My dad has already been on Alzheimer meds for several years, but his main symptom has been pretty standard forgetfulness and short term memory loss. Recently I am seeing a bunch of other symptoms that have me wondering. I will talk to his doctor of course, but right now we are in a whirlwind of ureteral stent placement and following up on a positive lymphoma biopsy, so it might be awhile before I can get back to other stuff with his doctor....
Some of his symptoms are classic for Parkinsons or Lewy Body, like a markedly slower walking pace all of a sudden, frequent loss of balance, frequent spacing out in a chair and falling asleep during the day and sudden jerky movements.
He has not had any "specific" hallucinations, by which I mean he isn't seeing people or animals or such, but sometimes he will jerk his head suddenly like he saw something, and he has told me about a black patch that comes into his vision, then disappears. Does that sound like a hallucination or more vision related? (He does have macular degeneration.)
The cluster of symptoms I am most curious about are the jerky motions that seem related to stimuli. When he experiences certain pain, his whole body will often jerk in weird ways. And he seems to react to sounds almost as if they were painful. He will grimace and flail if there is a sudden loud sound for example. I have heard about involuntary movements, but haven't been able to find specific information about them in relation to stimuli, so I am curious to hear from people who live with this condition from day to day.
And... even if he does have Lewy Body, does it really matter if he is already on dementia meds? Is there anything different that can be done for it?