Hello, my name is Lee and I am a C2 quadriplegic due to a disease called neuro myelitis optica. I had a sudden onset of symptoms which I compare to a heart attack except it was my spine instead of my heart. Within 40 minutes from being woke up from my nightly sleep with a sudden urge to relieve my bladder, I was laying flat on my back in the hospital emergency room, intubated and on a ventilator, unable to move anything from my chin down. That was on April 20, 2007.
I've been able to remain at home during this time due to my mother and sister caring for me. I never qualified for Medicaid so I was not able to get a personal care aide to help me. I recently found out that Medicare does say it will pay 28-35 hours of care if the patient meets certain criteria (which I do) and if a doctor prescribes it (which the doctor did). Now I cannot find anyone to take the prescription and provide the care. Has anyone else had this situation and what did you do?