhere either , sit inmy home 24-7 with my 86 yrs old dad . yes ill run to store or once in a great while i ll go out if my daughter stays here with him . yesterday i told my daughter i need to get out ofhere and i left for a long drive about an hr .
my dad doesnt talk either if he is talkin its all jumble mumble . today he spoke a lit bit i ask him whats wrong dad ?
he said im homesick . his home is in fla . he s here indiana with me .
i told him i ll take him down there one day when he feels up to the trip . dr just called and said dad has uti again so i need to run to cvs and pick up his meds .
dad is all i have and i enjoy havin him here with me .
you need a break and your daughter could sit with ur mother for a while . after all it used to be her home and she s home sick like my dad is .
u describe her life while back and its not a happy good life , of course she doesnt say anything cuz her whole life is not something she wants to talk about . not a happy memories .
let her stare off space and you go do what you want to do .
she is not required to be watched over 24-7 . my dad is , i cant leave him here alone .
maybe it makes her happy she can sit in ur house while u go run off , unless u trust her alone in your home ?
its normal to godo what ya want cuz if its not 24-7 care then u better go do it now before it becomes 24-7 ...
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I think all of these emotions you are feeling are very normal. You want to spend time with her but you dont want it to consume your life. That is very acceptable! Your mother can either understand or not. The choice is hers. Some people like to be miserable. My question is how/why are the adult daughters/sons with families of our own, responsibilites etc, responsible for bored, lonely family members? They have choices. Now if they have dementia, or have disabilities, I do feel it is my place to help my mother be as comfortable as possible and live the best quality of life she can with her disabilities, but I have to consider my family, job in the process. This may be in the form of assisted living, nursing home care, or in home care givers. Every family and every situation is different. You have to be able to live with the decisions. This is also different for everyone. Some parents seem to be manipulative, I did not realize this until I started reading these articles. Thought it was just mine. You mother needs to decide to make herself happy. If the MD has ruled out any mental, psychological issues. She may just be difficult. You will probably need to decide how much time to allow each week you want to spend with her and tell her that is what you have available. It is like raising children. You would not allow your children to manipulate you in that way, so do not let your mother. Remember life is a circle, infant, child, adult, child again. Hope this helps! KDT
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Karen,

Remember - you are NOT responsible for another person's feelings. I think you should tell your mother what you have written in your latest post. Again, it is back to what you are permitting to own (relative to your mother's comments). You need to grow some brass ovaries, and when she does the pout, sigh, whine, moan, crying and pity-partying, just let her know that you can appreciate how she feels - however, you need to take care of certain things during the day, and you hope she understands that (even though she says she won't). The emotional blackmail technique she uses (well, if you don't want to see me on MY terms I will go away) then say I am really sorry you feel that way. I will certainly miss you if you went away, but I will call you to check on you. Who on earth is going to spend one moment with her if you are not around??? Do you think for one moment that she will not want to reconnect with you? It is sure worth trying! She will get over her childish behavior pretty quick. Remember - brass ovaries!!!
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Worth to remembering a tip I learned from the Love and Logic institute. they have Books and DVDs about child rearing and parenting. When your otherwise agreeable child gets to be a teenager and suddenly you've become not a loving parent, but their jailor... the term the L&L folks use is "dependency resentment." The teens have the instinct to be free, but unforuntately not the wisdom nor the resources (not to mention the legal right) yet...They'll thrash out at the parents, school, etc.

Same with seniors caught up in nursing home or stuck at home with caregiver all the time. I'd feel the same way.
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Frances you are so right on I would just state that I can not be with you all the time and let her be upset she will get over in time.
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When I got to my moms house last night she asked me "WHAT DID YOU HAVE TO DO THAT WAS MORE IMPORTANT THAN TAKING CARE OF ME". I said "TAKE MY SON FOR A JOB INTERVIEW". Can you believe I'd been there all day, left, came back and still got fussed at. But through reading all the forums I have found it easier not to take is personal. And that makes me feel a lot better.
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Karen:

Sounds like spending time with your mother is a full-time job in itself. All that emotional blackmail -- the guilt trips your Mom sends you on --, will continue to suck the life out of you until you put your foot down. Rewinding the tape of your existence every 24 hours and realizing you have nothing to show for it except spending 4-8 hours every day talking to a wall doesn't do much for anyone's self-esteem. Particularly when they have goals (dreams with deadlines) to attain; like starting your own business.

My suggestion is this: start it now, and make her a part-time employee. She'll get to spend time with you while at the same time making herself useful. Make her an offer she can't refuse: either that or she can "veggie" at home waiting to see if you have time to drop by to check up on her. No doubt she'll start seeking company and entertainment elsewhere, as you have suggested on many occasions. Let us know how it goes, especially the new business.

-- ED
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