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Hello, this is Julie Lee from Washington University in St. Louis.


I am a doctoral candidate working on my dissertation to better understand employed eldercare caregivers in North America.



I would love to talk to employees who have experience caring for elders while working. We hope our study can benefit individuals who manage their work and family responsibilities and suggest a way an organization can support its employees. For 30-45 minutes, I would like to hear your experience and thoughts. Sharing your experience with me will allow me and researchers better understand caregivers like you and make a better working environment for other eldercare caregivers. The interview can be over the phone or zoom, whichever you are most comfortable with.



Please kindly leave your contact so I can reach out to you: https://olinbusiness.ut1.qualtrics.com/jfe/form/SV_6WPCXhkIVPaYDAO



If you have any questions, please feel free to reach out to me via email: junghyun.lee@wustl.edu


Thank you!



[This research is approved by Washington University in St. Louis Institutional Review Board]



*Due to the Washington University in St. Louis Institutional Review Board guidelines, replies to recruitment postings might be limited.

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I've been an in-home caregiver for almost 25 years. Mostly for elderly and am currently the caregiver to my mother in her 80's and we live together. That's a real Pandora's Box. If your study protects caregivers identities I would very much like to help out with it.
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JulieLeeSTL May 2022
Yes, everything in this study is confidential. Your experience of being an in-home caregiver while caring for your mother seems like a unique challenge. I would love to hear about your experience.

Please kindly leave your contact here: https://olinbusiness.ut1.qualtrics.com/jfe/form/SV_6WPCXhkIVPaYDAO

Thank you so much.
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Dear AgingCare Community Members,

Thank you so much for your interest in this study so far.

I am still recruiting participants. Anyone living in the US/Canada who has experience caring for elderly family/friends while working is eligible. You will receive a $20 Gift Card of your choice as a token of appreciation.

Please kindly leave your contact so I can reach out to you: https://olinbusiness.ut1.qualtrics.com/jfe/form/SV_6WPCXhkIVPaYDAO

Thank you.

I will post an update if the recruitment finishes. Until then, this is an active study. Please kindly consider referring this study to your friends/family as well.
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Julie, I think in addition to the privacy issues, which still would be dependent on you to protect, there's another issue in terms of caregivers. It is that employed caregivers can be a complimentary, but not entirely the scope of caregivers, many of whom are family members who aren't being remunerated.

These are the people who really need support. I wouldn't deny that it's challenging for employed caregivers, but they go home at the end of their shift. They're not with the person who needs care on a level other than professional, and although some are reliable, not everyone is.

I hired a company when my father was nearing palliative care, but only one was productive, professional, and reliable. The other two were worthless, a complete waste of money.

This is another issue that you'll face in your research; not all caregivers are worthwhile or reliable, and some have their own prejudices.

There's no question in my mind that they're underpaid, but so are a lot of other employees in different fields. That could be another bias that's reflected in attitudes you'll observe in your research.

The compensation issue is driven by other larger issues, some of which are political.

I honestly don't know what the solutions are, or if any really exist, but the whole caregiving spectrum is something that needs attention. However, I wouldn't count on Congress to do anything except waste time and money fighting over whose beliefs are going to prevail.

I do wish you luck with your research though.
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JulieLeeSTL Apr 2022
Dear GardenArtist,

Thank you so much for sharing your thoughts.
Maybe I got it wrong, and I think it is my miscommunication in recruitment. I am looking for people who are 1) caring for elders who are their family/friend while 2) working in their job. That is what I meant but, I see that "employed eldercare caregivers" is misleading. Thank you for pointing this out and helping me communicate clearly.
I agree that family caregivers really need their help. These family/friend caregivers for elders are who I would love to hear about their lived experiences. If you would kindly share your own experience and participate in this research, I would appreciate it.
Thank you.

Best,
Julie
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Dear Ariadnee,

Thank you so much for thinking about the purpose of this study and the peer-review process. I appreciate your consideration.
First, I apologize because I could not find a way to reply to you. I hope you could read my reply. I am not sure if sending this reply to you via message would be too intrusive. So please kindly accept my apologies.
Also, thank you for thinking about the verification of the source. I am so lucky that in my study, I don't need to provide the participants information other than the basic demographic information (e.g., gender and age; mainly for a better understanding of excerpts). It is because I am looking for lived experience. Because it is an interview study, I am providing only excerpts and some parts of transcription for the paper. Another reason that I am not required for verification is that it is about my integrity and career. As required by the University's research guidelines and ethics, only I have an access to any information, and after transcribing the interview, any identifiable information (e.g., names and recordings) will be deleted. I see in some cases, researchers or journalists need to verify their sources, but it is not applied in this study. I hope this information gives me a chance to talk to eldercare caregivers who must be hesitant to participate in this study.
Thank you again for thinking from the researcher's perspective, Ariadnee, I hope I could have a chance to talk to you and hear your thoughts!
Thank you so much.

Best,
Julie
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Hi all,

The AgingCare team has verified that JulieLeeSTL is a doctoral candidate at Washington University in St. Louis. If you would like to participate in this research, please copy/paste the link provided into any browser or reach out to Julie directly.

Just a reminder: AgingCare will not provide contact information for any member, and per our forum policies, personal information should not be shared on the public threads.
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JulieLeeSTL Apr 2022
Dear AgingCareCM,

I am sorry about this situation. I should have had a way to communicate more clearly, but I didn't. I apologize for this, and I appreciate your comment.
Thank you.

Best,
Julie
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My mother and I just finished a 2-yr study through Yale University. There are ways to validate the studies so that you can feel confident about releasing information.

Julie needs to get permission from this forum's admins to solicit here for participants. This usually means they've confirmed that this is a legitimate study and request. So, hopefully Julie has a way to confirm this is a legit endeavor.

Even this forum is subjected to trolls and scammers, so please forgive our need for validation.
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JulieLeeSTL Apr 2022
Dear Geaton777,

Thank you so much for your reply. I fully understand concerns about personal information, and it is totally my fault that I was short on verifying my identity and research project. I personally thank you for participating in research projects, which have implications for the broader caregiver community. Although I don't know about the study you participated in, I hope you had a positive experience and consider future research participation.
Thank you.

Best,
Julie
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You know Julie, I almost went for this with a similar academic study but didn’t want the institution to have my personal info as I had relatives affiliated.

Why do y’all want our phone numbers? Our real names? F2F interviews? It’s as invasive as asking for addresses. It’s like talking to the press. Few really want to do it in real life.

Why not post your interview questions and just let us respond
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Ariadnee Apr 2022
I think one aspect of research, is to have verifiable sources. Proof that you're not making data up. Hence the personal detailed information, which, is removed from the study results and has no intrinsic value on that front.
So, if Julie gets 19 mid-level to upper level managers, who have shared their experiences as caregivers, their answers to a set of approved questions-"How often during the past month has caregiving interferred with work?" then that's all the study needs. But, when peer reviewed, Julie had better be able to provide proof of who responded.
Providing questions online to respond to is nice, but again, who is responding and how often makes for unreliable information gathering.
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