What real reason(s) does Medicare have to exclude spouses from caregiving?
Adult children as far as I know can live in the same home etc. and be eligible. Why can't a spouse? They are checked on the care they provide, why can't we?
I don't know about you, but my husband is terminal and needs a _lot_ of care. I don't work outside the home because I am needed here. I look at the list of services my son could be compensated for by Medicare, and I know I pretty much do *all* of them, and have for over a decade. For free, and while loosing my own access to Social Security Disability should I become disabled myself.
I am not looking for a freebie, I want to be treated equally.
The same checks to avoid abuse could be applied to us. I would be fine with that.
I know there is an option of disability that might cover me, but the payments are much lower, in line with someone who has never worked.
I do work.
I am just neither paid nor recognized for it. I am just expected to do it, and like most by far, I would never deny my spouse all the care I can possibly give.
I don't have to tell you that caregiving is a lot of work, and that you are on the clock 24/7.
I would like to open a discussion on how to challenge what I see as a discriminatory rule.
I realize that people will immediately start talking about childcare, and that parents aren't compensated to care for their infants. children grow out of this intensive type of caregiving in a relatively short amount of time. They will over time become more able to do things independently.
Caregiving for disabled adults can span decades and is often without the expectation of functional improvement. That is why they are on Medicare in the first place.
I know I am definitely not the only spouse going without the same financial and social securities and compensations as anyone else would have if they weren't married to the person they are caring for, because we would neither turn our spouse away, nor pretend our marriage has failed.
I feel the government is counting and banking on us providing the same care -they would pay absolutely anyone else for- for free because we are both the first people asked for help, and the least likely to ever say no regardless.
What are your opinions, and how would we go about challenging this?
Where do we start?