Question about hospice: Hospice doesn't seem to take my hubby's UTI's seriously.
Hubs on hospice 9 months now for Parkinsons. Also has late stage dementia. We are pretty good about identifying when he has UTI after 7 years of formal dementia diagnosis. He had smelly urine starting about 2 weeks ago, hospice kept telling us to push fluids, he got more passive, then a few days ago the smell was overpowering. I called hospice they took temp (normal) etc & nurse said have to wait till it's over 100. Dr just said push fluids & call in the a.m. Next day his temp was 99.2, then 99.9, he was sweaty & urine very smelly, then agitated and definitely uncomfortable. After refusing all day our caregiver called the hospice owner & Dr.; ordered cath urine for culture (he is incontinent) & I dipsticked it before the nurse took it away & it showed max infection. Dr. still wouldn't order an antibiotic. So I called his primary & told them what was going on & they immediately ordered an antibiotic which we started him on last night. Our Dr. said they'd contact hospice & tell them. Well, today he's a new man. Next time his urine smells I'm going to call his primary right away unless hospice Dr. will take urine for culture & start him on best guess antibiotic. Have I misunderstood the role of hospice? I thought they were supposed to take care of stuff like this.