Trying to cope with the decision of accepting hospice care?

👋..
You are an amazing caregiver.
You will be rewarded for loving your family trust me!
It doesn't get easier just look at this in the eyes of God. Take lots of viedo because you're going to miss their voices. Give lots of kisses 😘 have someone take the pictures of you guys together.
Heaven is an awesome place to relocate to.
Visit the experience of Heaven on YouTube by Kat Kerr ..your life will change.
I had the pleasure to taking care of my Auntie and when I was in it was sooooooo hard because I never had this type of responsibility but the Lord helped me in everything !!!❤.
It takes time but if you trust God he'll walk with you always 💯 You may not see him but he's right there 💯.
Praying for peace and favor for this journey 🙏 it will not last forever. You are loved.❤

My father was given 2 to 4 months to live and placed on hospice. He lived another 21 months and it was an amazingly positive experience. He loved being doted on by the hospice CNA‘s and nurses and really enjoyed having a companion come in for regular weekly visits. He did not take advantage of the spiritual guidance as my brother is a minister. I learned quite a bit about hospice during this period and cannot say enough about how positive the experience it was. The nurses and CNA’s were able to care for my father in a way that I never could both because of their training and because of their experience dealing with people with failing health. My fathers dignity was maintained because I did not have to take care of him personally, in other words, bathe him, clean up after his messes. A couple of things we did that might be helpful for you.
First, we placed my dad’s hospital bed in the living room, which was the center of our family life. This gave him the opportunity to be involved in family life and not miss out and feel like he was a abandoned in his bedroom. We altered our traffic flow and lifestyle to meet his needs by keeping the house quiet when he needed to rest and inviting friends and families over when he was up to it.

The other important thing we did was to give him goals. The goals were mostly events for him to look forward to. For instance, family members’ birthdays, holidays the family celebrates, a friend visiting, a trip to the zoo, celebrating milestones, etc. we kept the goals simple so he could manage with his vascular dementia.

Hospice is incredibly helpful and not everybody who is placed on hospice stays on hospice. There are many people who have been taken off of hospice; in fact, Medicare requires the doctors to do regular check ups to see if the patient still qualifies for hospice.

I recommend that you sit down with several different hospice providers in your area and get an understanding of what the services they provide are and how the services are helpful for both your husband and you and your family. Medicare covers the cost. Hospice is about providing comfort and care.

You are making the decision, and the pain is a natural part of it. Unbelievably as it seems, such feelings are coping. I too had a good experience with hospice for a relative. Bless you both.

The feelings you are having are normal and you are an amazing person and caregiver. You have given your time and energy to do what you could, but hospice is the best route to go now. While it is a very difficult decision as emotionally, physically it will be the best. You stated that your son and you are now unable to do some of the things due to him being dead weight, which can cause you or your son to injure yourselves while caring for your loved one.
You are so right it is God's will and while it is a very difficult situation, let God help you. Maybe you should see a priest or pastor for some counseling especially during this time as they have a great ability to help you deal with all the emotions running through your mind.
Best wishes during this very stressful and emotional time. Hospice is the right decision, I have experience with them and I can say it was a welcomed and very good experience.

My husband has Alzheimer’s and COPD and I had been told for a while that I should check into Hospice but I felt that was me giving up and turning loose of him. Jim ended up in the hospital and he didn’t know where was or why. He continued to rip off his monitors. He was so scared there. I finally reached out to Hospice and the people I talked to told me he would not have to go to the hospital or doctors, I didn’t like, anymore and one doctor is in charge of his treatments and I have the finale say on his care. He is happy he can stay here with me and they will check on him a couple times a week and Volunteer’s will come and sit so I can leave to shop knowing he is in good hands, and the Nurses and Doctor are just a phone call away. We have pain meds if he needs it and now that I am not so stressed about making sure he is OK, I can sit with him when he asks me to because I know his needs are being met.

Pitchbb: May God bless you on your decision.

Just because Hospice gets into the picture it is not necessarily the end or a death sentence. None of us can change the inevitable, only make the path as comfortable as possible. My mom has been receiving hospice care for going on 2 months. I have posted here in other places. It has been both a blessing and a curse. The expectations of family members were not made clear and they have not done their job as well as they should have. Mom has developed sores on the bottom of both heels in spite of those areas not even touching the bed. She is in bed pretty much 24/7. The thing with hospice though is that they may be able to arrange for some equipment that would help lift your husband. I would only suggest that you investigate more than one hospice program. And if they are going to assist with personal care, go to Walmart and buy duplicates of bath towels etc so that you aren't needing to do laundry every day. Good luck....

Pitchbb...I forgot to add this in my post.
Keep in mind there are no timelines...
My Husband was on Hospice for just over 3 years.
I would not have been able to keep him at home and care for him the way I was able to if it had not been for the Equipment, Supplies, Support and help that I got from the dedicated people from Hospice. From the Nurses, the CNA's the Volunteers and everyone else that helped make his last several years "easier" on me.

Just experienced this a few months ago - 95 yo mother was placed on hospice. Although she 'knew' she was on hospice - she made the decision to go on it - when she talked about the future, it was always outside the parameters of hospice. With that attitude, I was told that it was possible she could be on hospice for years, perhaps even rally. So, going on hospice isn't always the ending. However, I DID find that hospice care was many degrees better care for her - once the right hospice place was found. Just because a place says they provide hospice care, doesn't always equate to the care actually happening...especially when you are not present. Making that choice is critical for the outcome and care.

Would it help any if you had a Hoyer lift or a similar device so that you could safely move him from the bed to a chair? He can qualify for that under Medicare if he is bedridden. Not sure what, if any, effect that being on Hospice may create.