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My husband and I have been very frustrated and have been snapping at each other, due to the care of his sick father. Sometimes, my husband even yells and cusses me out.
My father-in-law is difficult and is refusing any type of care or physical rehab.
He has been admitted to the hospital twice in the last few weeks ( copd/emphysema) and now wants to leave rehab.although he promised to participate. His strength is nil, due to his inactivity for the past year. The doctors and nurses feel he is capable of doing more. We both feel that he has just chosen to give up. My father-in-law is also refusing any type of pallative/hospice care. He basically has chosen to be bed ridden, using bedside commode and does not even try to walk any where ( just to the bathroom would be great ).
We are both freaking out about the bedside commode, as his bed is in the livingroom ( he has a perfectly good bedroom and bathroom).
For the past year and a half, I have waited on this man hand and foot. I know he is sick, but I feel he has really taken advantage of me.
When I try to address the future, such as a nursing home or continuing care, my husband refuses to talk about it or make any plans. My father-in-law's primary feels he should be in a nursing home, because of the type of care he wants. All our friends and most of his family feel the same way.
Mind you, I am not complaining mindlessly, but I have made it VERY aware that I cannot give the type of care he wants now. I would be more than happy to if I felt my fil was at least trying. The thought of me taking constant care ( feeding, and changing bedpans ) of man for possibly a year, leaves me drained and depressed.
Just yesterday, my fil was admitted to rehab.,to build up his strength and already by 7 am this morning, he wants to come home. He has not even done one session. The place he is at is an old place and busy, but has the best level of care around. He has a private room, good food and lots of help available. The original plan was for him to stay at least two weeks and then continue therapy at home.
I do not have anyone to help me, although he has two daughters, they are not around. My husband works, but not full time. He is home at least three to four days a week. When I try to demonstrate how to do something for his father, such as meds., for an i.v., he does not want to learn. In other words, most of the care falls on me. He does drive him to appointments, but now that looks like it is going to be another responsibility for me. I do not have a car, but now my father-in-law is ok with me using his truck. ( I get a little hurt, that he never let me use it before ).
I know I am burned out and I have told my husband that I am. He just gets angry.
I do not know what to do. A part of me has just chosen to not care any more and to no longer say anything other than "no".
I am so disgusted with the both of them just sticking their heads in the sand about the entire situation.
I am thinking of just confronting the both of them at once. Obviously in a calm but firm way. Sometimes I think my husband is just using me to care for his dad, due to his house.
Am I over-reacting? Sorry about rambling.

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dgrey, hugs and hugs and more hugs to you. You are not over-reacting at all. Your FIL really needs to stay in rehab. as long as possible; both for his needs and you need a break!!!!!! But, I suppose they want to send him home if he is not cooperating. I don't know how you do it; no wonder you are depressed; this is overwhelming.

It's unfortunate your husband isn't supportive. You do need to talk to both of them as you mentioned. Any chance of some respite care to help you out? It can be expensive and I'm sure you have thought of that. This is just a suggestion; but it might help you if you first talk to someone from Elder Services in your town. These people are well trained and so supportive; they saved my sanity. Since "they have heard it all"; they might have suggestions that can help you approach your husband and FIL. When I consulted with the social worker from their office; the one on one was therapeutic in itself and helped me tremendously.

Blessings to you and will keep you in my prayers.
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Do you have children? If not, take a vacation. I know you do not have a car but perhaps a caring friend or family member could have you come stay with them for while. You could take a bus. Sometimes leaving is the only thing that will get attention. Hugs and mega strength sent your way.
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I'm sorry you are having to go thru this, especially alone! You said your husband has 2 sisters but they aren't around. Where are they? Isn't your husband mad at them for helping? I understand that daughter -in-laws do care for our spouses parents, but this is just CRAZY that your husband has not 1 but 2 sisters & puts this all on you!! I stay home and care for my mother-in-law so I do understand . My sister-in-law lives out of state & does not help at all either but we were given my mother-in-laws home if we would be the caretakers for her. We are all happy with the terms of our agreement. Your thoughts and how you want to live your life MUST be heard. You have every right to be upset with this situation. Nothing in it seems fair to you. Please stand up for yourself. You are going to have to since you have no help. The longer you do this without some kind of agreement is gonna stick you right there the rest of his life. I know its not easy to confront them but your husband isn't being fair to you. Like I said especially when he has other family out there to help. I'm gonna be praying for you to get strength to stand up for yourself. Please put your feelings out in the open and talk REALLY LOUD if you have too! God gave you a voice Sweetie and right NOW seems the perfect time to use it!!!!!!!!!!!!!!!!!!!!!!!!! Love, Sherri
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I am in a similar situation my father has COPD and is bedridden I have been staying at home taking care of him 24/7 for the last three years without a break it is a lot of hard work. If he is still able to walk don't let him loose that ability. My father bed in in the living room also with the commode and urinal it is something you get used too at least we have. I can understand the burn out I maybe get to leave the house once a month. I would suggest that you take advantage of the times your husband is home and take some time for yourself. We can barely afford to pay the bills so the last thing we can do is nursing homes. And also our primary feels that he receives as good a care at home that he would there. But if that if financially feasible for you and you feel comfortable doing it then it might be something that you put your foot down with you husband. I no that it is stressful and a lot of work I always just take it a day at a time. Best wishes hope that things work out.
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I pray for that things will come to a "head" meaning its in GOD's will to certainly intervene. Its frustrating to see how other families cope and stay away for their own selfish reasons. It is very hard when no one sees how CRAZY this sounds. I am in a similar situation but facing reality of a dying mother who has only 6 mos. to live and brother is in denial and a sister who is in charge of her POA and is reactive, not proactive. I pray. That is all you can do GOD will intervene and make it possible. Its not fair but its the truth. Good luck and blessings to all what you do !
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Truth is YOU are a good person and deserves better. Make it clear to your husband that if his father comes home early, as he comes in the house YOU will be going out the other. You my dear need a break!!!
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dgrey, is your husband refusing to put his father into a nursing home, out of guilt? The two of you need to get away for the day and talk to each other. Tell your husband that you WANT to understand his thinking, as to why he refuses to get his dad the care the he really needs. If I were you, I'd want to know the thought processes that my husband had rolling around his head, of how he has reached his decision that I should be the one taking care of dad. Maybe you'll find out, that at some point in his life, either his dad or maybe even mom, made him promise NEVER to put them in a nursing home. If you had the insight, maybe you'll be able to get through to him. If your husband still refuses to discuss it, or he DOES discuss it and nothing has changed, THEN if I were you, I'd be taking a little vacation. Get away for a few days or a week and stay at a friend/relative/whomever and make yourself scarce. Hubby may need a wake-up call.
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Hang in there! You need to remind your husband that this is HIS FATHER! I strongly suggest that he be put into a nursing home. He needs more care than you alone can give him, and you have no help from his own grown children. As long as you continue to carry this load alone I believe that they will let you do so. It doesn't seem fair that you are stuck with this burdon. I'm not sure if your father-in -law is taking advantage of you or not. You have to keep in mind that he is very sick, and does need a great deal of attention. This is not his fault. However, I am sure that your husband and his siblings are taking advantage of you, and as long as you continue to care for their father when they don't even help... they will continue to let you do the job. Tell your husband you are done! If your husband has a problem with this, divorce the bum, you'll be better off anyway, and happier. Stand up, stop allowing your husband and his siblings to use you like this so that they don't have to do anything. Your husband yells at you because he wants you to think that you are doing something wrong,and you'll be more than willing to help out with "DAD" to make up for it. Oh, this get's me so mad! You are too nice.
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I was in a situation much like yours. When my husband was faced with the daily things I had been doing for the past 3 years caring for both his Mom and Dad. Things drastically changed. There was paid help brought in for the week days. Recently FIL was admitted to the hospital then rehab in nursing home. My husband just dealing with his dad 2 days a week was totally exhausted. My suggestion is tell him you can't do this anymore. Let him deal with it. I know one of the first things to go for my FIL when my husband had to deal with him were the depends. I feel for you as I've been in your position. The only way to get your husband to truly understand is step away from the situation. Tell him exactly how you feel that Dad needs to be in a skilled nursing facility. If he doesn't listen, and brings him home it's on him, cause you can't do it anymore. Good luck wish there was a way I could keep in touch with you so I know how you do with everything.
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Dgrey, you are legitimately in a tough spot. I'd recommend a drastic measure. Tell your hubby that you are going somewhere, anywhere, for two weeks he gets to see what his father's life will be like without your support. Then leave. Come back when hubby promises to appreciate all you do. We hosted my wife's mother for 10 years, and it was a wonderful, if exhausting, experience for all of us. All the good stuff was a direct result of everyone involved doing the best they can to make a difficult situation better. Your FIL has given up? That's his right. His quality of life may be so crappy he wants out. Recommend VSED to him. Check your state's laws, but if he posts a letter in the home in my state that says he has Voluntarily Stopped Eating & Drinking in an effort to bring about his own death in an act of self-determination, it's legal. You aren't obligated to stop him. Check with Compassion & Choices (dot com) for more information. Once your father gets what he wants, you and your husband can focus on putting your marriage back together. Good Luck. God Bless You all.
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Wow, I'm so sorry to hear of the struggles you are facing. You are obviously stressed and frustrated, which is never a good combination. In my time working for Focus on the Family, I came across a helpful article series that many people in your shoes have found useful. I hope you are encouraged by it. Hang in there!
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I am with the first gal. You are not doing any9ne any good-you are in burn out. Tkae your husband asaide. Tell him you are takinga well earned break and take 2 weeks off by yourself. Treat yourself to some well earned R&R. Tell you husband it is his turn to take care of his Dad 24/7 and when you return from your vacation you will sit down with the 3 of you to discuss how you continue on from this point forward. 2 weeks of doing what you have done for his Dad should open his eyes to what it takes to do what you have done. He may be much more willing to discuss nursing home options once he has had to do the work involved for 2 weeks. If not at least you will be able to come back rested and hopefully with a much more supportive husband-especially since it is his father. Are you living in the father's home? Is that shy your husband does not want him to move into a care facility thinking you may have to move out??
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Dear Dgrey63, I, like the other posters, say take a vacation. Get on a bus, train, or plane. Let the family take care of FIL for awhile. Other posters say 2 weeks, I say 6 weeks or more. You deserve a rest. Go to the beach, rent a cottage for awhile, go to a dude ranch ride some horses, enjoy the scenery. Let the pieces fall where they may. No one can take advantage of you w/o your permission.
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I have been where you are at with my hubby except he does work full-time so I have to give him some credit. However, for all of Us who are caretakers are full-time workers too except without pay. I agree with a lot of the people here that you really need a break but, as long as you continue to take on the whole responsibilty then you will never get a break. Your husband has no clue what little and big things you are doing for his dad. He needs to step up to the plate! Maybe, you can take a Saturday off for yourself and make sure you leave the house so you can get a break and just breath and enjoy yourself.
Do you have a 'Area Agency on Aging,' that you can call and see about getting 'respite' care? I know I was just complaining about the price but recently recieved a call from them and they are going to see what else is availble to help me out. They do try and work with you and being your husband is a part-time worker it probable would not cost that much. If nothing else he can step up to the plate and give you some time off for its his dad. You have went far and beyond as a supportive and loving wife and now he needs to support you and how you feel. Talk to him and let him know that you need some time to yourself.
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My first question is, are you sure that you want to save the marriage to this man who is shamelessly taking advantage of your kind nature? Who refuses to discuss the future?

But assuming that he has other redeeming qualities and that a mutual respect and love could be rekindled outside of this traumatic situation, I go along with the let-him-handle-it-alone approach. Arrange to be elsewhere at least a week after FIL comes home from rehab. How will hubby be able to go to work? Guess he'll have to figure that out, won't he? What about those tasks he's refused to let you teach him? Hmmm ... guess he'll have to figure those out, or call a professional for guidance.

This may sound really, really drastic. How serious are you about wanting things to change for the better? Start with NancyH's advice about heart-to-heart talks. If that does not result in improvement, prepare to take drastic measures. Or decide that the marriage is not worth saving, and take the drastic step to relinquish it.
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If you don't take a firm stand now in 5 years you will be caring for this man all alone-sit down and write a letter to your husband telling him how you feel and what his options are for his care of his father and as others have said arrange to go somewhere even if it is a Holiday Inn for however long it takes your husband to come up with a plan everyone can live with-if you are not there his father will stay in rehab-tell him cussing at you is not acceptable-he can place his father in a nursing home or get his siblings to help or have his father pay for personal care but that you are not going to stick around and be a slave-if you do not stand up for yourself now you will be very sorry soon and for a long time-tell yourself you do not deserve to be treated this way over and over again until you believe it-no one else is going to rescue you you have to do it yourself-what is his father saving his money for -for his adult children to inherit when he dies?
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Omg you poor thing, you do need to leave, even for a day , I know what you are going thru as far as the hard work in concerned. Honestly, your husband is using you in a way, isnt he? Speak up for yourself, enough already, hire someone if he must be at home and take a break. Poor guy wont live long, but either will you if you keep this up.
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You mention waiting on him hand and foot. That reminds me of something a nurse said to me last week. She was visiting on the behalf of the insurance company, assessing whether my husband was in need of a Personal Care Attendant. She said that it was very important to allow/insist the impaired person to do as much possible for himself. Let him get his own glass of water or a sweater from the other room or fetch the mail. She said when she goes into homes and sees a bell the impaired person uses to call for favors she says, "Get rid of the bell!" The body needs exercise and even walking to the kitchen (or wheeling oneself to the kitchen) for a glass of water helps prevent a bed-ridden condition or one where the person can't transfer from a wheelchair to the toilet, etc. She said if that happened it would make my workload impossible.

This is from a professional who talks to several caregivers each and everyday, and sees the outcomes of various approaches. We probably aren't doing any one any favors by waiting on them hand and foot while they still have use of their own hands and feet.
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I so agree, I am trying to keep my Mom transfering but she is dead weight 50% of the time now and its going to get my back,for sure. Jeanne why would bedridden make someones job impossible, the inevitable happens to most, and I have 2 friends doing/did it, they say its easier . One friends mom passed, the other one has been bedridden 3 years in her home. I sure hope my Mom doesnt come to it either, but its not impossible to do. When I interviewed I had woman who preferred bedridden to lifting. Ugh, so sad and tough for everyone involved.
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Reverseroles, I was quoting the nurse, and she was talking about inability to transfer, which would require a lot of lifting.
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None of this is easy...not having an old, demented, dying person in my home...that would be easier.
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You've tried to be kind and diplomatic in talking to your husband and he "refuses to talk about it or make any plans". So, there is no indication that anymore "asking" for his help is going to change the result. Your FIL and you will continue to decline unless there are changes. Your FIL may be beyond improvement. But, you are not.

It's time for you to put your foot down and take control of your life. Your future may or may not include your husband. That is the thought I would have in my head as I take the next aggressive steps. Whether your marriage survives and your husband stays in your life will depend on his actions. (How you're being treated could be considered abuse. Do you want to stay with a guy who doesn't want to come to your rescue?)

Your FIL will continue to decline...under your roof and care...unless he makes some drastic changes and his mental state improves. That probably isn't going to happen with the conditions you describe. The future path, under these denial conditions, will only get worse and incredibly too much for you to handle. Working part time, your husband is CHOOSING to not make decisions, help you or make plans. He needs to know that his choices have consequences.

I agree with others here, you need to get away for not only your health but to also force your husband to get a clue. Take your time away when he is off work, therefore it won't interfere with job & income (and an excuse from him.)

You may have to do this more than once. If after the third (you set the number) getaway he doesn't come around...separate. Is there some place you could stay? You need to be thinking about this and making your plans now.

Your life should not...can not be a fulfilling & happy life based on your husband's choices. This isn't the 50s! Take charge of your life. Act on your choices...and don't feel guilty about it. You've been a loyal, trustworthy soldier. Put your husband in the position of asking himself what he's made of. He's taking advantage of you and doesn't have a problem with it. He needs to step up to the man plate.

Good luck to you and please keep us informed.
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Maybe you should add one more thing to think about when considering your options. Who do you think will be blamed if something happens to your FIL.
Will your husband say "if you had watched him better or had done this.. FIL would have been fine." Sounds like it could be a setup to blame you insteadof taking the blame himself or at least sharing.
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FIL has three children, he is their responsiblity. Do you have any means of support? Can you get a car? I would start thinking along those lines. I am sure if you are dependent on your husband for everything, he feels he can tell you what you will and will not do. maybe it is time to make a life change and let your FIL's children take care of him. Where are his daughters?

When I think about this situation, i think about my prissy, career obsessed sister-in-law and how she visited my dad once in the month before he died, and I just have to laugh at how we teach people to treat us. She has my brother jumping through hoops and as he says, what K@%#$ wants K@%#$ gets.

Maybe we all need a little shot of the bitch gene. Ha!
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