My mom (age 72) has a rare disease called CMT that "eats" away at the muscles starting at the feet and moving upward. She also has dementia. Dad is disabled and my 12 old son is autisic I am the caretaker of all of them. Right now she is unable to put any weight on her legs making transfers very difficult. She is in an isolated lake community in Texas. My dad is her main caregiver. She get PT only for 90 days each year. And no OT or ST. We pay out of pocket for a (non licensed) caregiver. They use a lifting belt to move her now but now that is even proving more taxing on moms body. I am reading how we can increase coverage for PT, OT, and ST on many blogs. But it doesn't really explain how to get it covered. Also, some have answered how medicare covers for someone to come in their house to help with daily care. How do they get that covered? Additionally, getting a lift paid for if two are required to move her (which is required for mom). Mom and dad do have saving and retirement but are on a fixed income (lake house is paid for). They are able to save $300.00 a month even after paying for the caregiver. So Medicaid is not an option for them based on their income. How do we get some of this covered? Even if I call the home health agency, they say that they think they are doing all they can.
Mom has bed sores and medicare doesn't want to pay for a better mattress. Unbelievable that they worked so long and hard for this?!?