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I have attended two support groups for PD caregivers over the years but neither have addressed my need for emotional support or provided opportunities to articulate and address the emotional issues that naturally arise. One group focused mainly on problem-solving behavioral issues, which was useful for some who were grappling with severe dementia. The other used a positive psychology approach of encouraging us to look on the bright side of our lives, which I found a total waste of time. I would like to create a group where people feel free to be authentic and real, safe to-honestly describe how they feel and address failures as well as strengths. They would, of course, have the gift of others who can empathize with their experiences and share coping strategies as well as concerns. If you belong to a support group that actually feels supportive, I would appreciate advice on know and where it was formed, and what has been necessary to maintain interest and investment in the group. Thank you!

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The support groups vary. some are great some not so much.
I found a support group for spouses. I like it a lot. The challenges faced by a spouse are different than the challenges faced by most other caregivers. The fact that entire relationship changes causes the dynamics in the marriage to change.
Contact the Parkinson's Organization and ask about starting a group in your area if there is not one that will fit your needs.
There may be classes you must attend to become a leader of a support group. But they will let you know about all that. Or they may be aware of a group that will better suit you.
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Reply to Grandma1954
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ArtLover Sep 2, 2018
Thank you. I had been attending our local Parkinson's Organization and believe there is a new regional chair so now would be a great time to contact them. I especially value your idea of limiting the group to spouses because our losses are episodic, yet continual. I have experience in group leadership. I actually started the Greater Hartford Lewy Bodies Support Group before my husband's diagnosis shifted to PD.
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You can always try to start a Facebook group. Many caregivers cannot leave their loved ones and may appreciate a Facebook group more than an actual physical meeting.
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Reply to Ahmijoy
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ArtLover Sep 2, 2018
Great idea. Thus far I've been a Facebook responder but not an initiator. I value connecting with local people face-to-face in the hopes of sharing actual supports, but I respect and honor your reminder of how difficult it can be to get time away from home, and how precious such time can be.
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