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Several times my mother has put her hands in her poop during her sleep, now she is doing it when she is awake. She is not senile. She will be 86 in July, 2013. I am at my wits end as how to stop this. I know I can not tie her hands, but after cleaning up this mess on her hands, nails and the bed I am tempted. Please tell me that there is a solution!

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I've said this before. The difference between caregivers and "the others" is....when we say we are having a $hitty day...we mean it literaly.
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A regular toileting schedule may help - I understand she is "bed ridden" however, that's what lifts are made for. If she has Medicare they will usually "rent" the lift.
Other things that may work are Union Suites - old fashion I know but you can still find them and it makes it harder for the person to access that area (you can also cut and hem them for summer use if needed). Bike shorts also help - They are harder to get on because they are tighter, but that's the point. No matter what you do it will be more work for you, the care giver but you have to decide which battle you are willing to fight. Good luck!
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I believe if you could put her through cognitive testing, which I would never recommend that you do, you would find that she has some form of dementia. I guess it's up to doctors to determine what kind of dementia a particular patient has but I'll tell you with experience from three different kinds, the caretaking is just about the same regardless of what its called. What's more important is the stages in, from mild to severe. That more than anything will determine the level of care.

When my father with Alzheimer's was in a nursing home for the last 16 months of his life, his "roommate" was a decade older with some type of dementia, bedridden and in the fetal position. He regularly forced his hands into his diaper to masturbate or handle his poop. The neuro-psychiatrist explained to me that although sexuality is one of the last things to go, this manifestation is often indicative of reverting back to a one and a half to two year old stage where children are touching their genitalia because it feels good and show what adults might call an obsession with their poop because they feel they are losing something from their bodies.

Similar but not the same as the "union suit" suggested above, the nursing home put Lester in a jump suit made specially for problems such as this and for people with dementia who undress themselves. They have a zipper up the back so the person can neither undress themselves nor reach into their underwear. In Lesters case he just kept running his hand down the side of the jumpsuit absentmindedly looking for a pocket that wasn't there. It didn't frustrate him, it just didn't let him accomplish his goal.

Later, my aunt had alcohol dementia and when she was beginning to show signs of undressing, I remembered Lester and the jumpsuits and started doing a little research. For ladies, they make zipper up the back jumpsuits that look like two piece outfits. I was almost ready to order some of those for her when she had three strokes and ended up passing away.

So perhaps what I found will help you with your mom. In addition to the two piece looking zipper up the back outfits, they also had ladies back zippering jumpsuits. There may be other places but the one I found that I planned to order from was (buck and buck).

I would love to hear follow up on this if you have time to post. Good luck and best wishes.
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Hey bean1046;i know when my husband bill was bedridden i would come out often at night to check on him. alot of the times it was to put another diaper back on him, for the one that he started with was torn off.I would pick up all the covers and pillows he would throw on the floor. he just couldn't be still, but did not like the diapers on him either. because of the lack of sleep on both our parts, we treated his situation with medication, and of course kept a log of all his output and input to watch for any changes that took place. have you tried playing music at night? i know this may not have any impact, but I know when I tried it with my husband, he seemed to really like this too. hope this helps. looks like you have alot of great advice from all of these individuals.one thing for sure. you're not alone bean1946. i pray that God's grace will enable you to keep loving her.And to receive His love in the process and to stay full of His joy and hope. Just always remember bean1946,nothing is too hard for our God, and you have the greater one living on the inside of you, Jesus. He's always with you bean1946. He will give you what you need, believe me He will and wants us to ask Him to also. God Bless You.
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This is a multifacited problem. It's possible that she has a sensation of something unpleasant and is simply making an attempt to get it off. If she is half or fully asleep, this would all be instinctual behavior. I would check her skin for any signs of early breakdown, then check pH of stool and urine (might be highly acidic, which can be painful). Rather than super tight diapers, I would slather her skin with a protective barrier cream/ointment, and consider modified union suit or other garment that Velcros up the back rather than zips. Velcro can be removed by you, and you don't have the issue of stuck zippers when you need to get the garment off. I would also have cloth mittens that you can use, if you lotion her hands prior to putting them on, they have the added benefit of increased comfort and skin care. Checking her toileting schedule/needs, think of a lift (allows the person to better empty their bladder/bowels due to gravity and better position), would be helpful. Of course, I would let physician/nurse practitioner know the problem, including pH of urine/stool, especially if pH is low (acidic).
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I'm curious, Bean, did you ask her WHY she is doing this? What does she say? I agree it is probably a sign of dementia. Anyway, if you are the only caregiver, the suggestions that you take her to the potty every two hours around the clock are beyond ridiculous! When are you supposed to SLEEP? My mother is incontinent, with uncontrollable diarrhea. Thank God she doesn't feel the need to play with her poop, but our lives still revolve around her poop. Again, unlike some of the comments, we cannot CONTROL someone else's bowel movements. It does not matter what we feed her or when, or how frequently we wake her to make her use the toilet. She could go every two hours, and 15 minutes after she sat on the toilet for a half hour, she would poop in her diaper and get it all over the place. I wonder if people who think that is controllable ever had a baby!!!

Anyway, back to your problem. I doubt you can have her wear latex gloves 24/7. Wouldn't be good for her skin. I kind of like the mitten idea - wonder where you could buy those? I can't imagine trying to wrassle an 86-year-old woman into long johns with a zipper up the back. Does she wear pajamas or a nightgown? We keep my mom in a short nightgown for ease of access when she has to potty or to clean her, not unlike hospitals making patients wear hospital gowns.

Other than keeping her nails short for ease of cleaning, and keeping disinfecting wipes handy for when she's playing in her diaper, I don't know what to tell you. I don't think there is any way to keep an adult diaper tight enough that she would not be able to get into it if she really wanted to, which leads me back to WHY she does it. I know one elderly relative of mine used to reach in to dig her feces out when she felt constipated. We couldn't get her to stop doing that so we cut her nails very short so she wouldn't scratch herself and get an infection.

Ahhh, caring for the elderly...
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Preventawear has clothing that can prevent this. The best way to get feces out of fingernails is to fill the bathroom sink with warm soapy water and soak her hands.
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It would be nice if they'd come up with a plastic cone "skirt" to place at the waist (over the patient on the bed) that would leave her hands free, but prevent her hands from getting into a mess....
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God bless Google search and God bless CarolLynn above. She said, "So perhaps what I found will help you with your mom. In addition to the two piece looking zipper up the back outfits, they also had ladies back zippering jumpsuits. There may be other places but the one I found that I planned to order from was (buck and buck). "

While I am blessing, God bless Buck & Buck. My deeply demented mom has been decorating her own room, the shared hallways in her assisted living/nursing home/hospital care -- the whole world within her reach -- with her own feces for months now. The staff and I have been pulling out our hair. Socks on her hands at night has helped, but when she is awake she won't keep them on. Even when I was sitting right next to her at dinner (with other residents at the table), she is so quick and practiced that she reached into her pants to bring her bowel movement out for display at the dinner table this week.

No amount of reasoning, talking, writing (for her to read), signage, begging, etc., etc., has helped. I read a post on another site about in her frustration over losing her wits, it might be important to her to keep "part of her body" rather than to flush it away. Who knows? She's conversational, but she can't explain this.

My mom's fingernails have been caked with feces. No caregiver can be blamed for failing to keep up with it. It's an ongoing project without respite. She won't sit still for thorough cleaning very often. It's a health hazard for her and for everyone around her.

The Buck & Buck one-piece suit is the first useful advice I have found and I have asked A LOT of experts and read A LOT of websites for advice. This works. Buck & Buck has some other super useful ideas for our issues, too.

Thank you, thank you, thank you, CarolLynn.

And, God bless all of you who are caring for the demented.
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Good idea Peptic. There are also one piece suites with a back zipper available from Buck and Buck who sell all kinds of adaptive clothing
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