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Blessings to you all.
She has put me down all my life, and when I came to care for her I thought finally she has to approve of me doing this, but it just made matters so much worse. She admits its all about her, and I tell her that's fair enough, but according to this theory of hers that therefore means I can use this statement as well to forge a life for myself...this is where she trips up, and tries to say but you owe me. For what? If she wasn't my mother she would be a person I would avoid. But she is and that makes me care for her wellbeing. This is all. I do find myself falling into the trap over and over with my desire to have this 'loving mother' overrides any kind of logic at times, and leaves me drained, depressed and just not a nice person to know.
This will continue till the day she is not here, and I'm sure I will feel all the guilt of maybe I should've tried harder, but I hope that logic prevails and I dig myself out of that negative thought process. Sometimes understanding why a person is like what they are like, does little to help, and can make you sadder.
All I can do is my best to not be like this to my kids, and learn from mistakes..I gave my kids life, and I love them to pieces, they are far from perfect, but I do not own their lives nor would I hold them to ransom that they must care for me or I will make their lives hell, the thought they would resent me like I do my own mother just makes me shudder.
I am who I am, good and bad, but I have learnt that your loved ones are not pawns in some sick manipulative game of life, and you don't treat them so. Live and let live, you get one shot at this life thing, either get to the end with regrets and delusions about yourself, or give it a bloody good shot and get to the end with a feeling of pride and satisfaction you did good. I want to go in the ground being able to slide into the 6ft hole on my knees holding a glass of vino yelling...yeeharr what a ride lol
Dementia does progress, and she does not have those manipulative tendencies anymore. It's only been a matter of months, but she does not put any pressure on me anymore. She is happy to see me and shows her appreciation, even though she is difficult to understand. Sometimes I feel badly that I could not do it in my home anymore, but then I quickly evaluate the reasons in my mind, and I remember that it was the only way to preserve my own life.
It is possible that everyone who reads this thread with difficult parents, will be able to get past the point of frustration and feelings of being manipulated. Your parents could have a change of heart about all sorts of things. When we are in the middle of it and we are tired and they are being awful, it's hard to realize that they will change.
They give up, eventually. I think we all would do what we need to survive, to hang onto autonomy, and life as we know it as self-sufficient adults. It must be fear that drives them in some ways.
I am happy I have been able to forgive my Mother. I still do not understand how she could have been the way she was when we were children, or how uninterested she was in her family, but something in her mind must have made her that way. I have accepted that she did the best she could according to her awareness and capability. I can do better, due to my awareness and ability, so I do.
All the Best to you.
Hugs, Christina
She hates being in there and would prefer a place that didn't have really old people who went to bed early, and the ones with dementia and the deaf ones are just plain annoying, as well as the ones who are loud and just plain common..(this is my mother true to form). I get the 'is this all i have to look forward to now'...
Its costing her an absolute fortune in the home as she never entertained the idea of putting money in a trust because that would be like leaving me and my sister money and why should she as she says, its her money she can do as she pleases with it...which is true, however...you reap what you sow, she now has all the money in the world that will be spent on her as she always wanted.
Sometimes they will tell you what you want to hear, its another form of manipulation to keep you in line so to speak, you may be lucky that your mum really does want to go in a home, but I would be very sceptical until its a done deal...but that's me and the experiences I have had that's made a bit wary of what she says, is way different to what she really means.
End of day, she's sorted, I'm nearly there with new job and ready to move back to the life I had before embarking on the worst year of my life last year..keep moving forwards and keep smiling...thru gritted teeth sometimes lol.
So, if and when she needs the Home. It will be an easy thing for me and my brother since we were fed a steady diet of "I can't pay for that because I have to save for a nursing home". Of course this was just an excuse to mizer away everything she and Dad had. She will be so unhappy, but wait .....she already is.
I literally found a place for her in one day, and moved her in 2 days later, and that wasnt fast enough...In those 2 days prior it was emotional warfare, she did her damdest by trying to get onside my husband and whoever else would listen that I was unstable, and if if I could just go and my husband stay and care for her, this would work out for everyone....um yeah sounds brilliant to me...NOT
I even started believing I was going mad and went to the dr expecting him to find me a cosy padded cell, which I would've welcomed to get some peace! He tried not to laugh, but as he was my mothers dr too, said that I wasn't crazy just a bit stressed.
For too many years now, I have dropped everything to be at my mothers side, with very little appreciation but I did it because I figured I owed her, not because I loved her, she has made my life hell for so long, but she gets away with what no other person would dare to because she is my mother. I can say I did my best which is MY BEST, she would argue this of course.
Harsh as it sounds, she's had her life full of regrets, bitterness, and mistakes. She is 84, and hasn't turned into the kind loving person I could only ever dream about as my mother. She is where she needs to be as the wise Eddie says (he;s very wise!). Let him be cared for and get on with enjoying your life, one day he will be gone, and none of this will matter as you are then in a position to be free. sometimes I think we feel more comfortable feeling guilty and punish ourselves. Our minds focus on the negative its up to us to reverse those thoughts, and have some enjoyment while you can, if you were told you had 6 weeks to live, how would you live your life then?
As a retired nurse, I'm sure you talked about the possibility of a higher level of care. Riding the Guilt Rollercoaster? Welcome to the club. It doesn't go away, whether we've done the best we can or not. Your Mom might not accept the idea of a NH (few elderly do) and fight it tooth and nail as she adjusts to the new surroundings. But that's where she needs to be.
not remember his cardiologist of over 20 years. Would say things like," I have never been down this street before,." when in fact these were familiar roads near his home that he traveled frequently. He would ask repeatedly where we were going when he had a Dr. appt. His PCP gave him aricept, thinking it may help a bit and then, within 3 days, he called me asking if I knew where my mother was even though he has been divorced for 30+ years. He never took another aricept pill after that! He felt she had left him the day before and did not come back. For weeks we dealt with this...all the questions. Listened to him pleading with us to talk to her for him. He felt he had done SOMETHING to upset her. He left the porch light on for her always. In additon to these delusions, he often thought there were people who came and slept there at night and left in the mornig before he awoke. He wrote notes to these people instructing them to shut off the porch light when they came in. He would often make me go upstairs when I was there to check the bedrooms for these people. Last summer he called frantic, saying that some people had a party in his house last night without his permission and he needed some strong men to stay there so it didn't happen again. For two weeks we took turns staying with him to calm his fears about this. I moved many of my articles of clothing in along with toiletries necessary to go to work from there in case the need arose for someone to stay..Also, we identified he could not drive anymore and it was during these times described that we reached the conclusion. The van he drove was disabled in the garage and next we dealt with daily phone calls asking if we knew a good mechanic and calling everyone we could think of to come and give him a hand fixing his car. This went on for months. Neighbors and relatives had to be apprised of the situation so as not to lend any help to fix his vehicle no matter how much he pleaded. He began thinking that things he owned were missing and started to threaten to call the police to report things. We hid all his address and phone books so he had no resources to make these phone calls. His next delusion was that he needed to go to work. He had retired in 1993 but did not recall this information and started obsessing over needing to go to work. He feared he had made a huge mistake in retiring and he was convinced he had no money. HIs bills were handled by my brothers, one of which had power of attorney for several years prior. He demanded money all the time, and my brother would get him money, but he would hide it and then ask for more. We would have to go on a search for the money which was always difficult to find. If we could not find the money he demanded more. We removed his checkbook and kept an envelope of money in the house to quickly produce money if needed. We forwarded al of his mail to my brother and despite not getting mail for months, he wouold check the mailbox every day, sometimes more than once. He continued to cut the grass on a tractor despite his memory problems, and did a very thorough job of it! The phone calls came frequently and then more frequently.......One day he called the police and told them that his 22 yr old daughter (myself) was kidnapped by a salesman. The police came and he was a friend of the family so not much was done.....In the summer I took him for a Dr. visit and asked for documentation of his dementia thinking we would need outside help soon and would need a diagnosis on paper for social agencies to lend us some help. The Cat scan showed a stroke, small vessel disease etc...Lately, right after Thanksgiving, I called him and he was frantic saying he could not talk because he was calling my brother to take him "home." He started to believe he was in a cabin on vacation,and not at his home. For three weeks someone stayed with him around the clock providing 24 hr supervision. During this time he packed up nearly every day to "go home." He started sundowning and getting up at night and packing up to leave. I got a baby monitor so that when I was sleeping there, I could hear him if he awoke at night. If unatteded in this middle of the night he would make countless phone calls asking for help. His PCP put him on respirdal. This helped him sleep somewhat....Many days were spent driving him around looking for his home. Sometimes when we would return home, he would believe he was home for 10 min to an hour. He could not be left alone for any length of time. Once I went to the store for one hour and when I was gone he went to the neighbors to see if they could take him home. My sister came in from NJ to give me respite because I had been staying there since Thanksgiving. I found it increasingly difficullt to do my job due to the stress. My sister spent hours driving him around and "going home" since she had no idea what else to do. When she was packing up to leave he left the house, crossed the street and was on the neighbors porch tryiing to find out how to leave. He had begun to think there were people keeping him there and that he needed special papers to leave. My sister was beside herself, thinking she had done a poor job of looking after him. When she got him back in the house, and was blocking the door so he could not exit, he threatened to hit her. This was on a Monday, this past week. On Tuesday I took off work. I had an intermittent Family Leave in place that allowed me to do this and was set up in case of emergency with him We worked with a consulting agency who helped in placement of loved ones. Their fees are paid by the facility where placement occurs. She recommended two places. I visited them both on Tuesday. Set up an evaluation for Wednesday, and we moved him in on Thursday. His PCP goes there so the transition was seamless. He never balked at us packing up and going. Not even when we loaded his favorite recliner into my husbands van. He was happy because he thought he was going home. I never told him this, I just told him he was going to be able to leave finally and he was really happy that he was getting his wish. When he was evaluated by the facility he did express to them that the place where he was, was a beautiful place but it was not his home. Very sad. Watching my little Dad walk out of his home of 46 yrs down the sidewalk and to my husbands van was so heartbreaking.....it was the worst day of my entire life. I sobbed when he was gone.......uncontrollably. We took several cars, myself, my husband and my brothers, and checked him into the Nursing Home. He never even protested when we moved in his belongings, hung familiar pictures on his wall, and loaded his clothes on hangars in the closet. After 8 hours moving him in, eating a meal with him there, and signing countless papers, he said he was ready to go.....wanted to get back before dark and that it was getting late. We informed him we were leaving but he was staying. He mumbles something about being misunderstood. I think even in his confusion he knew hhis obsessions and delusions were the cause of his predicament. He seemed agitated and said angrily that if we were going....then to GO! We scurried out of his room like mice. It all seemed too easy.........
Now, I related here the circumstances that took us to the final decision to place my Dad. Does it not seem clear to anyone reading this that taking care of him at home had become increasingly unmanageable? We were very blessed that nothing happened to him in this period of time when his mind was deteriorating, is that not apparent to the reader? There was potential for disaster every day. He was a smoker and I saw more than 3 cigs lit at a time sometimes in various places. He could have burned down the house. He was operating heavy machinery cutting grass sometimes without supervision this past summer. The combination of a gas can to fill the gas tank of a tractor and a lit cigarette is a recipe for disaster. Is this not so? Anyone reading this is asking themselves,"What took you people so long to make this decision?" .....and here is my answer.
Any time we suffer loss, we go through stages until we get to acceptance. Denial, Anger, bargaining, depression come first. During these difficult years I experienced them all. And moving between these stages is not clear cut. We jump from denial to anger to depression and between these stages often before we ever get to acceptance. If we truly love someone, and we identify that they have become a danger to themselves, and not only to themselves but to others, then we are forced to act. Many times we see the situation as manageable in different capacities. Some of these ways we manage are doable, but while they are in motion, our own relationships are beig torn apart. The damage done to relationships we are absent from, after a time, can truly be irrepairable. We all have our limits. We have to identify those limits while we are caregiving. For me, when I saw that my father was in danger, and my sister as well, being that he was so agitated it was the end of the rope for me. Additionally, when I saw the relationship with my husband, my children and my friends suffering, I knew it was time. After all, how ironic is it to bend over backwards to keep your parent in their own home when they no longer believe they are at home anyway? It is true sometimes we extend situations past the time because we are still stuck in denial. I feel fortunate that God stayed with us, answered our prayers, gave us strength and lent protection to all of my family and my Father through this difficult time.Everyone's situation is different, but I still think it will be known to us when the limit has been reached. When you can no longer do a good job at work, when you can no longer get a good night's sleep, and when the care of your loved one reaches a point where it would cost more to keep them in their own home with paid caregiivers than to take them to a facility where they will be safe., then it is time.
Thank you!
It sounds like your mother has some degree of dementia. You say that she can't remember anything. Is this worse now than three years ago? It is likely it will continue to worsen, and the point may come where you simply cannot meet her needs in your home. You are planning ahead for your own future and you sound realistic as you face the future. I think it might be good to start planning for your mother's future, while you don't have to operate in crisis mode. I suggest looking into Medicaid for her. Find out what you need to do for her to apply. What services might she be eligible for while she is still living in the community? Does your state have some kind of an elderly waiver program the supports elders living in the community? Call the department of aging. See what is available to your mom, now, and in the event that placement in a care center is necessary in the future. As you say, there may be no "Answer" but I think you can find many small answers that will help reduce the stress. Work on it. You deserve it!
The guilt is crippling, and it makes you sick, physically and emotionally. I have suffered the worst headaches in my life, and I am always tired. Your body and mind are in a constant stress state because you are living a life you shouldn't be. I have just about called it quits with my husband because we fight, mainly because my mother pits us against eachother, and I find out what she said to him, and vice versa and I feel so hurt. It is a nightmare, and in your situation, I can only give my opinion, but what is the use in having money put aside for the years ahead, when you need to use that money now to enjoy your life? Putting money away for your years ahead we all want to be secure and financially ok in later years, but money isn't everything, your health, your relationship, and most importantly your sanity is what matters, enjoy your lives now, put her in a home, give yourselves a break and enjoy the now. If there has been one thing I have learnt this year after living through 2 of the worst natural disasters that killed many people in this country, that you only have the now...tomorrow just might not happen, and whats the point of being the richest people in the cemetery? This is only my opinion for what its worth, I so understand what you're going through...much luck to you xx
It might be a good idea to not visit every day at first, to let her get settled. You could ask the care staff for advice on that.
I think the situation you describe -- "my mother has made my life hell all my life" -- is probably a little different from one where the mother has been nurturing, supportive, and always acting in the child's best interests. If the mother's mean behavior is a big change in personality and is due to factors beyond her control, like dementia, I think my attitude would be a little different. But even in that case there is a limit as to what one individual can do, and there may come a time when a professional staff is needed.
Good luck.
My story is like many I started out with the best of intentions promised my mother that I would never put her in a home and that I wanted to share this time with her etc etc...blah blah...OMG...it has been like living in a nightmare. Im 45 and felt like I'd been given a life sentence. Day in and day out I spent with my mother reminising over the past and her listing all those who'd done her wrong, namely my father...day in day out I ran after her from early morning till night, and even then I couldnt sit down because she wanted me to sit with her and bitch about those she'd already bitched about earlier.
I've felt truly helpless, hopeless, depressed, angry...the list goes on and its all negative. After being up all night last week with her vomiting and other nasties, I was cleaning and soaking sheets, towels and her undies...and I think a lightbulb went on above my head. I thought hang on, here I am soaking my elderly mothers undies, it was a beautiful day outside, what the hell am I doing.
She blamed me for her upset stomach and reckoned I gave her dodgy fruit...
Well something snapped in me...probably my sanity whatever is left of that! I said to her that's it, I can't do this, Ive tried my best, you need full time care, and I need to find my life again. I knew I had to act quick because the manipulation started immediately...she pulled every stunt in the book to make me feel terrible, from abandonment, to betrayel, to how could you, you name it shes said it. But I've stuck with it, because I deserve a life too.
I will go in to see her today and I can imagine the hell I'm going to get, but actually I've taken control of my life, she can jump up and down and cry, or whatever. I am important too. My life is important, my future is important. Our mothers know us so well and can push our buttons like noone else can, it is like a battle, my mother has made my life hell all my life, as from now, she no longer has that power, because I won't give it to her.
That's what they are there for. You cannot ruin your physical and or mental health by trying to do something that is too much. Would your parent want you to do that?
You can also place them temporarily, as a respite for you, so you can recuperate and see how the facility does for them.
Give yourself a break, have a good cry, realize you are a good daughter and that you are only human. You are doing a good job. Get some help!!! {{{ HUGS!!}}}
Yesterday I told my Dad that he needs to keep moving; that if he is unable to walk himself around, I will need to move him to someplace that can accommodate him safely, because we wouldn't be able to do that here. I had looked at places for him in NC, where he lived for 24 years. I haven't done the research here for anything beyond assisted living (and by the time he can't live here, he will be beyond assisted living). I think, and I say this from the safe side of the fence, that the thing is being clear about what the boundaries are for home care, before they get crossed. I wonder what I will say when he reaches the point of being beyond my capacity to care for him?