So, It's been a really long time since I've posted here. I'll try to summarize. I am caring for my Mom with Alzheimer's, she lives 5 minutes away at a MC Home, plus I have another organization that helps me manage her care, decipher doctor visits, help with doctor visits etc. So within the last year Mom went from working out at the gym 3 times a week with a trainer and outings several days a week to barely walking with assistance from a rollator and having trouble un wrapping her fork and knife from the napkin at dinner. She has had a fairly steady decline both physically and cognitively. (They treated her for high ammonia levels, but that has not re-occurred and in fact recent blood work results were good across the board.)
I visited with her on Saturday during lunch and she seemed a little more confused, she kept folding and folding her napkin and I had to cut her food for her. Sunday evening they said she had thrown up several times and sent her off to the ER to check for GI bleeding. The ER was NOT fun, and very traumatic, they ran all sorts of tests and everything was fine, sent her back to the MC. Yesterday she barely ate and today she stayed in bed all day, only sitting up and drinking some soda when I showed up this evening.
She hasn't had her medicine since Sunday, she was very vacant and non verbal today, almost like a stroke maybe, I really don't know what's going on. However, they have decided the next step is to call in Hospice to help out, get her a hospital bed, and see what other measures we can do for her comfort. No one is suggesting this is end of life, but if she's not eating or drinking and can't take her medicine, where does that leave us?
I am now in unchartered waters and have no idea what to expect. It's quite depressing to see her so confused and scared. She hates when anyone touches her, wimpers like she is in pain, but is unable to really communicate what might be hurting.
Anyway, thanks for reading. Feel free to share your experiences or advice.