Hello All. I’ve been on this site forever, throughout all the trials and tribulations for the past 8 yrs of my mother’s health through Afib and congestive heart failure. I may have mentioned that my mother also has invasive squamous cell carcinoma. My mother is on Hospice care now for a month - but only for end stage CHF. While it is the end stage, she is still doing okay thanks to the comfort care of hospice and their wonderful people. Since my mother is no longer treating with doctors, the squamous cell cancers on her body have been going wild! It’s almost as if she is being eaten alive. Before hospice, we were at the dermatologist office for removals of these cancerous cells every month or so. It became very involved with my mother having to spend the day in surgery while they dig into the cancerous areas to make sure they got all the cancer cells from the area. And then biopsied. Even from her eyelids!
I was so relieved when she was accepted into hospice because it meant a break for me from going to constant doctor appts for her heart and also hoping that they could keep her comfortable with the skin cancers. But because she is not on Hospice for her skin cancer, even though it may be affecting her general health, hospice won’t really do anything about the growing tumors on her body. This is starting to affect my own sense of worry because they need attention. But I’m not sure I can 1) get her out of the house due to stairs and her loss of some mobility and 2) see her spending the day at the surgeon having multiple tumors tended to, having them cut out and then them digging around each area to have the surrounding areas biopsied. Then stitches etc. Then the wound care afterward.
I’m not sure if anyone has had these challenges. I try to take this day by day, but I don’t know what to think about just leaving these growing tumors for whatever time she has left. I can’t really make that call as to how much time, but I think she will be here for a while. She is uncomfortable and I’m even thinking she is developing a “smell” about her from these tumors. I just don’t know what to do. Whether to subject her to all-day surgeries again or to just let things be and accept this is part of her journey now.
I will take this up with hospice on Monday. But just wondering if anyone had to deal with this sort of dual- diagnosis towards the end and what should be done - if anything. While CHF is life-ending in the last stage, I don’t know just how invasive her skin cancer is. She was never tested for metastases. Hope I didn’t make this too confusing. Too much thinking going on.