I had a very bad experience with hospice last year. They were pushy, rude, and told me lies. Totally threw me for a loop. When I got my psychological balance back, I asked a lot of questions of them...and they were not forth coming with me.
I say all that because I am starting to think Mom needs more than I can give her.
She is not eating enough to keep a bird alive. She is losing a lot of weight. Is barely awake for than 4 hours a day. Seems to have no energy. Walking down the hall is so exhausting for her that she needs to sit on her walker mid way...then falls asleep sitting there!
She cannot stand up without help. Her swallowing is becoming very difficult. Taking medication has graduated from pills in apple sauce...to crushed pills in apple sauce. Now, even that seems to cause her to cough and choke.
This has been going on for the last few weeks.
She has been tested for everything under the sun. If there is a test they haven't run on her...it's cause they haven't invented it yet. Nothing has turned up to explain any of this. Not UTI, no infections of any sort. Blood work came back..everything find. Thyroid test came back normal. Normal heart rate, normal BP, blood oxygen good. Everything looks good from a medical point....so...no explaination.
I am thinking all that is left for me is to keep her comfortable. But, do I even know what that requires?
What help does hospice actually offer? Anything mom might benefit from? I am sure Mom would be upset if she learned I brought hospice in....will they come in and NOT tell her?
Of course, if no good for her would come of it...then I won't pursue it.