My mother has early onset FTL dementia, she's 53 and started showing signs at 46. I'm 25, she's been living with me full-time for the past three years. One thing the dementia did was turn her from an introvert who was scared to go outside, into an extrovert who will talk to anyone willing to listen.
She mostly watches TV all day, day in and day out. She occasionally will go hang out with one of our older neighbors, but it's rare, mostly due to them not being sure how to handle her on an off day. She used to read and do word searches all the time, and would get tunnel vision, so it passed the time for her. But I think the word searches have gotten too hard for her. She circles the letters, and then connects them by a line. She's said she doesn't think they put the worlds in the puzzles anymore because she can't find them. She's also slowed down on her reading. I honestly don't think she remembers the story for more than a couple hours, and gets confused.
I haven't been spending a lot of time with her as of late. I work from home, so I don't have an excuse. I'm not entirely sure why I'm pulling away from her, but the thought of spending time with her beyond making sure her needs are met or taking her to the doctors, gives me so much anxiety.
I feel terrible and like I'm failing as daughter. I'll eventually get her into assisted living with memory care, I've saved up enough for about four months so far, I need a year's worth before I'll push anything. The place she wants to go to (where her older sister is) doesn't take her insurance.
Until then, are there programs I can get her into that offer daytime supervision but also gives her a chance to make friends and get enrichment of life? She's still able to dress, go to the bathroom, and eat by herself (she's not allowed to use the oven or stove anymore.) I feel like she's wasting away in front of the TV, but I don't know what else to do until she can go into assisted living.