Follow
Share

Thanks

This question has been closed for answers. Ask a New Question.
Definitely check out the above websites for more info. Because of the weakness, you can obtain a physical therapy consult from the doctor; therapy may help her to keep/maintain her strength. They can also show you how to manage the exercises at home.
Helpful Answer (0)
Report

Progressive Supranuclear Palsy has an excellent website at psp.org. The Hallmark of PSP is difficulty with vertical gaze--trouble looking up or down, so the patient complains that reading is difficult. This can go unnoticed until the patient has trouble walking--gait disturbance-- symptoms. "Palsy" does not mean shaking, but muscle weakness. You may notice her "eyes dancing" when she tries to look at something distant. As it progresses, you may see behavioral changes. She should have regular check ups every few months with a Neurologist. You could also ask about clinical trials for newer treatments. This is not something to be left in the care of the primary physician but definitely in the hands of a good Neurologist.
Helpful Answer (1)
Report

I suggest you access the ftdsupportforum website which has a subsection on issues related to PSP, and other disorders related to Frontotemporal Dementia. Others on that site may be able to share their personal experiences with this problem.
Helpful Answer (0)
Report

maria, I am sorry to hear about the PSP diagnosis. It is a difficult illness. The NIH has a very good report about PSP at http://www.ninds.nih.gov/disorders/psp/detail_psp.htm. What they write will give you an idea of what PSP is and what to expect as it progresses. I hope that it does not progress rapidly. Hugs to you and your mother.
Helpful Answer (0)
Report

This question has been closed for answers. Ask a New Question.
Subscribe to
Our Newsletter