Client/Hospice at Facility, & I am her private caregiver. *(Patient) "PT"
This is a very fractured family. in ways that I am still finding out.
I cared for her for ( what I thought was 6 months, & 8 - 9 mo.
the SISTER, decides to show up (the one, where the biological mother died at the birth of her, arrived without notice today)!
My "PT" has either been in a Hospital or Long Term Rehab/Hospice care since May 30, 2014.
SISTER never calls. No one ever calls. NO family and there are 12.
My husband and I are her only advocates.
I am there as you know many hours a day x 7 days a week.
Hospice became involved 2 wks ago. Hard for "PT" to accept.
Two weeks later, and now, she is not swallowing foods, & they are keeping her comfortable, without the use of morphine.
"PT" asked me & told me that at the very beginning. "If i ever get to Hospice, you know what I need, "they stated" they have her on lorazepam, and she stated that morphine gets her dreaming and thinking crazy things, so I have told them this, & they have provided another medication,a very low level.
She started rejecting her medications. 10/1/2014
CHF (2005), COPD (2009), Ulcerative Colitis (2001)
The body has just warn out. This is a woman, that has been "more than difficult each day".
Today, I was with her, & she and I understand her both in communicative and non communicative ways.
Then, "the SISTER" the sister that tried to take her freedom from her 4 - 5 years ago by finding an attorney and making her incompetent stopped by.
The mood changed, all of the sudden, my "PT" was wide awake, had wild eyes, very weak, off and on dozing, and the sister (75) just would not stop talking, and stated many negative about many things in front of me. Made me sick to hear. Stating this to a my "PT" her sister.
I was in the middle of changing her, and it was not pleasant. I did of course a great job, and left her very clean, and SISTER said "are you trained for that". I have been warned of sister.
Then I wanted to respect their privacy, however "PT' had not eaten, and she said, go ahead and feed her. Obviously sister was not involved enough to want to feed sister. (my client).
Well, then another couple came in, & for my "PT", this was too much, they were all talking, & I was silent, just brushing her hair, etc. Sister said "give her some space"? I said to SISTER, this is what your sister and I do each night at this time. She has only known me to be here for her, and we have established things, and it is very comforting and warm. (She rolled her eyes), and said P.L.E.A.S.E. (give me a break).
Hearing is the last sense to go. Why do people talk in front of the dying?
my "PT" is number one. I have been doing this everyday, and some days just like caring for my live in parents becomes exhausting. I do it because I love to make a loving difference.
SISter made it a horrible experience, Horrible. First off "Pt' is not cognitive, impaired, non ambulatory and Hospice downgraded her, and that was before she was on any medications. They are not doping her up, she falls asleep on her own, and wakes up in horrible screaming pain. I think her entire leg or leg(s) are in muscle spasms. Used to use "Lasi
Sister, tells me everything I am doing wrong. she hasn't called her since May 30, 2014, & she "Pt' refused to see her when she showed up in the hospital and was cognitive.
"PT": What are you doing here? SISTER:, to love you and to show I care.
"PT" said: Why, that means nothing to me, you tried to take my freedom from me.
"PT" said: That was a long time ago. SISTER: I KNOW You Forgive me for that.
"PT? said: How old are you. SISTER:. I am 3 you are 6. I looked at her strangely, and said, this is hard for her to understand, & of course I got"you are not in this family, you are not trusted, you are too protective of my sister, she is independent & can get a glass of water on her own, you do not need to sit & be with her, this caregiving is a waste of money" The "PT" would have said something but fell asleep. "she would have been furious".
"PT" hired me, has paid me every dime with a full invoice of each week, & there have never been issues. Apprvd. by cpa and ATTNY
I know that when the situation happened 3-5 years ago, my "PT" took her sister off of her will totally.
She started asking about that: My "PT" became really confused and agitated.
Sister said: Why don't you do something her right arm is shaking, & she must be cold. I said, no, she is not cold, the heat is on 74, & this is a condition that she has developed over the last 3 month's. (start of Park. D)
Sister said: Well why didn't you call me.
My response: I work for my client. I honor my client's wishes and after talking to my client. Never wanted me to call her.
FINAL: Sister said, YOU can leave, you are not wanted. "PT" screamed, kicked was fighting, SISTER shoved me out the door. Police escorted her out.