Are there any suport grooups online, or even in the community? my zip code is 32817, I want to get as involved as possible!!! GOd sent u
want to be apart of any and all support groups u may offer, online would be awesome as I am disabled to, my mom has PSP, which is very rare.
The desease is extremely progressive, and causes of death are falls or pnewmonia, she is on a thicket diet, and is very impulsive but in full control of her faculties!!!!
which sometimes I wish wasnt so...as she realizes how bad things are going to get and are already. I want to participate in helping others and maybe even starting my own support group, for a legacy to mom....her condition was also very hard to diagnose. All I can to is keep her calm, safe, and secure, but the facility she is in, is making major health mistakes, thank God I caught a few, but I do have my own life and need to take care of myself in order to take care of her!!!!! add me to any and support groups either online or not hopefully not too far from me as I live in the 32817 sip code, I beg of u to help me keep calm and serene myself, so I can continue to take of her and my family
Has any new research been done yet on PSP that could help mom, exept for levopeda, anything to help her stay calm and at peace, like a support group?
I have legal assistance, but they must be very busy, because I am having a hard time getting responses, etc, moms life choices are next..
thanks so much in advance, God must have sent u to me!!!! thans so much in advance